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02/09/2007 04:36 PM

How long does it last?

bubuwife
Posts: 8
New Member

I'm a little puzzeled about this...... The daughter of one of my co-workers was diagnosed with lyme disease some time ago, and that's the first time I ever heard of this condition. Is it treatable? Can it be fatale? How serious is it? Now that I see even a support group, I'm really intreegued and I'd like some more info. Thanks.
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02/19/2007 08:37 AM
Ganditorul
GanditorulPosts: 7
New Member

As far as I've heard, it may develop into a life-long disease, if improperly or untimely treated... Not sure though, I'd actually would like this confirmed (or not...) by somebody more informed.

03/07/2007 09:13 AM
CWDurden
 
Posts: 36
Member

Treatable and curable but can be fatal even if found in a short period of time. My son was diagnosed within 3 week of being bite and that was 9 years ago. It has progressed to his brain.....

I believe the key is this: aggressive treatment. You may be one of the lucky ones that will receive one antibiotic course and be cured or your may be one - like my son.

We did everything by the book but in my opinion - looking back - we should have been more aggressive sooner. Yes, his age was an influence but still..............

don't panic - get treatment from a Lyme's specialist. The sooner the better. If after one course of antibiotics and you are still having symptoms go to a specialist in CT!!

The symptoms are vast and confusing so that is why I say go to a specialist even if your western blot test isn't 100% positive -

I have read and read and experienced so much regarding this illness..the psychological and physical effects are overwhelming.

go to a specialist with DECADES of experience...

Regards.

Cindy


03/10/2007 06:30 PM
Ann
 
Posts: 3
New Member

I'm new on this site. I have heard the term "chronic" lymes which I think I have. I was treated fairly quickly with a course of antibiotics but was told I am still positive for lymes and that it will always be in my system. My joints or mucles hurt in the elbow area horribly at time. I am just not the same since lymes.

03/10/2007 07:35 PM
CWDurden
 
Posts: 36
Member

Ann,

Go to a specialist and if you don't have one near you I would recommend Dr. Bernard Raxlen. He is in New York now but had a practice for many years in CT. Google his name and find out for yourself about him.

Are you only having memory problems without any other type cognitive problems. If that is all you are experiencing then you need to jump for joy! Seriously. That is a good sign.

Get on oral antibiotics for a good long course thru a specialist. Dont' give up and yes I know it hurts but it will get better. take it easy when you can...keep in touch...

Cindy


03/22/2007 02:07 PM
Linnie
Linnie  
Posts: 3
New Member

Hi Ann,

I do not think a Lyme Literate Doctor can answer that. So Sorry to say this. I am speaking from 12 years of experience. Also in my travels of Lyme, there is NO such thing as a "Lyme Specialist." There is MUCH research to be done in order to be called a specialist. I have many questions that have not been answered by LLMDs (Lyme Literate Medical Doctors) simply because they do not know. Sad

I wish you the speediest recovery from Lyme for I do NOT want anyone going through what I am.


03/22/2007 06:15 PM
CWDurden
 
Posts: 36
Member

To explain further - a Lyme Literate doctor or Lyme specialist - yes - there isn't a true specialty called "lymes specialist" however - what I meant was find a doctor who has decades of experience - there actual title/specialty might be Infectious Disease or Internal Medicine

So forgive me - if I confused anyone with my wording but you get what I mean......

Doctors who practice treating lymes disease are your best avenue so dont' get discouraged. My son has had lymes for 10 years....and we have seen it all..

Find the right doctor - call him/her whatever you want - just keep going...nothing is 100% so dont' expect that but there are answers..........

Take care

Cindy


03/22/2007 09:17 PM
Bettyg
 
Posts: 32225
VIP Member
I'm an Advocate

since i just posted a topic here, i'll briefly read this area before i go to www.lymenet.org where i hang out.

1st, we have LYME disease without the s on the end; it's named after Lyme, Conn. so correct the duck docs everytime you hear them use the "lymes" word please! thanks Smile

yes, lyme is fatal if not treated correctly and LONG ENOUGH! if you go to www.lymenet.org, go to activism, and look for melanie reber's name. she just created a MEMORIAL LYME SITE,. in it are listed 250+ people with CORRECT chronic lyme diagnosis. each of their obituaries are in there.

that's it for now on what i briefly read here! hope this helps you. Tongue


03/23/2007 07:23 AM
CWDurden
 
Posts: 36
Member

Lyme - Lymes - it is all the same.......................horrible.......................

04/02/2007 06:06 PM
Ann
 
Posts: 3
New Member

Ok, if I listed all my symtoms the doctor would say I'm nuts! I wake up in the mornings feeling stiff, especially lower back and hands. I drink my first cup of coffee and am reminded my elbows hurt. I sometimes search for words when speaking and my memory is very short term! UGH Ann
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