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08/17/2009 10:26 AM

I feel Lyme affect my lung

WY45324
Posts: 21
Member

I started my first ABx treatment 4 monthes ago. I started to cough constantly right after first ABx, and it last over a month. I no longer cough, but my lung feeling strange when I breath, feeling like there are holes in my lung. is anyone else has similar experience? I would like to hear from all of you as sugguestions and comments. Thanks!!!
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08/17/2009 02:51 PM
dharma79
dharma79  
Posts: 1180
VIP Member

Look in our facts section for symptom lists for Lyme and coinfections.

I believe that sounds like a coinfection symptom, if I'm not mistaken.

Hopefully someone else will be along to clarify...

Good luck!

Smile


08/17/2009 06:46 PM
sherlock004
Posts: 114
Member

Something is affecting my lungs big time, getting worse and worse to the point I'm on oxygen almost 20 hours a day. I have lyme, babesia duncani, HHV-6, and my doctor says any one of these can cause my breathing problem. We first attacked lyme, got a little better than was worsing. We then attacked babesia, steadily getting worse. I will be trying bicillin this week, to be able to attack lyme and babesia at the same time. Perhaps that will do it. I have also ordered a QRS Quantam pulsed magnetic machine, hopefully that will help. In the meantime I have a Springlife polarizer that I've had since I was a teenager, and I put it on my lungs, and the area it is on will drain in awhile. I just keep it moving it around. It helps me get through the night without oxygen (don't think the canula would stay connected with all my tossing/turning). I also have a Sota magnetic pulser that helps similarly (it too is only a few inches so it has to be moved around too), but it gets hot after maybe 20 minutes, so can't use it as much).

This is the history of what has been happening with my lungs. First I didn't notice any sensation in my lungs, but felt like I was breathing in a vacuum. I had pain in my brain/eyes from lack of enough oxygen. I got on oxygen, heparin (to help blood squeeze through too small microcapilaries), and CircuZyme (has Nattokinase in it), occasionally Cialis and now VIP to dilate my blood vessels, and it helped. Then it felt like a thin film of something the consistancy of silicone gel in areas of my lungs which prevented all air exchange in that area. When I'd breath, I felt a suction in those areas like if you put plastic wrap over your mouth and sucked. Occasionally that suction would then 'pop' open, and I could breath normally in that area immediately. Then that went away and now I feel a stiffness in my lungs, with real hard time getting oxygen through, but not from the inside of the lungs, but on the tissue side. Occasionally I'll hear a squishing noise like liquid going through a passage, then that area of the lungs I can breath through alright (until it fills up again). The only thing I could think that is happening, is the lymph is getting backed up in some areas of my lungs, causing fluid buildup. Somehow it gets unclogged and drained from time to time, but keeps getting clogged again. Just a guess, but I don't know of any other fluid that could make that sound in the lung area. In the bowels, yes, but up here?

I read in Schaller's babesia book that babesia duncani kills by filling the lungs with fluid (whereas babesia microti kills by exploding red blood cells). But no one explains what connection babesia can have to the lungs. What is the mechanism? I don't even know if this is what is happening with me.

If anyone has had similar experiences, read anything that might give a clue to what is happening, or have any ideas of what might help, I would be most grateful. I really don't see how I can survive if I continue the way I've been going.

By the way, I find it extremely hard to search in this forum, as I get in the search results all forums and it is way too much of the wrong things that come up it is too hard to find anything. Is there a way a search can be narrowed to just the lyme forum?


09/21/2009 07:07 PM
WY45324
Posts: 21
Member

After I first start my treatment 5 months ago, I start coughing a lot, and it get worse and worse. My LLMD then gave me Amaxicilin (plus I was taking Z-pak). The cough last over one month and did not look getting better. My mom suggest me take some honey, I thought, hey, I have some pollen, and I took a full spoon of pollen, guess what, my cough completely stopped that very night. I do sometimes still feel tight in my lung, but it had been almost normal for two months.

09/21/2009 07:27 PM
sherlock004
Posts: 114
Member

Glad you found something that works! Good old natural remedies - you gotta love 'em.

09/27/2009 05:23 PM
ldsucs
ldsucs  
Posts: 290
Member

Babesia? Have you tried Mepron/ malarone combo at high doses? Not FDA doses that doesn't work!

06/16/2010 09:16 AM
lymegirl84
 
Posts: 3
New Member

I've been getting the same weird eye pain / lung issues- When my oxygen is low I can see the veins in the back of my eye and I get sharp needle like pains in my eyes.

I've heard that honey and cinnamon help this- I'm going to try it this week- I can't eat due to my throat issues - but I might be able to put those items in liquids and ingest it that way.


06/16/2010 01:48 PM
TaraT
TaraT  
Posts: 4164
VIP Member

I too believe that lyme and co-infections have effected my lungs.. Anytime I get an infection/cold if I don't knock it out right away it goes to my lungs and I get bronchitis.

06/16/2010 03:14 PM
Supermom2
 
Posts: 269
Member

I think these bugs affect both our lungs and the blood cells ability to transport oxygen.

One of the tests my LLMD did was ECP - Eosinophil Cationic Protein. Lyme and it's cohorts can drive your eosinophil counts up. The eosinophils are a type of immune system cell, and a major cause of inflammation and asthma.

Before I started treatment for Lyme, I was having at least one critical asthma attack per week (like scary critical). I've been on treatment for 3 months and since I started treatment I have had only 1 mild asthma attack.

However, my lungs continue to be affected. We were travelling, and at higher elevations sometimes (but not always) I couldn't walk very far because I couldn't breathe.

On days like this, I would feel better after a hydrogen peroxide/Epsom salt bath.

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