|
IF the article makes both LLMds and IDs stop to really examine a patient and accept that MAYBE its not Lyme or maybe Lyme plus another coincidental illness that should be dealt with or if it makes those quick to pay for a miracle cure stop and think first and do the HW about risks and benefits--then it was worth it. I enjoy articles even the ones I dont absolutely agree with, if it starts a dialogue that opens the doors to information so many will be safer!! No one benefits from those saying either " it HAS to be Lyme" or " it CANT be Lyme". and as for the money??? the support groups barely break even and not much if any gets into the hands of researchers... the LDA has a HUGE budget and they use it to support Columbia's research and political wrangling--so darn necessary in this country BUT some of us at another group ARE looking into that money flow/trail!! as well as "connections" to websites making money,.I always say follow the money and power trails to get the tru story--unfortunately in America money and power are the roots of much evil and become the sine qua non. IF we find out where that large cache of funds is really going and IF its less than honest we will be publicizing it!!other than that what other large financial group is there in Lyme?? where else is it being pooled?? bisja- I agree that money doesnt equal answers BUT where is all this Lyme money?? LLMDs charging money to pay for the larger amounts of time spent? My neuro consult took all of 15 minutes ( told me he couldnt help me and to go to a super specialist) and he charged my insurance $600 HE gets to keep that money so I think when my LLMD charges me 185 for 30-40 min appts he can keep that too!! WHERE is all this money you think is in Lyme?? supplement companies charging 3-5 times cost for "cures"?-agreed Miracle cures and authors claiming to have "the answer"??- you bet Lyme coaches charging 150 an hr to tell you whats free and easily found everywhere? oh so true How about all those donate back a measly 10 percent of their ill gotten gains to research and clinical studies??? THATS where much of the money lies. drained from the pockets of the desperately ill and hoping to be cured by any means people out here. The ones claiming people out there are making Lyme an industry like cancer are often the very ones SELLING their snake oils!!. So far I have yet to see one, ONE of the naysayers put their money where their mouth is and support a real valid study to see what does and does not heal us and why...i.e. a real set of protocols that work not just on a few handfuls at a time. the explosion of books and ebooks and website "experts" on Lyme-yet not only do they NOT support research but they also now brag about how much theyr making off "their" illness ( and some cant verify they even had Lyme)--and do so from Hawaii and on CRUISES and other exotic places. THAT just angers me. Its up to US the consumer patient to be wiser and more descriminating, to ask questions before accepting advice (even mine!!  } and to cap this growth in the business of Lyme. and redirect efforts to studies and comparisons and research analyzing what IS and is NOT about this illness. |
"In the 3 months I have been with MDJunction I have developed a sense of calmness. I now friends who do not judge me because I have been a mental mess at times. It is such a good feeling to have friends I can tell my deepest thoughts and always get back to me with their support. I have never seen a therapist for long periods of time. Right or wrong, this is the best therapy possible for me. Thanks Roy for getting this up and running and making such a difference in my life. Sara" (saralaurie)