Lyme Disease Support Group

My inflammatory symptoms came back again this week. Last night, my leg got swollen and started to cramp. The swelling has since gone down, but the cramping hasn't.

I saw my primary care doctor today, and they once again referred me to a rheumatologist and told me that it's probably Raynaud's Disease. They said it's nothing vascular, because I haven't had tissue die-off in my leg yet! They wouldn't refer me to a vascular doctor or order any tests on my leg. My LLMD also didn't seem concerned when I saw her last week.

So I don't know what to do - do I have to wait for tissue to die now? I'm miserable, in a lot of pain, and scared of what is going on. What do I do?

I get a lot of weird cramping too, I don't tend to swell that much with it though. What types of meds are you taking? I'm just not sure if it might be something that the meds are doing and/or that you aren't taking enough anti-inflamatory/detox stuff.

I'm taking doxy and azithromycin. Maybe I'm not taking enough detox stuff, I'm not sure. I started taking turmeric extract pills every day (2-3 times) to reduce inflammation, but I'm not sure what else I can do.

jnsuss,

make sure your detoxing and taking a probiotic daily.

Yeah, I do take a probiotic every day...I try to drink a lot of water and cranberry juice when I can, but I don't think any of the bacteria are going away...

cramping might be due to not enough magnesium.

Just because you have not had a "tissue die off" does not mean that it is not a vascular issue. I have not heard of such a thing. They should have ordered a doppler study just to be on the safe side. I would get the appointment with the Rhuemy just because he/she will know more. It is not going to hurt at this point. It sounds as if you are doing everything you can possibly do. I would elevate your leg when you can. Keep us posted on how you are doing.

Yeah, I think the whole thing is insane. I called my family MD, whom I despise at this point, to ask again for a test. My cardiologist's office will do the test, and it is possible that I can get my cardio to refer me for it, but I feel like my family MD should do it out of principle!