Lyme Disease Support Group

Have any of you experienced significant process, then out of nowhere your symptoms return?

I was getting better by the day after starting Buhner's protocol 8 weeks ago- I was fever free for 54 days. Then this week, it was as though I was 'sick' again. I had damn near called myself cured. The feeling of living again, well that is indescribable. Now I feel like it is gone, again.

Have any of you had a similar experience?

Thanks,

Tonya

My diagnosis was in December, last year.

So I've never had treatments.

All I can tell you is I had periods of getting better too.

Then, whammy, it would all come back and worse.

So you need to feel better for quite a long time to feel like your "out of the woods."

Don't give up.

You had periods of getting better without treatment? I kept getting worse. I am convinced I'd be dead if I hadn't got a diagnosis and treatment 6 months in.- Couldn't function, was beginning to lose feeling in my left side, taking a shower was as daunting as running a marathon. -Why it was an incredible feeling to bike with my family again, then lyme and bart and whatever else I have crashes down.

I appreciate the thought of not giving up- it is encouraging.

Wishing you the best on your journey ahead!

I have made great progress with Lyme & bart over past15 months....

Like you, I'll have nice stretches of feeling like I've left this behind...and then WHAM I'm in oain, fevers, exhaustion...

My LLMD says it is cycling...good news is when we can go for longer periods of time between cycles.

Hang in there! Health is just around the corner

Hugs,

JJ

Blessings to you.

Sometimes I feel like it is just as hard to have the 90% or better days and then crash.

Then I remind myself of the months w/o relief. So I try to enjoy the good days, and not let anxiety take hold of the bad days.

It is so easy to freak out and think I'm going backwards, but so far I come out of the bad days and I think the good days are getting closer to 100% and the bad days are fewer and farther between.

I feel like I can tell when a crash is coming. I try to detox extra, and rest more. I believe that helped lessen the crash this last time.

I am a bit reluctant to post this, as I feel I never know what's around the corner, but this is my "now".

Try to relax and destress, and detox. Keep your anxiety down if possible.

Post edited by: lymeinmich, at: 06/24/2012 06:11 PM

I also rested more, because I had to.

I agree with you that the bad days are fewer and further apart and that the good days are closer to 100%, instead of the 90. I was thinking the past few weeks that I was at 90-95, whereas I used to say 80% better.

I am so grateful that you and JJ weighed in. It gave me a new outlook, instead of thinking how awful this is and what do I need to try next and that I will never get well, I switched to 'okay, this is normal, and I just had 54 fantastic days and I will see them again soon'.

Glad to hear you are on your way to wellness too. We can do this, and without this site to weigh in from time to time, I would be lost.

I always get better.

Just never as good as before my flare-up of new or increased symptoms.

I would delude myself during these times that my healthy diet and exercising lifestyle was working to beat what ever I had.

Then I would be knocked on my arse again.

Now that I know what I have.

I have new hope that I finally have a fighting chance.

Good luck.

Post edited by: Courious, at: 06/24/2012 09:02 PM

No doubt you will be riding your bike again soon, but it is natural to have that Pavlovian response to the symptoms, and think it is all turning around again.

A week ago I played golf with my kids. I can barely move right now.