|
Hi I agree with everyone's posts--Lyme can either be cured for some or in remission for others and return with various stressors. as someone with 3 also ( almost grown) and who spent the better part of raising them with various levels of infirmity--I know how hard it is! I also agree with comments about disclosing Drs names- both the ones saying we "should" be able to post names of LLMds openly and those explaining why we dont May I suggest that we ASK each of our Drs what THEY wish?? IF the individual doesnt care then its ok to post their names.Most wont want that from my experience. Ive found it strange that many who "brag" about being a Lyme health care professional ( like CNHP or some ND's) and fish around websites looking for people to sell things to, are the very ones we need to be careful with as they may not have the experience or training needed for good health advice. The very "good" ones - LLMDs and real certified NDs and others do try to keep a low profile due to the aggravating politics. Id love for the climate to be such that we can all discuss the LLMDs and other info openly--unfortunately for now its not the case. As for the insurance question that seems to come up especially for newbies. Why they dont take it or file it--LLMDs and some labs (like Igenex) dont take insurance and ask that you file for reimbursement on your own for one main reason--they arent paid. Its even a fight when we as the policy holders ask for payment back!! Insurance companies are there to take in as much money and give back out the least possible!!And the Lyme dx has become a pariah.Too much office time would be spent fighting the insurance denials and appeals- many of my Drs have been harassed with the amount of documentation and paperwork and phone calls!! recently I was denied coverage for a DR (neuro--one of only 2 such super specialists in the entire state--so I had little choice to begin with) they sent me to as being in network--theyre excuse for denial?? the Drs office was in a hospital that was OUT of netowrk. So I call and say what difference where the office is, and that is his only office anyway. And that they sent me there to begin with. well it took 2 supervisors and calls from the employer's manager and the broker just to get them to resubmit!!Not to mention the over a dozen calls and emails/faxes from the Drs office too!! anything to avoid paying!!esp. if the dx = Lyme!! As we all need info about every possible treatment protocol, often mixing and matching to find one that works for us, I too would love to hear more about Lymie's methods!!! There could be something in there I havent yet tried for Evan!! Itd be also helpful if we knew how long Lymie had TBD's, which coinfections she suspects, sx and her progress--how long before each sx abated.And the flow/order of tx ( which tried first and second etc)- This way we can see if it may help us the same way!! and also which things would be better for us to try based on our own sx experiences! thanks Lymie!!! and Melian-- hang in it will get better!!! Finette |
He's amazing! But, we are happy to share that info with you guys privately. And, he's not too far from North Florida - Mellan775 - where in Florida are you? 
