Lyme Disease Support Group

Hi everyone. I need to know what you guys think about me possibly having Lyme. I will try to keep it short and if need more details, just let me know. I was always in fairly good health all my life. I had my 2nd child via c-section in 2006. 12 days after delivery, I woke up feeling like I had the flu. Later that day I took a vicodin to help with pain from my c-section. After it kicked in, I felt noticably better. The next day and for weeks to come, the same thing happened everyday. As ttime went on, I started getting more and more symptoms. After time when on and a million trips to dr after dr, I was finally diagnosed with FMS. I was aslo tested for MS and Lupus and both of them have finally been rules out. I was talking with my hubby the other day a suddenly remembered this weriod thing on had on my leg. On day a couple of years ago, I noticed this big pimple like thing on my leg. And man it hurt like a SOB. We thing this appeared while I was pregnant but we can not be 100% sure. It was so bothersome that I told my husband he was going to have to pop it. Gross I know but I need to tell you guys the story. After he was working on it and got a lot of the puss and blood out, he said there is something in there. Well he kept on working it till it finally came out. It was this little thing that felt like a rock, literally it was that hard. You could not break it. The are was really red. My husband seems to remember it looking like a big circle with the dot in the middle. I don't remember. The color is finally back to normal but that spot stayed discolored for a long time. We initially thought maybe it was a spider bite but now I am thinking what if it was from a tick and instead of me having FMS, maybe I really have Lyme. Please reply back to this with your thoughts and ideas of what to do next if you think it is Lyme. Thank you so much for your time in reading this and replying.

I hope you are all having the best day you can.

Lisa

HEY! Everyone pretty much knows that I think all FMS (or almost all) are either mistaken and really Lyme, or CAUSED by Lyme... Some arent' even true FMS no matter the cause.. MY OPINION!!!!

I am so glad you are here.. The FMS group is a great group , I can't get there too much though. Can't keep up here!

I really think you sound like you could possibly or most likely have Lyme..

Where are you located (will check your bio)

Lyme is a clinical diagnosis,and whether you were tested or not, it probably was inaccurate.

Are you on steroids? Just checking- not good with Lymies in most cases at ALL..

Need to get you an LLMD or if you want a naturopath I will hopefully have some on my list for your area

Glad to have you... You need a doctor who will listen and treat you properly.

Post edited by: Canuck, at: 04/04/2009 10:52

Thanks for you opinion Christina. Thank you for the warm welcome too. I am not on steroids and I have not been tested for it. It sounds like being tested for it is kind of a waste because of all the false negatives that come up. You know how doctors are. If they don't see proof in the face then it must not be. I would love to find a dr that could really help me. I am in southern California.

L

I hear you. I know how doctors are if you post a separate thread about 'LLMD in California / southern' that may get some Cali members to pipe in and at least give you some opinions on the docs I sent you . I know those comments on the list help so I leave them in

There are a few/handful of trusted labs for Lyme Western Blot testing..

Igenex in California is the most popular / most widely used as far as I can tell.

here is a breakdown of the bands/what they mean (you don't need this yet)

http://www.mdjunction.com/forums/lyme-disease-support- forums/general-support/61532-breakdown-of-igenix-test-bands

here is the IGENEX pricing. I thought the basic Lyme panel (that's what I would start with) was around $200- may have gone up just a bit but they have a website..

http://www.mdjunction.com/forums/lyme-disease-support- forums/medicine-treatments/361411-igenex-lab-prices

You can email them

customerservice@igenex.com and tell them you want a test kit sent to your house, free - just send address

If you WANT to try to get a Western Blot done (you cannot say 'Lyme test' as then you will get stuck with the first step ELISA which is crappy) then you COULD goto a walk in clinic, explain the rash/etc, ask for the Lyme panel # 188 and #189. Sometimes that's how you get around it

Just depends on how long your wait will be for a Lyme doc

If you CAN get a doctor to sign the order (that should NOT be a problem, tell don't ask) then I would order the test kit and get your blood drawn.

We can explain more as we go along here...

You can wait until you get seen, there's no rush on testing. That's entirely up to you

Post edited by: Canuck, at: 04/04/2009 11:59

Exactly what Canuck said!

I think you should definitely be evaluated and have THE most reliable test you can done the first time.

Nice to meet you!

LOVE THE FIBRO 'MOTTO' below your butterfly... So appropriate