Lyme Disease Support Group

I know I don't post often, I am very curious to hear feedback on this one. My son's MD, been seeing him for the past 10+ years, refused to help me write a 504plan for him today. He claims that he has no documentation that the things that he treated him for his whole life are related to Lyme and if the medical record was requested there would be no record of Lyme being the reason that he is sick. I am so frustrated with the game of the schools require a doctor's letter, and the doctor's won't help. This is for college, he started this fall and is having a hard time keeping up. He has lost 35lbs since school started from the stress and the late nights of homework and studying. I am really worried about him and the school said they will write a 504plan for him, but that we need a doctor's letter stating what the problem is. And now the MD won't write one. It is not like this thing is going to be sent to any insurance company or medical board!!! I could write the thing myself, all I need is his signature.

I guess I need to go to school and become a doctor so I can do what I need to do for my kids.

Any ideas?

Thanks.

What's a 504 plan? Nver heard of it before?

I found this explanation on the internet, it is better than me trying to explain it...

The "504 plan" refers to Section 504 of the Rehabilitation Act and the Americans with Disabilities Act, which specifies that no one with a disability can be excluded from participating in federally funded programs or activities, including elementary, secondary or postsecondary schooling. "Disability" in this context refers to a "physical or mental impairment which substantially limits one or more major life activities." This can include physical impairments; illnesses or injuries; communicable diseases; chronic conditions like asthma, allergies and diabetes; and learning problems. A 504 plan spells out the modifications and accommodations that will be needed for these students to have an opportunity perform at the same level as their peers, and might include such things as wheelchair ramps, blood sugar monitoring, an extra set of textbooks, a peanut-free lunch environment, home instruction, or a tape recorder or keyboard for taking notes.