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fibro, MS, chronic fatigue, or lyme?



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02/11/2008 08:02
jaime1978
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Yes, is the answer, but viral issues could also be to blame. Since Lyme and viral co-infections go together in many cases like cookies and milk, the viral issue cannot be ignored.

This thread is on the Lyme possibility of these conditions, so please see our viral thread for more information regarding these conditions: http://www.truthaboutlymedisease.com/forum/viewtopic.php? p=4139#4139

We must agree there is a reason for your symptoms. How can someone test normal on every blood test and nothing can "prove" the cause of these debilitating conditions? If you have been through every test possible and don't have a definitive diagnosis or don't believe in your gut your diagnosis, whether it be Fibro, CFS, MS, ALS and any other multi symptom/system disorder - Get tested for Lyme disease and the co-infections through Igenex promptly. But most importantly don't let any Md talk you out of it, you know your body! 99.9% of the time Md's won't even consider LD as a cause of your chronic condition. You must see a Lyme literate Md to be correctly diagnosed or to rule out Lyme.

One website lists the following reasons for Fibro, most of which are symptoms, not causes:

Overexertion

Stress

Lack of exercise

Anxiety

Depression

Lack of sleep or sleep disturbances

Trauma

Extremes of temperature and/ or humidity

Infectious illness

Interesting, infectious illness! Viral? Bacterial? Both?

For years Md's have thought that Fibro, CFS and even MS, were all caused by a virus or a bacteria that eluded them all. It still does elude them, why I don't know, but look no further, YOU have found the answer here.

If you compare symptoms lists of these "diseases" with a Lyme Disease symptoms list, they are nearly identical.

There was an unofficial study done of 50 Fibro patients, they tested through Igenex and all 50 tested positive for LD.

Dr. Schaller put it best: In the last forty years have you been camping, in the woods, walked in parks, have a home near deer {forest, field, suburbs, ticks are everywhere} and brush, engaged in gardening or do you have seven of the symptoms listed on page 9-10 in this free article: Advanced Topics in Lyme Disease - http://tinyurl.com/38alob

If you answer "yes," perhaps you should get some testing done at IgeneX before you waste more time and money

See lyme symptoms lists:

http://www.truthaboutlymedisease.com/forum/viewtopic.php? t=935

Fibro & CFS Links of interest:

http://www.immed.org/illness/fatigue_illness_research.html

http://www.fibroandfatigue.com/lymedisease.php? utm_source=adwords&utm_medium=ppc&utm_sponsored=lyme_disease&utm_campaign=lyme

http://www.fibromyalgiahope.com/Fibro_Hope_Messenger- fibrohopemessenger24.html

http://www.immunesupport.com/library/showarticle.cfm/ID/ 8398

http://www.personalconsult.com/pubindex.html#fibromyalgia

MS links of interest:

http://www.ncbi.nlm.nih.gov/pubmed/15617845?dopt=Abstract

http://www.personalconsult.com/articles/msorlyme.html (scroll down past intro)

http://www.lymeinfo.net/multiplesclerosis.html

http://www.personalconsult.com/articles/lymemsetiology.html (scroll down past intro)

MS misdiagnosis happens more often than I'd like to think. The similarities in MS and LD are remarkably the same, here is one of many stories: http://tinyurl.com/39ltql

Bb Ms Mino treatment: http://www.ncbi.nlm.nih.gov/pubmed/15617845?ordinalpos=11&itool=EntrezSystem2.PEntrez.Pubmed.Pubmed_ResultsPanel.Pubmed_RVDocSum

(taken from www.truthaboutlymedisease.com) a great site full of information

Please do not take anything I say as medical advice. I am not a doctor.

~lyme disease support group leader~
please pm me with any special concerns
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08/19/2008 12:56
ConnieD
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Yes, good info, thanks Jaime

My own experience is that FM and CFIDS were caused by Lyme. I had both. Well, I tested positive for Lyme, got treated for Lyme. Now, my Lyme is in remission, eradicated, whatever you want to call it and no more tender points!!! No more FM and no more CFIDS. Hmmmm......yes, a bacterial and/or viral infection. DEFINITELY.

Please do not take anything I say as medical advice. I am not a doctor.

Open your mind to the possibilities available to you.

An attitude of gratitude is good 'medicine,' too.

~Lyme Disease Support Group Leader~
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08/19/2008 18:15
synergyman
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I agree with both Connie and Jamie. Both my husband and I have late stage nuerologic lyme with co-infections. One of my medical issues has been viral and I've been on antiviral medicine in addition to antibiotics and numerous other supplements since April 07....the viral portion of my symptoms seems to be completely eradicated. It is amazing how Lyme imitates so many other conditions.

Good luck with a proper diagnosis and proper treatment

Suzie



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08/20/2008 10:22
PegB
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Yes, I too, was diagnosed with fibromyalgia 4 years ago after a full year of every test you can think of.

It wasn't until I decided to get as healthy as possible and was eating all organic and shopping at my local health food store that I got into a conversation with the owner who suggested I be properly (re-tested--they used a crappy ELISA to start) tested by Igenex. Lo and behold, a little over a month ago I discovered I was POSITIVE.

My sister was diagnosed with MS 20 years ago. I have gently mentioned her getting tested. I can't see her over the phone, but I'm pretty sure I sensed a huge "eye roll." ("Oh brother, now she thinks everything is Lyme.")

I suggested another friend who has been sick for a couple of years be properly tested. I would bet a month's salary she's positive. I do think this disease is rampant.

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08/20/2008 12:03
jaime1978
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haha, Peg I had to laugh, my husband does that eye roll every time I open my mouth to someone who is sick! "you think everything is lyme" no, I don't, just when it fits, and I heppen to run into a lot of people who fit. it doesn't mean they shouldn't rule out other things, but don't be so closed minded that you have a life of hell.

I hit a few people up on the fibro board here, and luckily they were open minded enough to get tested. Just from talking to them I just KNEW, and yup, they were positive!

Please do not take anything I say as medical advice. I am not a doctor.

~lyme disease support group leader~
please pm me with any special concerns
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08/20/2008 20:09
Sharyn56
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I have met quite a few people that i am sure they have lyme.They have all the symptoms,but since test were neg. or never done,they are being treated for something else.

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