Lyme Disease Support Group

Most days, I can make it through. I just keep doing the next thing, do my best to take care of myself and my kid, and keep plodding forward.

Today, I'm having a hard time. So physically fatigued, every movement feels like moving through quicksand. I know you all know what I mean.

Every little thing takes a huge effort of will - mind over matter is the most epic understatement EVER.

Add to that the increased aches and pains throughout my body today, UGH! At least I'm not having bad nerve pain like some days.

At least I am not hugely short of breath and coughing a lot like some days. At least the brain fog is not as bad as it can be.

I'm at work, and my coordination is definitely off - taking a long time to type this. Forgive the typos.

I so want to be home in bed, resting. The fatigue has nothing to do with sleep, though, it's all physical exhaustion and heaviness.

But there's no way to pay for health insurance, med bills, home, utilities, food, etc. unless I work. So I am here.

And I will continue to do my job o the best of my ability, shuffl through the halls when needed, and somehow survive this.

Someday it will be better. I do have more better days now, after a year of treatment (1 year on the 27th). I am very tired of being sick, and the debt from medical costs is mounting.

I pray and hope that more improvement will be seen in the next 6-8 months. I hope the increased fatigue and pain is due to biofilms bing dissolved by new protocol.

I do trust my LLMD. I do believe I am getting well. I just feel so exhausted today. It is just one day, though. And I am working on saving the rest of my life (and my son's) from Lyme and Babesia.

Thanks for letting me vent. I just had to say all of that, or I thought I might go mad.

Hugs to you. I remember what is was like when the clock would barely move time along, between time of bite and when the flu like pain hit.

I had no choice but to stoping working full time, self employed but physically , even a yr later cannot manage even a few hours a week between both business.

Like you, the bills are adding up, the children need my energy and life must go on.

Your quicksand analogy is sadly, a perfect fit.

Is there anyway that you could take a medical leave of absence? So you can rest some?

I did not have that option and we are now broke, due to my lack of income since March of last year.

The little I bring in pays for supplements and copays.

My husband qualifies for unpaid leave for me, which is not an option since even with his income, we are penny to penny.

It will get better fot you and your son.

Please Stay in treatment bc I didnt and relapsed this May.

I think its advised to stay in treatment even after symptom free for 3+ months.

Glad you have a good LLMD!

Hugging you over the internet!

Belle

Belle, yeah, you totally get it. So sorry about your situation - being self-employed is so difficult when a crisis hits. There's just no safety net for most who are self-employed.

As for medical leave of absence, that really isn't feasible. I'm the only source of income, single parent. Only driver. My bf helps out around the house and yard, but he is unemployable, doesn't qualify for disability (though he probably should), and doesn't drive.

I am definitely staying in treatment. So sorry you had to stop. After 36 years with this disease, the last thing I want to do is add any more! Thanks for hugs and encouragement.