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Lyme Disease Support Group
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03/10/2008 10:20
ConnieD
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Hi everyone...this pertains to girls only. I am soooo much better. However, during the week of my period I feel kind of "lymie." (headaches, fatigue and some mild stiffness). As soon as it's over.....BAM...I'm right back to walking on sunshine. I'm going to my doc on Wednesday and plan to address this problem. However, I wanted to take a poll to see if anyone else has noticed an exacerbation of symptoms during this "special" time of the month. Thanks in advance.
Please do not take anything I say as medical advice. I am not a doctor.

Open your mind to the possibilities available to you.

An attitude of gratitude is good 'medicine,' too.

~Lyme Disease Support Group Leader~
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03/10/2008 13:23
jaime1978
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oh yeah, have to say it seems to make a big difference....I feel my best about a week and a half to two weeks after my period. Worse, the week before and during. I don't know if my period cycle is just on course with spirocete die off, or if hormones play a role in it. But what you describe is pretty common PMS , they probable will want to put you on the pill...
Please do not take anything I say as medical advice. I am not a doctor.

~lyme disease support group leader~
please pm me with any special concerns
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03/13/2008 05:37
ConnieD
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Well, I saw my doc in Georgia yesterday. Guess what? I'm allergic to estrogen. That is what drives my headaches during that special time of the month. My doctor desensitized me to estrogen. We'll know pretty soon if it worked. Could be others who have the same problem (exacerbation of symptoms, especially headaches) have the same allergy.

I've mentioned these headaches to my gynecologist in the past. The answer was typical of conventional medicine these days...."We have a pill for that" no pun intended. I love getting to the "root" of the problem instead of covering it up with pills.

Please do not take anything I say as medical advice. I am not a doctor.

Open your mind to the possibilities available to you.

An attitude of gratitude is good 'medicine,' too.

~Lyme Disease Support Group Leader~
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03/13/2008 13:49
jaime1978
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wonderful! I mean, not wonderful you have these problems, but wonderful they aren't just throwing pills to cover it up at you!
Please do not take anything I say as medical advice. I am not a doctor.

~lyme disease support group leader~
please pm me with any special concerns
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03/13/2008 17:33
rocheleau
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How did he learn you were allergic to estrogen?

What did he do to desensitize you to it? what does that mean?

I am so curious!

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03/13/2008 18:12
Julie4848
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When I was desensitized for an abx for my lyme. I had to sit in the allergist office for 6 hours. They gave me a small amount of the drug and would wait and see. That is one part. The other way is giving you the drug via IV and wait for the body to react, very hard to explain. Google it and it will explain...

Thank god I'm not allergic to HRT, I've been on it for 5 years..

Julie

Lyme will not win, we will and we WILL…

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03/14/2008 06:09
ConnieD
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Alternative medicine is different than allopathic medicine. I was desensitized in the office. The whole thing took 15 minutes. No needles, no pain, nothing dangerous. I'm not sure what the procedure was called, I believe it was called NATE. I have to call my doctor's office on Monday and I'll verify the name of the 'procedure.' It involved me holding a vial of estrogen and some acupuncture points were stimulated (without needles). Sounds crazy, doesn't it? Well, everything they've done in the past year has worked. So, I have great trust.

If you haven't been exposed to alternative medicine, it's a whole new world. I like it much better over here. Don't get me wrong, I still think conventional medicine has it's place. If I'm in a car wreck, I do want to go to the hospital. There are other examples, too. I won't bore you with them. I think you all get the point.

Please do not take anything I say as medical advice. I am not a doctor.

Open your mind to the possibilities available to you.

An attitude of gratitude is good 'medicine,' too.

~Lyme Disease Support Group Leader~
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03/14/2008 11:31
Clayton72
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I'm with you, Lymie. I have lost faith in conventional medicine. I can't believe that as sick as I've been all these years that they couldn't even figure out that I had mono. I had to go to the alternative clinic to find that out! I told the docs for years and years that I knew I had infection in my body and that my lymph nodes were always huge... they didn't think it was a big deal. As a result of them not finding any of it out, my liver/gallbladder/kidneys are really compromised.

On the PMS thing... Last month was AWFUL. I had full on Lyme symptoms times ten. Light sensitivity, panic attacks and my joints were terrible. I couldn't control my anger either - that's the worst I have experienced so far. It was one day before I started...

I was 12 or 13 when I got Lyme so I got it before I ever had to deal with periods. As a teenager and young adult, I was bedridden quite often during that time. Evil PMS. I don't know how much was Lyme related. I'll report back after my treatment is further along.

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03/14/2008 11:43
ConnieD
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wow Clayton, your PMS sounds EXACTLY like mine was, and My breasts used to be so tender for two weeks that I couldn't even take hugs. OUCH! But, no more. Our doc has the cure. I cannot believe that I have zero breast pain. I wonder if you're allergic to estrogen, too ,or some hormone during that special time of the month. Be sure to mention it to our doc. No need to suffer.
Please do not take anything I say as medical advice. I am not a doctor.

Open your mind to the possibilities available to you.

An attitude of gratitude is good 'medicine,' too.

~Lyme Disease Support Group Leader~
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03/14/2008 11:53
Clayton72
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I'll do that on Monday! Thanks!
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