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Lyme Disease ForumsGeneral & SupportTrying to host a UOS screening....any advice?
03/26/2009 06:52 AM
cmal
cmal
 
Posts: 372
Member

I have a phone appt with the principal of my kids elementary school to try to set up a UOS screening there. I have already emailed him, the school nurse, and a teacher that is a lymie and they are all interested. I included the UOS website in my email so they have an idea of what we are dealing with. Dharma79 was right on about making sure it is not seen by children. Does anyone have any advice as to how I should pitch this to the principal? I thought the website would sell it itself and I'm not sure what else I could say to persuade him. Thanks!

Christi

Christi

The only Zen you find on the tops of mountains is the Zen you bring there.
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03/26/2009 07:24 AM  Top
dharma79
dharma79
 
Posts: 1180
VIP Member

Christi-

Another thing I think we need to do when hosting a screening is to contact the UOS folks and make sure we have their blessing to use their film for our own purpose...you know...giving appropriate recognition and such.

In fact, I think they have a section on their web page that talks about if you want to host a screening...

As far as pitching it to your principal...

I would simply stress that our educators and parents are on the frontlines of this battle whether they care to be or not.

1.)They are often the first ones who see major changes in an affected child's work or personality.

2.)They also should be aware of Lyme prevention techniques, however limited it maybe. Are they, as a school system, doing enough to keep school property safe for children to play outdoor sports and recess, gym class, etc.?

3.)This is the best way to reach out to the parents in their communities. They are also part of the frontline and need to be aware of Lyme disease so that they may figure it out sooner rather than later if their child becomes infected to give their children a much better prognosis.

Lyme is the fastest growing vector borne disease and has reached epidemic levels. This is a fact that needs to be revealed to families all across the nation.

Lyme is far easier to treat when caught right away and can lead to major and even permanent damage and in more rare cases, even death if not caught early.

Finally, It needs to be exposed that there is political contraversy over Lyme disease that is getting in the way of finding at the very least a better test for early diagnosis and at best a cure.

The general population needs to be made aware that their patient rights to adequate treatment and insurance coverage are being denied and that effects everyone...sick or not because it sets a precedent that a particular group, in this case the IDSA, can monopolize all say and research money for a particular disease.

We all know why monopolies are bad but in science...they have NO PLACE at all. And that's why legislators need to step in and protect their constituents.

Please let me know how your phone call goes...Cheerful

Hope this helps you make your case!

Post edited by: dharma79, at: 03/26/2009 07:27

I am in no way a medical professional...
Just a patient for 15 years...

Here to share, learn and support those that seek to do the same!

United we Stand...Divided we Fall!

03/26/2009 07:26 AM  Top
debra28
debra28
 
Posts: 201
Member

I went to a screening at a public library -- it was hosted by the Empire state Lyme association -- I believe her name was Eva. She is a great source, she organizes a lot of events and shows the film around. Here is their website -- I know she will give you good advice.

http://www.empirestatelymediseaseassociation.org/

good luck.


03/26/2009 07:48 AM  Top
cmal
cmal
 
Posts: 372
Member

Thank you both so much. Just what I needed. Dharma I got the idea from the UOS website, when I went to fill out the host a screening section it asked for the venue so I am just trying to nail that down. I will absolutely go through them, i think they have promotional flyers and other useful things to help get people there and the word out. Your advice is perfect, exactly the words I was looking for! And Debra I will check that site out as well, thanks so much for the valuable input guys! I'll let you know how it goes!
Christi

The only Zen you find on the tops of mountains is the Zen you bring there.

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