Lyme Disease Support Group

http://ldnr.org/

I actually registered the other day. Hope it does some good and is put to good use. I hope my name doesn't show up on a "Big Brother" list now.

I hope you have a great day!

Bethy

I'm glad that you have made the effort to collect data of Lyme Patients so people will know just how many are infected. You will probably have a better grasp of the numbers than CDC et al. Because I don't think that all Lyme cases are reported. Especially as hard as it is to get a correct dx to begin with.

Thank you for your diligence and please again, I did not mean to offend.

Have a wonderful evening.

v/r,

Beth

It would be awesome if every Lymie registered so we can see the true scope of our problem.

I wasn't sure how to register exactly...

I was infected in 1994, I was diagnosed with Lyme in 1999.

Then I was rediagnosed with lyme and babesia 2008-2009.

The database you are going to get is to show it to whom?

You say:

"It is my belief that the forthcoming data will reveal data showing that most people with chronic Lyme disease are receiving care from LLMD's and the like, and not by MD's affiliated with the IDSA.

I ask that you help me spread the word on this site so that we can get the data that we all know is in line with what I am saying."

And then what? After CDC and IDSA get to know exactly how many of us don't go to regular MD's and who are those Docs; what can you, and or us accomplish?

Do you think you can make a change in this organizations without being scrutinized your self as you stated in your blog?

"The reason is simple. I didn't want to fall under the same scrutiny that the LLMD's and the like are already under..."??

Really wish you luck!