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Victoria Wilcox's LYME NY lyme walk



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04/23/2008 23:13
Bettyg
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victoria and sarah are 2 high school seniors who have organized this 1st AWARENESS LYME WALK IN NYC...

THEY NEED YOUR HELP! actually a closeup of your face and a brief paragraph 2" VERTICALLY MAXIMUM so it can be pinned to the back of those WALKING for us!!

all details are here!! to date, they have had only 20 FOLKS SEND THIS INFO, and have working many months on this!

please help them and us out by PARTICIPATING.

DEADLINE IS: MAY 15, 2008

***************************

http://flash.lymenet.org/ubb/ultimatebb.php?ubb=get_topic; f=3;t=019567

THANK YOU ALL for reading and hopefully your participation.

Vic recently was in the hospital again; twice since she started organizing and was in a self-induced COMA to get her lyme symptoms under control; so she is having severe health problems too like us!

she asked me to post this on any LYME groups; so there you go; your invitation to participate!

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04/26/2008 00:11
accalea
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How did going into a coma get her lyme symptoms under control?

Popular posts by accalea
    NO SUGAR
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04/26/2008 00:21
Bettyg
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acc......

sorry, i really don't know or more than likely, have FORGOTTEN due to my severe neuro lyme the answer on that. but if you go to her link above; you could ask her yourself!

i hope you/OTHERS on this board will participate! its so easy to!



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04/26/2008 16:08
ConnieD
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Thanks Betty and count me in. My problem is that I'm not too savvy on the computer. Is it possible to mail this info and picutre by snail mail? PM me with info, if possible.

Otherwise, I'll call in my personal geek squad, if necessary.

Thanks again!

Connie

Please do not take anything I say as medical advice. I am not a doctor

~Lyme Disease Support Group Leader~
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04/26/2008 20:31
Bettyg
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connie, fantastic!! try this!

Please feel free to email us at lymesucks2@yahoo.com with any questions, comments or concerns you may have about the walk.

victoria can then give you her home address so it can go SNAIL mail!!

thanks for your willingness to educate others on our lyme disease!!

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04/27/2008 06:29
ConnieD
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Thanks! You bet, BettyG!

I am feeling so much better and ready to raise

awareness and bring attention to this disease. It is

truly horrible to suffer from Lyme and his friends,

babs, bartonella, ehrlichia, brucellosis,etc. The most

horrible part of the suffering is not knowing what's

causing the pain and the uninformed doctors who don't

even know to look for Lyme as a possibility. Meanwhile

Lyme and his friends are having a party in our brains

and bodies at our expense. We are stuck cleaning up

the mess! I believe

it is so common that it needs to be a standard 'rule

out' diagnosis. That's my story and I'm sticking to

it!

Please do not take anything I say as medical advice. I am not a doctor

~Lyme Disease Support Group Leader~
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04/27/2008 08:39
Bettyg
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lymie,

" That's my story and I'm sticking to it!"

i use that expression ALL the time; you must have seen it somewhere!!

wonderful; vic will be so happy to get yours.

do you know of others to participate in her LYME WALK by just submitting 2" long info on themselves and a face photo IF possible!? one of the easiest projects i've ever worked on!

best wishes on your lyme journey!



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05/03/2008 13:46
ConnieD
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I'm trying to get my infor to Victoria. Every little bit of attention to this disease helps!

That's weird they only have 20 or 30 pictures so far.

I wonder what the problem is?????

Keep us posted

Connie

Please do not take anything I say as medical advice. I am not a doctor

~Lyme Disease Support Group Leader~
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05/03/2008 20:59
Bettyg
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lymie,

yes, i can't help but wonder also why victoria is having such a HARD time finding 2" of info on folks and their head photos IF POSSIBLE.

20-30 is terrible for how big both of these lyme site membership is!!

here we have volunteers who can walk FOR US, and they'd like to learn about us from our photos and 2" vertical length of info:

how long we've had this; age; what we've lost ... jobs, marriages, being able to attend school with other teens; bankruptcy/foreclosures, and family/friends not believing it thinking "it's ALL IN YOUR HEAD!" mentality! ufffda.

it takes 10 minutes to type what you want and to email victoria with it, and then take an already scanned photo and send that w/info! that's it ... so easy.

if you're so sick you can't do it, ask a family member or friend to do this FOR YOU! you want to be represented on this NY lyme walk! xox

BettyG, Iowa lyme activist

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