New to this group

telling me I had Fibromyalgia & CFS cuppled with alot of other junk. None of it really made sence. On 7/28/07

I was camping and was bitten by a tick, I had the classic rash, flu symptons that go with Lyme. To make a long story short it took 5 docs and 5 months for a

diagnosis. I was tested with the western blot IGM and IGG at the Igenex labs. My IGM was Igenex positive & CDC positive, the IGG was Igenex positive, but NOT CDC

positive. My llmd believes that I have had Lyme of about 25 years based on my history and lab results. He

says he firmly believes I contracted Lyme as a kid then again in 7/07. All this just blows me away!!! Has any one else been exposed to Lyme 2 times? Thanks, Im so happy I found this sight.

Finding a GOOD garlic supplement is a good idea, it's a wonderful natural antibiotic, antiparasitic, antifungal, antivirul, also cats claw is good complimentary treatmetn with abx, and olive leaf extract. You are aware of a herx reaction right? the spirocetes have a die off cycle, and the toxins build up in your body, making symptoms worse, sometimes developing new ones, etc. This waxes and wanes. a gentle detox bath helps out a little, peroxide, epsom salt and fresh grated ginger is good for inflamation. and speaking of inflamation, NO STEROIDS for pain. they supress your immune system, and that's one thing you do not want to do. you want to build it up . they can also activate dormant viruses as in my case. (if you have ever had chicken pox, you have at least one virus), but many of us have more.

I'm a group leader/moderator here, as is Julie, so if you have any questions feel free to pm either of us. Otherwise, post away, I think you'll like it here. low drama site, many knowlegable people, lots of great opinions.

warmest regards,

jaime

I like my LLMD lot, but I am going in a large amount of debt that i can not afford. The meds are very hard on me,Im still trying to keep up with my Job

as a dialysis technition,herxing and working are impossible for me to handle. Do you know of any llmds in MI that dont charge alot? Thanks for yourhelp.

Yes, doxy is hard on the stomach, I started taking an acid reducer to help with that. and some people swear by the purple pill, is that prilosec? not sure, it's prescription.....i will pm you with a list later ok. hang in there.

jaime

Yes Doxy is very hard on the stomach and liver, my good friend ruined her liver on it, please be careful. When I'm on any abx for a long period of time, my doctor does blood word every two weeks to check my liver etc. Better safe than sorry if you ask me.

Julie

I see my doc. again 5/9 he said he would add another antibiotic than, he felt my system needed a break. thanks for the replys. Sandie

jaime

I have to give the abxs a chance to work. I have heard of some people taking abxs for a year or two. I dont think I will stay on that along, my body hates drugs.

What is the best natural protocol to take? and does it really work? There is soooo much to learn. thanks again, sandie P.S. I read your Bio, how awful for you. Have you made progress over the years?

Post edited by: buttercakes, at: 04/13/2008 05:44

You asked about natural protocols. Well, I am one of a few people on this site who chose the natural route...100%. It worked for me. The natural antibiotic that I used was Samento by Nutramedix. There are a lot of other homeopathics, herbals, and nutritionals that I took. I didn't do it by myself. I was under the care of a physician in the South. I also used FIR sauna, hbot, acupuncture, chiropractic care and zapping (which is similar to rifing). It sounds like a lot of things, but it wan't too bad. Plus, it worked. I'm better. There's a post about books to read somewhere on this forum. Information is power. After I researched this disease, I was convinced that alternative medicine was right for me. I too was told that I just had FM and was given tons of prescriptions for the myriad of symptoms that continued to worsen over the years. I just didn't know any better.

To answer your question about more than one tick bite, I'm sure many of us have been bitten multiple times. My first bite was in 1991. I was clueless about TBD and totally dismissed that tick. My symptoms were slow to progress. They just began with migraines and sensation of bugs crawling on my skin. I didn't pay much attention, I was busy with graduate school and just thought the headaches were stress. In 1997, I had another bite. My symptoms worsened and my spine and neck began to hurt really bad. Well, the rest is history. Ten years of hell. Oh well, it ended well, (once I was finally properly diagnosed with the lyme and treated ,I got better). You will get better, too. Just arm yourself with lots of information and choose the path that's best for you. For me, I chose alternative medicine, allopathic medicine failed me. I was sick of the pills and their side effects. I'd had enough poisons in my body.

I agree with the others that you consider taking probiotics and the other supps to boost your immune system.