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 "I have gastroparesis" (ColtsGirl)

MDJunction to me

Macv"For me, MDjunction has been a place where I can share my experiences
living with the very rare bone disease called Ollier's ( Enchondromatosis ) with the parents of children recently diagnosed. I can help them not to run
into the pitfalls my parents did when I was young, give them a bit of a view
from their child's perspective and simply be there to offer support and
hope to people who are scared and just had their lives upended. I also belong to a chronic pain group and it's been a Godsend to be able to actually
talk with others who understand what I'm dealing with. Besides them helping me through my tough times, I can be there to help them as well. Here too, I can use my years of experience to help others avoid pitfalls and it makes me feel good, gives my life more purpose. MDjunction brings people
together when their suffering, at their darkest and feeling alone in this world and allows some light to be brought back into their lives. HOPE, that's what
MDjunction means to me!
Linda aka Macv" (Macv)

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Lyme Disease Forums › General & Support › not getting better and feeling hopeless
06/29/2012 04:07 PM
Lola11
 
Posts: 57
Member
Ive been on IV antibiotics for 6 months. I'm taking rociphen, Alinia, ds bactrim and zithromax . I was very slowly starting to get better but this last week I've been feeling terrible again.

I feel like I will never function normally again and I don't know anyone else who's had lyme. I've been taking detox baths also .

Has anyone else been through this and gotten better? Is there something else I should be doing? Any help is appreciated...Lola
Reply

06/29/2012 04:19 PM  Top
Bettyg
 
Posts: 26493
VIP Member
I'm an Advocate
lola, i've not been thru ivs so can't comment.

BUT how about going to the top of SUPPORT and read ALL THE SUCCESS STORIES; see who shows they were in ivs and their comments.

you need UPPERS; they are there waiting to speak to you ok.

hugs/prayers,

bettyg Cool

BettyG, IOWA ACTIVIST
RETIRED llmd coordinator of 6 yrs; group leader

NOTE: I DO "NOT" USE CHAT thanks!
**************************************

NO INFORMATION SHOULD BE CONSIDERED MEDICAL ADVICE.
please see my WELCOME LETTER/BEGINNER'S LINKS with important links/info galore :)

http://www.mdjunction.com/forums/lyme-disease-support-forums/general-support/2356916-bettygs-welcome-letter-wgood-beginner-links-

Any information provided should not be used to take the place of advice from your personal physician or other professional.

Information on those sites is the opinion of those who publish the sites and is NOT necessarily that of BettyG.

43 yrs. chronic lyme; 35 yrs. misdiagnosed by 40-50 drs. unacceptable; see my profile for more.

06/29/2012 04:30 PM  Top
sfish53
Posts: 93
Member
Yeh I'm getting better 6 month oral ABX and herbal remmedies I think

that's how it starts (getting better) I have felt really good a few days

only to slip back into misery but for along time I didn't have any good

days at all .Hang in there I believe the MDs are trying to help

06/29/2012 05:38 PM  Top
Lola11
 
Posts: 57
Member
Thanks so much for your support...it helps! Lola

06/29/2012 05:59 PM  Top
Seschelll
 
Posts: 67
Member
What diet are you on? Do you have lots of toxins in your environment? When to second lyme dr and she started there - feel much better. First lyme dr loaded my body wirh to much---- I'm not a dr this has been my experience drom being so very ill for 2 yrs---- diet and toxins really Make it worse and I think t mAny supplements---- my experience-- from being in bed for weeks to now getting out couple times a week--- God Bless and Big HugS. SeSchell
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