Lyme Disease Support Group

This was posted by a member of the Yahoo Lyme support group:

People!! Today there are ONLY 204 entries on the site, barely better than the 150 people who wrote in to a recent question about toilet paper!! We have to do better than that!

Forwarded from Open Eye producer Kris Newby:

"Oprah is deciding whether to do a show on Lyme THIS WEEK, and we need to fill her comment board ASAP. According to the show producer, emails directly to Oprah will NOT be read; you need to post here:

http://tinyurl.com/bqo8vo

[If you have trouble with this link, go to

http://www.oprah.com/community/thread/101903?start=0&tstart=0

Or turn off spy site blocking. If this link doesn't work, try copy & paste rather than click]

Having Oprah feature Lyme disease will help the new bill in Congress and it will pressure the new IDSA panel to do the right thing.

Can we please ask you to post (again) asking Dr. Oz and Oprah to do a show on UNDER OUR SKIN, the documentary that exposes the truth about Lyme disease?? (There are only 204 posts up there now. Note that there is a 200 word limit. The important thing is that you post a few words about your personal story, not how long it is.

Here is how:

Here's the link where you can post a message if you're already a member of Oprah's community.

http://tinyurl.com/bqo8vo

If you are not a member of the Oprah community, you will need to sign up first:

click on this link to sign up:

https://www.oprah.com/mbr/mbr_new_profile.jsp

Once you have filled out the appropriate info -- easy stuff, name, username, email address, birth year --then you will get an email to your email address: You'll get an email from Oprah's web people sending

you an activation link that you will need to click on in order to get started. Then you can click on the above link and post your comments.

I know this is a busy time for Lyme patient advocacy, but the Oprah show's national exposure could save thousands of lives and buoy up all of our individual efforts.

Thank you again for your help on this matter.

Kris

Under Our Skin"

PLEASE take the time to write...just a few minutes of your time can make a huge difference for the Lyme community!!! As you know, we need all the help we can get! Thanks! --Artmutt

http://www.oprah.com/community/thread/101903?start=0&tstart=0

http://tinyurl.com/bqo8vo

guys read Betty's note as to where the links go, just adding them.. I really hope everyone does this. I have posted about 8 times myself so -that number is disgustingly low. We are all spread so thin, but if anything were the most important, she has the most influence at this point, sad, but true

Betty I am going to post this on the Lyme groups on facebook and myspace unless someone else here uses myspace - not even sure if I have an active account anymore--volunteers for that one? Please?

Post edited by: Canuck, at: 02/28/2009 21:18

Post edited by: Canuck, at: 02/28/2009 21:26

this was posted on my lymenet post so i'm posting it here as well, but I DON'T BELIEVE WHAT WAS WRITTEN BY OPRAH'S HARPO BOARD MEMBER!!

**********************

Betty, read message 62:

Click to view lakes592's profile

lakes592

Level 1

#62.

Re: Oprah, Dr. Oz and Lyme disease film UNDER OUR SKIN

Feb 25, 2009 7:19 PM | In response to: onthemarcm

Hi, unfortunately Ms. Winfrey's schedule doesn't allow time to read or respond to the message boards.

If you wish to contact Oprah or her staff, or send in a show idea please click EMAIL US from the Oprah.com drop down menu.

Additionally, members can submit show ideas by clicking the 'Be on the Show' link from the Oprah.com homepage.

Thanks and have a great day!

-HarpoBear, Oprah.com Community Producer

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Hi all,

Just saw this looks like we may be barking up the wrong tree with just posting. Looks like we need to do what is mentioned above to make a show request. I will try this route?

Ann

I feel we are being ignored but we have to just keep trying, you never know, she may surprise us!

last post here tonight...

i feel since KRIS KRAFT, UNDER OUR EYES staff member, PERSONALLY TALKed to oprah's staff member ... that staff person knows the MOST RECENT news!

kris kraft hasn't posted any updates since her initial post, and she would have.

also under our skin would have sent out a special newsletter informing us all too since many lyme boards it was posted on!

so keep posting!!

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good night!

I'm sorry, I got carried away by the urgency, wanting people to write Oprah this week, but I should have done a more thorough job check of the links, as well as double- and triple-checking to see if anyone had already posted the information.

So, I goofed big-time! I'm really sorry, again. I will definitely be more careful from now on. Thank you both for cleaning up my "mess." And thanks, Bettyg, for posting the information earlier, in a more user-friendly way. I admit, I can be a spaz when I am passionate about something, as you can see here.

Take care you guys, I wish you both pain-free days.