Thanks so much!

Jenp - where in Texas are you? We'll get you to the right place...

(I'm in Dallas).

You will see that a lot of docs won't even talk to us Lymies - it's frustrating but you are in good hands on this site to help you find the resources that you need. You'll need to find a Lyme Literate doctor that will have your testing done through a reputable Lyme testing place like Igenex. I tested negative when I was a teenager and have been though a lot of agonizing pain since. I was finally tested again at 35... and I am now a Chronic Lyme sufferer.

You can get doctor referals from ilads.org. (The International Lyme and Associated Diseases Society.) They have a system for that on their web site. I have heard that all the LLMDs (Lyme Literate Medial Doctor) have left Texas because the medical licensing board there was giving them problems. I live in greater Kansas City, and we have a couple of good doctors here. They have just added a new doctor at the clinic where I get my Lyme treatment, so it may be easier to get an appoinment than it used to be. The clinic is in Kansas City, MO and is called Health Centers of America http://www.healthcentersofamerica.com/. There is also a doctor Douglas Brooks in either Olathe or Overland Park Kansas (I am not sure which), and Dr. Brewer in KC, MO. Further south I have heard really great things about a doctor Krist (not sure of spelling) that I think is in Springfield, MO. I also have it in my head that there is at least one LLMD in Wichita. I hope some of this helps you.

If you find a doctor that wants to test your for Lyme, I would not necessarily avoid the test, but do not put too much stock in it. The FDA has not approved any test for the diagnosis of Lyme disease. The tests used most often give both false negatives and false positives. So, the test may make the doctor feel better, and help him or her decide whether or not he or she is willing to treat you. However, if you test negative, you may still have the disease. And, if you test positive you may not have Lyme, but something else.

Lyme and its treatment is full of political controversey! Many LLMDs have been taken before the state medical boards in various states and had their licenses threatened or suspended. The other rumor I have heard about Texas is that the medical board has been taken to court for creating problems for Texas Lyme patients. I hope it is true that someone in Texas is fighting back.

So, welcome to the world of Lyme. I will be praying that you get the help you need and do not get very sick. In the mean while, do everything you can to strengthen your immune system.

She can atleast test you at the better place - Igenex. They seem to have a leg up on the testing. The doctor also has Lyme Disease.

I think for you a few months of antibiotics and supplements would be pretty helpful.

I'll send you the contact info for my doctor - she's about 20 minutes east of Dallas.

She can atleast test you at the better place - Igenex. They seem to have a leg up on the testing. The doctor also has Lyme Disease.

I think for you a few months of antibiotics and supplements would be pretty helpful.

Don wrote:

Clayton, probably are you talking about dr.

I saw her and she is very good at Lyme. Even thu, my tests were negative she advices me to keep taking doxy due to my symptoms.

I realize this is an old thread, but I registered in order to resurrect it.

I attempted to call Dr. and apparently she has not treated Lyme disease at all for 4-5 years.

Is there anybody else in Texas (specifically the Dallas area) that can properly treat Lyme disease?

FYI, My 4 y/o daughter has it and is being treated by a doctor in California. My wife has it and is being treated by her Lyme-aware OBGYN. My wife's sister has it and is being treated by the same doctor. The closest doctor to me (apparently) is in Louisiana, and I'm almost certain that I also have Lyme disease.

Post edited by: ConnieD, at: 08/04/2008 04:26

Edit her name off this post!

You can pm Clayton and she may be able to give you some names in the Dallas area. I believe she knew of a few in that area.

you can't call and say LYME!!!!

Wow.

Seriously?

Wow.

Thanks all for the help. I've been in contact with Jaime and I'm to see a doctor in Louisiana on the 11th. Wish me luck!