Lyme Disease Support Group

sorry, majority of us can NOT read long, continuous block like you posted; we lost our comprehension skills decades ago.

please EDIT your entire post using my posting guidelines and hitting ENTER TWICE for EACH short paragraph.

thanks for helping us to help you

also post for a dr. in LLMD REQUEST FORUM BELOW LINK; thanks.

bettyg,

**********Welcome to MD JUNCTION! I'm so glad you found us! You’ve come to the right place for education and support!

Private messages DELETED in 30 days!

ARCHIVE, upper right!

My WELCOME LETTER is posted at the top of SUPPORT FORUM in sticky pin full of good info and HYPERLINKS ready to be read.

http://www.mdjunction.com/forums/lyme-disease-support- forums/general-support/2356916-bettygs-welcome-letter-wgood- beginner-links-

The most important things are at the top; MUST READ and print off as mentioned there already to start your lyme/co-infection journey with us all.

The 1st things to do are:

• JOIN LYME BOARD;

• Post in LLMD REQUEST FORUM for a LYME LITERATE md; see my welcome letter and the INSTRUCTIONS there if you are SPECIALLY FROM CALIF. Where it’s broken down into 8 NAMED AREAS.

• You’ll need to give me my calif. NAMED area where you live in the areas shown there in SUBJECT LINE plus if it’s for ADULT or a child; we need age of CHILD; some llmds have AGE restrictions.

• OTHER STATES will show the SPECIFIC NAME OF THEIR STATE and Qclosest, largest city to them in SUBJECT line plus adult or child; UNDER 21; we need their age!.

http://www.mdjunction.com/forums/lyme-disease-support- forums/llmd-info/Itemid=217/func=post/do=reply

• Also, we’ll need the following info in your request post:

in your llmd request, please EDIT and add more info ok.

Are you UNDER AGE 21;; if yes, I need your age shown as some of our llmds have AGE RESTRICTIONS; thanks!

how long you've been sick

if you've tested for lyme/co-infections;

which labs doing work for which specific test, etc.

did you have western blot igm/igg done by igenex?

if yes, what were the POSITIVE & INDETERMINDED numbers; NOT negatives.

thanks for understanding; just EDIT your post. you can find all by going to left MY DISCUSSIONS, click on it.

after you add more, a LEADER will send you names ok.

I RECENTLY RETIRED AFTER 6 LONG YRS. OF DOING THIS!

Betty’s suggested posting guidelines:

NO ALL CAPS POSTS; they are illegible to me/other neuro folks!

Many of members have neuro lyme, and it is hard to read long solid block text and be able to comprehend; example, me, 42 yrs. neuro chronic lyme, so we are UNABLE to comprehend and read. Thank you for helping us help YOU 

Please post in short paragraphs like you see below or look at a few other posts, but we neuro folks need them short.

1-2 sentences MAX per paragraph and hit ENTER TWICE to double space between each paragraph. We’ve lost our comprehension skills to read solid block text.

We neuros lose our train of thought if the sentence is broken up in the middle; so please keep an ENTIRE sentence together as ONE. hugs

For easier reading, please edit your post. You can break up your longer paragraphs into smaller paragraphs. Please hit

ENTER key twice after each paragraph.

Go to left hand corner; click edit send. Then go to bottom and click SUBSCRIBE TO THIS DISCUSSION.

Thank you for posting in a manner that makes it easier for all to read and help others.

Bettyg, Iowa activist FOREVER

**************************

YES, be prepared to PAY UPFRONT!

i've heard of some requiring down payments; i wasn't aware of that one at all!!

very FEW accept insurance; why?

insurance co. allow 7 min. per patient; we can hardly say hello in that time!

you also have to follow INSURANCE'S GUIDELINES ON TREATMENTS, IDSA/infectious disease drs. socieity guidelines... BAD NEWS FOR US!

by NOT accepting insurance, they can practice ILADS/intl. lyme and associated disease lyme guidelines ... treating you longer than 4 wks. of antibiotics, herbals, and alternative therapeis.

they allow 30-60 min. appt; longer 1st time; you pay accordinatelly for those appts.

ACCEPTING INSURANCE; they get very little $$ to pay the staff/overhead of building/utilities, etc.

many call patients day before to make sure they will be there; MANY DO NOT SHOW UP NOR HAVE THE DECENCY TO CALL SAYING THEY ARE NOT COMING!!

they could get those close by to come in but NOT being called; they are OUT THE MONEY and having one hell of a time meeting the bills.

our LLMDS are NOT RICH by any means!!

i hope this answers your questions so you understand what THEY are going thru too.

hugs/prayers,

bettyg, Iowa activist forever

RETIRED llmd coordinator for 6 yrs working directly with these drs/former group leader

*********

just western blot- n it came back with 3 specific or significant bands.., needed 2 or more so I was positive! Finally an answer. Now I am ready to kick this thing out!!' but afraid bc iv had it for awhile!

Started on doxy 100mg twice day for 21 days.

First 4 days symptoms seemed better, constant headache finally broke a little, head swimming and dizziness lifted a little. Now it's back!

The heart palps I hate the worst n scare me- afraid of permanent damage to my heart or that I

I'm gonna die! My poor filmily Is at wits end and my poor innocent 2 y.o is suffering.

Or even a doctor that is knowledgable in lyme but not necessarily an llmd. I want to get proper treatment and get over this. All I want is to feel like me again n go to work and raise my daughter. Nothing crazy!

Just lead a normal life!! Any advice I can get will be so so appreciated!!' love, Luvlover!!

**************

lover, put CITY/STATE you live in at top so leaders will know what you need.

3 wks. is NOT ENOUGH ANTIBIOTICS! if you were just bitten, you ned 3 months solid of abx; 2 mo. showing NO SYMPTOMS BEFORE STOPPING THEM.

if you've been sick quite awile, will be a much longer period of time to treat you.

please go to my welcome letter link in signature line. print off detiled article on headaches by dr. corson; you will learn a lot ok.

hugs/prayers; we'l help you and your little girl get her mommy's health back.

bettyg, iowa actiivst