MDJunction - People Helping People
 

Why wear a ribbon?

  "I believe I have Lyme and being in rural Nebraska find it frustrating to find a ..." (jojones)

MDJunction to me

tomboykimi"What MD Junction means to me is a place where i can feel like im not alone. As someone with something as rare as hydrocephalus, it feels like im the only one in the world with it. When i came to MD, its like everyone has it. It doesnt feel like im alone. And that people need to hold up a sign to say what i have, because people know. And they understand. I can get questions answered from people who have been through it rather than from doctors or people who only can tell you from a physical standpoint. THat is what MD junction means to me." (tomboykimi)

more testimonials
Lyme Disease Support Group
A community of patients, family members and friends dedicated to dealing with lyme disease, together.
Join This Group
Group Home   Forums   Articles   Members (7958)   Diaries   Leaders   Guidelines
Lyme Group RSS Feed
Lyme Disease ForumsGeneral & Supportplease pm me if u know about positive HLA gene
06/29/2012 12:15 PM
wanthealth12
wanthealth12Posts: 309
Member

I just found out I have this gene and the dr says nothing to worry about?

I dont understand

Reply

06/29/2012 12:56 PM  Top
mysticthecat
mysticthecat  
Posts: 1760
Group Leader

I'm just starting to research this too. My DS has the worst of the worse gene combination for detoxing.

Our LLMD immediately prescribed cholestiramine (CSM) to bind and remove the toxins that DS can't excrete. CSM is the best. It removes the different types of biotoxins.

There are other binders you can use, natural ones like activated charcoal but they don't bind all the toxins. They are much less effective.

I'd suggest starting to read Ritchie Schoemaker's work:

http://www.survivingmold.com/treatment

We are fortunate that our LLMD is also literate on Schoemaker's research and treatment. But you may need to start educating your LLMD, or go to a new one.

There is a diet you should follow. Look for my post from Wednesday where Christine found some links for me about the diet.

You also have to minimize your exposure to environmental biotoxins: Don't eat reef fish, don't swim in certain lakes with certain algae, don't live/work in moldy buildings.

Post edited by: mysticthecat, at: 06/29/2012 12:57 PM

I am not in the medical field and anything I say is simply my opinion and should not replace the advice of your doctor.

06/29/2012 01:14 PM  Top
mj278
mj278  
Posts: 203
Member

Which genotype do you have? Did he give you a copy of your lab work or tell you numbers?
Feels like everyday I'm alone. Not because I don't have any friends around me at the time, just because no one understands what I really feel like everyday.

I pretend to be happy so I don't have to explain myself to people who'll never understand.

Previous discussions I participated in:
A-Bart question.
Question on Probiotics
Sugar ever??

06/29/2012 02:00 PM  Top
wanthealth12
wanthealth12Posts: 309
Member

mj I have them

it is 15

6

last one says 1:01

I heard it is suppose to say 15 6 51 he wrote 53 next to it...?????

so pissed, I dont like this feeling Of not having things explained to me clearer without having MORE MONEY for more time in an office...

cost money to just look at him


07/08/2012 10:54 AM  Top
hercules25
 
Posts: 32
New Member

I carry the HLA-DQ2 gene. Are those the genes you are referring to?
Reply

Share this discussion with your friends:
Members who viewed this page also read:

LymeLyme Disease ForumsGeneral & Supportplease pm me if u know about positive HLA gene

Disclaimer: The information provided in MDJunction is not a replacement for medical diagnosis, treatment, or professional medical advice.
In case of EMERGENCY call 911 or 1.800.273.TALK (8255) to the National Suicide Prevention Lifeline. Read more.
Contact Us | Bookmark Us | FAQ | Awareness Ribbons
About Us | Terms & Conditions | Privacy | Spread the Word | MDJ Advocates | Advertise
Copyright (c) 2006-2013 MDJunction.com All Rights Reserved