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02/14/2008 04:37
bozo
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Jaime it appears that that severe reaction I was having in my left knee has subsided already. I am dissappointed to see that for all these months I have been taking my doxcycline in a poor manner. I see it is best to take it without food in ones body. Since both it and azithromycin tend to make my stomach woosy I have always taken it with food and probably a significant amount of food. I am going to have to figure out how to do this. Doug
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02/14/2008 06:05
ConnieD
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Doug, yes there is hope of recovery from Lyme. I agree with miss martha, Lyme is often misdiagnosed as MS, Lupus, and even ALS. I believe fibromyalgia is the most common misdiagnosis. Do you know that antibiotics can result in an overabundance of candida in the gut? This can cause all sorts of problems.

I cannot personally comment on any antibiotic regimen for treating lyme and its coinfections. I never took any. I chose alternative treatment and it worked for me. I had many of the symptoms you describe. I belive gut integrity is essential to our immune system. I had parasites, candida, and "leaky gut"(intestinal permeability). THis was addressed, treated and I'm better. Leaky gut results in widespread inflammation and pain. I belive you can ask your doctor to test for this. Most doctors don't even think about this, at least my EX-doctors didn't.

Don't give up, I got better. I know it sounds unbelievable to get better without conventional medicine, but it worked for me.

Hang in there,

Lymie

Please do not take anything I say as medical advice. I am not a doctor.

Open your mind to the possibilities available to you.

An attitude of gratitude is good 'medicine,' too.

~Lyme Disease Support Group Leader~
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02/14/2008 08:32
jaime1978
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Doug, you have me worried here. First of all, NEVER give up hope. There IS hope that we will all get well. Please, PM me if you need to talk on a more personal level. Second, as it's been stated, MS is common misdx for lyme... and one huge time doc says that MS is actually untreated lyme. You may have been bit long before you even knew. What you know of this past bite, could have been a second or third, many people don't even remember the bite.... I have so much to tell you, I am on my way out the door. Please, please, don't give up hope. I will get you some information you very much need.

as for me, I don't know if you've read my story, but my chances of full remission are very slim, but I have been getting stronger in my faith, I have been reaching out and helping others, and I know in my heart, I WILL get well. I may not be 100% ever again, but I'll take even 40%, that would be huge . . Lyme can also cause lesions that the mainstreem doc will say is MS, when in reality they are from the lyme. and I know a lot of times MS is treated with steroids, which is horrible for a lyme patient. One thing you MUST do, is build up your immune system. Many people can't take the antibiotics, and they get well on natural protocols, or just by making thier immune system work. In all honesty, those are the people I keep hearing about getting well, the ones who do it naturally.

ok, honey, I will get back to you asap. Hang in there alright.

Gentle hugs,

jaime

Please do not take anything I say as medical advice. I am not a doctor.

~lyme disease support group leader~
please pm me with any special concerns
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02/14/2008 09:09
Julie4848
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I fully agree with Jamie. Never give up hope, there is always hope....Just keep the faith that YES you will get better...

At times I have wanted to give up hope, but then the Lyme wins, and I will not let Lyme win, I will win like you will...

Julie

Lyme will not win, we will and we WILL…

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02/14/2008 14:04
ConnieD
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hi friends,

I hope it's okay to call "ya'll" friends. I feel your pain and your misery of lyme. I lived it, too.

Migraines were one of my most bothersome symptoms. They woke me up in the middle of the night almost every night for months on end. This was in September of 2006 through feb. 2007. I had lots and lots of migraines, they were just increasing in frequency along with the multitude of the other 'paralyzing' symptoms of Lyme. My migraines are few and far between now that I sought alternative treatment. If you want more info on how I got better just PM me.

Just don't give up. I have felt that way in the past. MY gosh, how much are we supposed to take? well, evidently a lot. There is just so much doctors need to know about lyme and they don't have time or don't believe it exists. But we know better and with all of our voices together, I believe we can make some changes in the future. I really want all of you suffering to get better. I know it's possible because I am living proof. I was scraping the bottom of the barrel, too. Now, I am reclaiming my life and dedicating a large portion of my time to encourage others to find the help you need to get well.

We can all emerge victoriously from this maze of Lyme. Keep fighting, keep researching and talk to us. We'll help you!

Warm regards to all,

Lymie

Please do not take anything I say as medical advice. I am not a doctor.

Open your mind to the possibilities available to you.

An attitude of gratitude is good 'medicine,' too.

~Lyme Disease Support Group Leader~
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02/14/2008 14:59
bozo
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Thanks Lymie, lets just hope there is some legitimate research going on. There are breakthroughs in everything else I guess we just have to be patient. Doug
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02/15/2008 17:37
bozo
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I got behind on my messages and was not sure if I responded to yours.I'm not sure I believe in the leaky gut symdrome. I do not have certain info that it is invalid I just want to make up my mind on tests I see.
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02/15/2008 17:44
bozo
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Jamie, I 'm late on the reply been busy with two vehicles in the shop. It sounds as though yours was caught late. Mine was caught early so my fights hopefully will not be monumental. I prefer not to confuse the lyme with my MS. Before I started back on the antibiotics I thought this was a migraine. I am 61 and never had migraines. That is what my primary doctor said. I decided it might be the lyme and took the antibiotics and the headache and nausea went away. Then last night I experimented with I thought might have been a migraine trigger( a change in the height of a pillow sleeping). In spite of my lyme symptoms having responded well when I used the higher pillow here comes that same headache again. I went back to the former pillow after 10 minutes but still had the headache half the night. Now I am confused and wonder if the lyme had really come back or if I had a light case of the flu. Doug
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02/15/2008 17:47
bozo
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Lymie, are you saying that lyme can cause migraines. That is the first I have heard of that. If that is true then it explains what I just told Jamie. That would make things make sense with me. On the other hand if migraine sufferers are correct they told me that antibiotics do not help their headaches. My headaches went away with the dox. and azith. within an hour.Doug
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02/16/2008 05:29
jaime1978
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Doug, yes, headaches can by a symptom of lyme
Please do not take anything I say as medical advice. I am not a doctor.

~lyme disease support group leader~
please pm me with any special concerns
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