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Help contacting people needed



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03/09/2008 12:02
fin24

Hi folks

I need to find a few fellow Lymies who may be looking for me.

Please alert those who may be looking for me ( especially Lymenet members: Melanie Reber, Mrs Scampi, Katieb, Tracy9, Maureen2174, ping pong, etc etc) that I am not ignoring their PMs.

pass the word that they and anyone else looking for me can reach me as always at finrussak@aol.com

over at Lymenet there has been a LOT of junk going on and when I was targeted I had the intelligence to COPY and keep posts/threads and also how to nab someone who was not only deleting entire threads to insure only HER opinion prevailed BUT also caught her red handed!!

She was allegedly caught moving a thread with MY post and renaming it so it looked like I posted to the second thread!!!The website's system kept the original with original name ( clicking it took you to the NEW altered thread) and so a clear cut nabbing--and did admin act on it???

of course--they barred ME--the culprit said my actions proved I was out to get HER!!! I had NO warning, not allowed to clear my PMs, and NO explanation either of my so called infraction

looking back at the copied threads I saved--there was none that I could tell. fancy that

By publicly admitting I had the incriminating info WITHOUT naming names--this a.m. I was blocked from the site and prevented from my PM correspondence despite many unanswered requests from others to me for help re: Drs and such!!

Ive asked admin to re=evaluate this but I doubt Ill get an answer. Ive been told that for the past 6 months this has become common there: moderators allowed to block/ban members on the word of 3 or 4 who wish to have full political control

I remember when that board and others really welcomed open and honest communication!! and respected others enough to WARN if there was an infraction ( giving a chance to edit an offending post) and only remove members if and when it was blatant abuse--

now all it takes is catching someone else in the act of dishonesty and in order to hide this from all, off you go.

Anyway if you are still frequenting there by all means express your disgust but more importantly pass the word to those who may think I dropped off the ends of the Earth how to contact me!!

and thank goodness THIS site welsomes open communication!!!

thanks for your help

Finette

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03/09/2008 12:27
Julie4848
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Finette:

Not sure what this is all about. But, we don't want any of the same probems coming to this board.

Julie


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03/09/2008 12:38
jaime1978
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Finette.... lymenet was the first place I started my journey. I have not been back there in months because of the way people act. It's un called for. We've worked very hard to make this a support group with NO drama, and we're proud of that. I'm sorry you've made friends there that you won't be able to contact. I'm not sure if anyone here really goes to lyment. If they do I'm sure they can help you out .... But you are more than welcome to hang here, it's a very supportive place to be.
Please do not take anything I say as medical advice. I am not a doctor.

~lyme disease support group leader~
please pm me with any special concerns


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03/09/2008 16:11
fin24

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Hi Julie

already PM-ed with Roy. I just noticed that youre a group leader, so If you like Id be happy to answer any questions you have by PM or email!

Finette

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03/09/2008 16:43
Clayton72
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Welcome to MD --- I've noticed some drama coming from Lymenet - I'm hoping it won't come here either - this has been such a good, supportive place for all of us. No politics or stress (between members).

Hopefully your friends will find you and we can keep the negativity in another place!

Welcome!

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03/09/2008 16:54
Julie4848
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Hi:

First welcome...I'm just with the rest here, drame is for highschool..We are all sick and need support from each other not drame like lymenet.

your story is very sad...I can't believe lyme can do this to us...

You must be very proud of your children...

Ok, I am getting a cold so off to bed I go...Sorry if I seemed hard, just not feeling great at the moment...

Again welcome to our board

Julie


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