Lyme Disease Support Group

I have IBS...as stated before...and have had major gut issues for nearly the last 10 years...

Lyme basically mimicked Celiac disease for me...at least symptomatically...

That profuse sweating sounds as if it could be Babesia...which is a common co-infection...malaria like...

Have you tried going Gluten Free??? That can often be a trigger for the pain and cramping...even if you were tested for gluten allergies...and tested negative...doesn't mean that there is not a level of intolerance...

Dairy can be an issue too...as can certain veggies and other foods...like processed foods...foods with refined sugars...

Lyme or not...sounds like you need to make some dietary changes...challenging...but not impossible...

I would strongly suggest making a request here for an LLMD referral...and if you want to go alternative...you can PM me too (zip code works)...I am compiling a list of alternative practitioners...so I may have some to add to what the ladies here have...

Hang in there

Christine

Though I'd had Lyme for decades with progressive symptoms, it was a massive health "crash" with big time digestive issues, chronic cough, difficulty swallowing, major fatigue, and a host of other symptoms that sent me on a 19 month crusade to find a diagnosis.

FINALLY I found a doc who figured out it was likely Lyme. So many of my symptoms resolve and flare now in cycles. But it's better than having all of them all the time. And they are progressively lessening.

Bottom line: yes Lyme can have a big effect on the GI tract - and it does so differently for different people. Genetics play a large part in how the body reacts to Lyme, which (in part) accounts for the variation of symptoms.

Another thing to check into is co-infections. With that much sweating, you might have babesia also.

With a CD57 that low, yes it's likely you have Lyme. Lucky you to have an ND who was smart enough to run the test!

If you would like info on LLMDs in your area, please go to the Doctor (LLMD) Request forum, follow the instructions, and we'll send you information. Best of luck!

you Can test your home though, if you get to that point

you can start by reading Dr. Ritchie Schoemaker's information on his websites

when you request a LLMD you can ask if any in your area are trained in biotoxin illness/ mold

Post edited by: mysticthecat, at: 07/06/2012 02:15 AM

You guys are amazing, I appreciate all the support.

I have been on a gluten, dairy and sugar free diet for two months already.

It hasn't resolved my issues by any means, but I'm sure Id be ever worse than I am now if I were on this diet.

It can take A LONG time to heal on that diet...The first time I went 100% gluten free...it took 3 YEARS for my guts to heal...and I stupidly started eating it again..but in moderation...and I did tolerate it for a while (another good indicator that it was not Celiac)

Now...I don't care to even go there...but I do have the occasional bite that MAY have gluten in it...so I have special enzymes specific for dealing with Gluten intolerance...But I really do try to stay away from it...it along with the Lyme led me to IBS...and there is NO food I could ever want that could make me want that pain...

Hang in there...

Christine