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Lyme Disease ForumsGeneral & SupportMy old pal tindamax
06/22/2012 05:16 PM
ontong
ontongPosts: 262
Member

Once again, I am on tindamax. As many of you may know, it is a cyst buster, important bad guys to kill. But even when I taper onto to it really slowly, by the time I have been on just 250 mg for three days, I am dying from the herxes.

Can anyone else comment on their experience with tindamax? Has anyone out there had a hard time on tindamax but done ok on flagyl? My LLMD seems perplexed by my harsh reaction to it.

Thanks for any info you have.

John

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06/22/2012 05:38 PM  Top
hiker3
hiker3  
Posts: 109
Member

I took tindamax, but only for a week. I didn't notice much of a change when I was on it. Maybe it wasn't long enough. I was on amoxicillin/probenecid and biaxin as well.

06/22/2012 06:38 PM  Top
doglick
doglickPosts: 577
Member

I've been on it for months. The first month was difficult but then again, I've been on ABX for 4 years. The worst Herx issues seem to be behind me.

Never tried flagyl so I cannot comment on that. Azith made me freak out and Biaxin gave me raging nightmares for weeks. All of it passed weeks to a few months of taking any of em. No pain, no gain.


06/22/2012 06:40 PM  Top
ontong
ontongPosts: 262
Member

So, dog, what symptoms are you dealing with now? Nice that you feel that herxes are behind you. And, how did you cope with them while you were having them?

Previous discussions I participated in:
Ceftin Herx???
Need opinions please..
Encephalitis

06/22/2012 07:13 PM  Top
doglick
doglickPosts: 577
Member

Mostly join pain. Some of the other symptoms I had revisit me but no where to the degree I lived with daily. My feet hurt like hell by evening. Probably Bart related which I have and have been treated for. I was having a lot of joint inflamation before the tindamax. After about 2 months it as become much better.

The first month(full dose) was the worst as everything came back in great degree. At 4 months I increased the dosage to full 500mg twice a day. That brought on another wave of increased symptoms. Even so, not as bad as I have had in the past.

I didn't 'cope' actually. I just lived with it. The panic attacks that Azith gave me where the worst. I live alone so I could be as bad as I needed to be and not bother anyone. Throughout I worked. That was the hardest thing I've ever done. When not working I rot. Spend a lot of time with my feet up in bed.

The herx's are not gone yet but just way better than they used to be. It has been a very long 4 years.

I can now walk my dogs for 20 minutes and not have to sleep the rest of the day to recover. I can now sleep better than I have in years. I go to the gym once a week and it doesn't wipe me out for 2 to 3 days from the effort. No more vicodin.

These days I can get a few things done in a day even if I still run out of energy before the day is done. Then I rot.

Tindamax didn't make a vast differance but it has improved things. The journey continues.

Post edited by: doglick, at: 06/22/2012 07:14 PM


06/22/2012 07:41 PM  Top
beeincharge
Posts: 436
Member

I was on tindamax for about 2 months, 500mg/day. Really it was more like 6 weeks though, because I had to stop a few times. I herx worse on Flagyl. My doc was perplexed about that. I really only had stomach aches from the tindamax. That was it. I took it in combo with doxy. Oddly the doxy never caused me any stomach aches. We didn't think that combo was doing much, but a week after I stopped those meds and began completely different meds, I had a terrific week, followed by an okay week. We think the tindamax must have done something for that to have occurred because I hadn't had 1 good day during the 7 months prior. Good luck.
Dxd March 2012 with Lyme, Babesia, and suspected Bartonella, after suffering for 4 years, and possibly having it even longer. Same as most others, I have suffered with a long list of terrible symptoms.
Also have POTS, RA and Hashimoto's Thyroiditis. Working with a LLMD.

06/22/2012 07:52 PM  Top
doglick
doglickPosts: 577
Member

Speaking of stomach issues with tindamax. The week I increased to the full dosage I had a fit of stomach cramps worse than ever in my life. It, and the usual reaction to it, lasted for 3 days. Never had it so bad. It all cleared and now my insides are acting more like 20 years ago.

I do know that the lyme bacterium really like living in the gallbladder. Many of us get better after having it removed. I wonder if I killed off a bunch of the bacterium from there and the immune reaction to the dead bacteria is what caused the digestive problems. I do know that when lyme dies it can cause a very significant immune reaction that lasts for quite awhile.


06/22/2012 11:39 PM  Top
Bettyg
 
Posts: 27280
VIP Member
I'm an Advocate

john, sending you a gentle hug andprayer on overcoming this.

never onthat one; on flagyl 5 dayswhen herxedhorrible; off forever!

iowafriend, bettyg,

BettyG, IOWA ACTIVIST
RETIRED llmd coordinator of 6 yrs; group leader

NOTE: I DO "NOT" USE CHAT thanks!
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