Lyme Disease Support Group

This past summer I enjoyed a wonderful time off all medications of any type. I felt healthy and wonderful. This past october, my brain started caving in on itself. My sanity slipped away as I became anxious, depressed and terrified. I ended up hospitalized and then a few weeks later hospitalized again. Diagnosed with bipolar II disorder and all pumped up on mood stabilizers I still didn't feel very well.

Now I'm feeling stable for the first time since october and I'm back on antibiotics but not with any particular agenda (LLMD put me back on abx).

I'm on so many meds with so many side effects... and to know that none of these cure but just CONTROL... I can't stand it but I KNOW that I need them to stay stable and comfortable and sometimes even happy.

I knew Lyme was going to get me in the end.... that it would take my sanity... but I didn't think it would happen so early in my life. I do believe I have a genetic predisposition and I've had psych issues big time in the last four years (this one being the show stopper but now with a correct diagnosis).

Anyone else get taken down my Lyme this way?

Jen

Gosh, I am sorry to hear that, but it's all too common a story. I believe in the genetic predisposition and always say it was bound to come out when triggered by Lyme (the chicken or the egg theory, no matter which came first, you have to treat the problem and the Lyme if the Lyme triggered it)- I am right there with you, have refused all the 'crap' on the psych med part because I knew they were all 'wrong' when I got so sick.. Now on meds, am quite nutty and unpredictable but still am trying to stay off. I think I may have to consider it one day, who knows, but for now, am 'dealing' with being too sick to think about having to 'function' well enough to need something.. Which- is quite possible.. You aren't alone for sure, don't say Lyme would get you in the end.. It's not the end, I know we all think and say that alot, don't blame you. I think it makes us better people, sometimes at the price of sanity and health, we can only hope it's temporary or more importantly manageable..Let us know if you need anything.. This is a great place for support and understanding

Don't let Lyme get you in the end...it's never what we think will get us that gets us...Life is unpredictable. Lyme is just a detour. Get back on the highway and live your dreams in spite of all this bull shit Lyme.

i agree lyme can be hard to deal with but it will get better, it did for me im almost there with so few symptoms and i know everyone else will be there too just stay positive

Jenuhferr...

Sweetie - have I been there! There are multiple times throughout my life where this disease has broken me and brought me down to being a near shell of a person. After loosing my high paying job when I was 8 months preggo with my twins, I slipped into a massive state of depression. had someone reported me to social services - i probably would have had all 3 taken away. My home was so disgusting, over run with mice and ants - OMD it was awful.

Dont know how my hubby dealt with it at times - well it was really awful...and it was a fight to get out of it. We moved from NJ to CO 3 years ago yesterday, and last year was the year where i really got myself completely out of the hole that Lyme took me down into. And it was rough. It is really horrible what this disease can do to you mentally...

As a kid I was pretty messed up too...

I think the key is understanding it. When you have a good grasp on how this disease can work, you can help yourself out. Its not easy at all - and I can say that through this new treatment, there have been days and times where i nearly lost control.

No matter how defeated you feel, you need to make a resolution - resolve yourself to the fact that you will not be taken over by this. No matter how hard it gets...have your bad moments, but essentially, you are in control.

And remember, you are not alone in this...there are people here who get it. I did it alone with a hubby who badgered me and didnt understand why I wasnt me. And I got through - it takes time. But you dont have to go through it alone...we are here.

Hang in there - and if you need anything at all - always feel free to PM me...

Christine