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lenabubble Posts: 57
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I've been on medical leave from my job since February. If I'm not back by August 1, I'm terminated. I applied tonite for social security disability. Is anyone on disability? Does anyone work? What kinds if jobs do you do? I was always a workaholic, worked 2 jobs and now I'm at no job. I have neuro lyme - any job suggestions? |
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cmany Posts: 6204
Group Leader
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bubbles...  I wish I had some answers for you...I never went that route... But keep pushing....and check around here...there are those who got it...and have GREAT information about getting it... Don't take no for an answer... Christine [b]Group Leader Disclaimer[/b]
First and foremost - I am NOT a doctor, anything I share is based on experience & research. I strongly encourage you to discuss any and all information that I share with a health care provider.
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"I'm not afraid to take a stand
Everybody come take my hand
We'll walk this road together, through the storm
Whatever weather, cold or warm
Just let you know that, you're not alone
Holla if you feel that you've been down the same road...
And I just can't keep living this way
So starting today, I'm breaking out of this cage
I'm standing up, Imma face my demons
I'm manning up, Imma hold my ground
I've had enough, now I'm so fed up
Time to put my life back together right now" Eminem Not Afraid |
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evelinawill Posts: 581
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I currently am unemployed, obviously can't work because how sick I feel lately. I've been lucky to be able to work from home though in the past years, but now I can't even do that. Sorry I am not from US so can't help you much, but I would be curious to hear if anyone is on disability (I also have neurolyme). In Romania disability gives you $200 per month so many people that are moderately ill prefer to work instead of going on disability. But how would you be able to get on disability for neuro-lyme? They don't recognize it as a chronic illness? I hope you find an answer. Alex I probably contracted Lyme Disease and other tick-borne co-infections when I was 4 or 5 when I found two ticks stuck on my right side of the neck.
I went un-diagnosed until adulthood, developed severe symptoms suddenly at 19 and I struggle with them to this day.
Please visit -
Lyme Awareness Worldwide
http://www.lyme.ws/
Got some spare time?
http://www.alldocumentaries.org/
May your day be filled with peace! |
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Azuleja Posts: 28
New Member
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Actually i dont have a job, because of Lyme. I had a full job before, then gave classes by hours, then worked from home, until i couldnt more. Like Evelinawill, i am not from United States, and here this illnes is not recognized, so no chance to even think in disability. Its hard to do and realize plans with the ups and downs of this disease. |
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sfish53 Posts: 93
Member
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I am on CA.SDI. it last for 1 year ,applied for SS DI haven't heard anything from them yet.I have been told they don't recognize Lyme as ligit Disease so you and your doctor have to file under Fibramyalga or CFS |
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Bettyg Posts: 26575
VIP Member
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EVERYONE, please go to my signature line and click on my WELCOME LETTER.have way done is expertise from me, bettyg, CONNIE MC, MINOUCAT, and others of our combined wisdom and personal experiences. 30+ pages. YOU CAN WIN 1ST TIME; 1ST STEP if your follow our collective advise!!
wish i would have had this at the beginning vs. 5 yrs. of yell and 2 claims later to be APPROVED FOR SSDI. i reimphasize 1 more time: it's not the diseases, symptoms, or how many you have; it is this! PHYSCIALLY ABLE TO DO THE JOB BY walking, standing, climbing, bending, lifting, crawling, using your cognitive skills, carrying, etc. from 0-2 yrs, 2-4, 4-6, and 6-8 hrs. YOU NEED SUPORTIVE DOCS TO FILL OUT A RFC, RESIDUAL FUNCTION CAPACITY FORM! to the poster did you use my info! we've had many members being approved this last yr,. and just in the last 1-2 wks again!! YOU DIDN'T; get busy and get your drs. to make out the RFC now, etc. good luck to ALL; hugs/prayers, bettyg, iowa activist BettyG, IOWA ACTIVIST
RETIRED llmd coordinator of 6 yrs; group leader
NOTE: I DO "NOT" USE CHAT thanks!
**************************************
NO INFORMATION SHOULD BE CONSIDERED MEDICAL ADVICE.
please see my WELCOME LETTER/BEGINNER'S LINKS with important links/info galore :)
http://www.mdjunction.com/forums/lyme-disease-support-forums/general-support/2356916-bettygs-welcome-letter-wgood-beginner-links-
Any information provided should not be used to take the place of advice from your personal physician or other professional.
Information on those sites is the opinion of those who publish the sites and is NOT necessarily that of BettyG.
43 yrs. chronic lyme; 35 yrs. misdiagnosed by 40-50 drs. unacceptable; see my profile for more. |
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evelinawill Posts: 581
Member
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Thanks Betty. Now I Wish I have lived in the U.S. By the way how much does a pacient receive on monthly basis? Alex I probably contracted Lyme Disease and other tick-borne co-infections when I was 4 or 5 when I found two ticks stuck on my right side of the neck.
I went un-diagnosed until adulthood, developed severe symptoms suddenly at 19 and I struggle with them to this day.
Please visit -
Lyme Awareness Worldwide
http://www.lyme.ws/
Got some spare time?
http://www.alldocumentaries.org/
May your day be filled with peace! |
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loublarney Posts: 61
Member
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Are you on short term disability, have you looked into your states requirements? Or talked to your hr dept, can they legally terminate you? Im currently out on short term disability since January which ends in July, and then I qualify for long term disability, not sure how long that lasts or how it works, but they did also send paperwork about social security disability which I'm definitely going to read Betty's page and get it done too. As far as I understood short term covers your position, but long term covers your occupation...so You may not be able to do certain requirements of your current job, but if you can fulfill the requirements of your occupation with some modification then technically you can still work...... I'm an RN in a Trauma center......there's no way I can work in any way as a nurse right now.....I have my cell phone alarms constantly going off to remind me to take my medicine, or shots or whatever! Good luck to you xxxx |
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bluesky11 Posts: 67
Member
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I was fired due to poor performance from lyme disease making my working life miserable. I am in the US, and receiving unemployment compensation. It will run out soon, and with the way finances are, I will prob. have to get a job.  I don't have neuro lyme, so I can't advise from that angle. However, I am planning on taking a desk job or any kind of job where I don't have to stand or walk all day; nothing physical. Wish I had something more constructive to say/offer. Sending positive thoughts your way! "You can never cross the ocean unless you have the courage to lose sight of the shore.”– Christopher Columbus
"We shall not cease from exploration
And the end of all our exploring
Will be to arrive where we started
And know the place for the first time." -T.S. Eliot
"If you're going through hell, keep going." -Winston Churchill |
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Ptbug Posts: 50
Member
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I was on disability. Betty is right make sure you have doctors on your side and don't work. When on disability be careful what you post on FAcebook it can and will be used against you when you go through a medical review. If you decide to go back to work on SSDI be very very careful. There are very strict rules. I started working 5 hours a week and lost my benefits. |
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"What MD Junction means to me is a place where i can feel like im not alone. As someone with something as rare as hydrocephalus, it feels like im the only one in the world with it. When i came to MD, its like everyone has it. It doesnt feel like im alone. And that people need to hold up a sign to say what i have, because people know. And they understand. I can get questions answered from people who have been through it rather than from doctors or people who only can tell you from a physical standpoint. THat is what MD junction means to me." (tomboykimi)
