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Jungleland Posts: 126
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Hi all. I had an appt with my regular internal med doc today. He is the one that kept giving me psych meds, stating all my symptoms of LD was due to depression/anxiety. I gave him a copy of my Igenex lab results and also brought him a copy of Dr Burrascano's guidelines. He said he doesn't believe in the results of my testing, due to the fact the the WB through Quest was negative. He gave me the old "if you look into any disease long enough, you will find yourself having all the symptoms of that disease and be careful with the treatment by LLMD" I don't know what to think. I guess I need to find a new regular doctor, but how do I find one who is more open minded? He would not take the guidelines I brought, said he had read them before He wished me luck with my treatment. Oh, and that funny crunching sound I am hearing in my right ear is an ear infection. I also spoke with my LLMD this morning and he is starting me on a new antibiotic tomorrow. I think it is Azithromycin but I am not sure. Anyways, just feels yuck that my regular doctor still is not believing me. Igenex igm result: 04/2012
18+
23-25 IND
31++
34+
41++
58+
Igenex igg result:
34 IND
41+
Bartonella +
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mj278 Posts: 203
Member
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Yeah...my primary doc was convinced I was crazy. I left him. Feels like everyday I'm alone. Not because I don't have any friends around me at the time, just because no one understands what I really feel like everyday.
I pretend to be happy so I don't have to explain myself to people who'll never understand. |
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swannynguyen Posts: 2
New Member
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That's all your choice, at the first time if you can feel that Doctor can't understand you, dont choose him, find another one who seems he can solve your problem. Good luck! Orthodontist Dahlonega GA
http://www.wilsonbraces.com/ |
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nank59 Posts: 803
Member
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It appears as if so many primary doctors just refuse to believe! Apparently, it takes some sort of revelation or first hand experience in order for the light to be shed and make them believers. My primary doctor believes that the thirty days of Doxy should have cured me. NOPE! Still battling. You would think they would have some compassion. Now, if you were to go in with the notion that you have Fibromyalgia, or depression, or anxiety, or CFS, they would probably smile and start giving you scripts. Am I correct?!? nan
I am not a doctor, nor have I ever been. All comments are based on my personal experience or opinion.
IgM
41+
IgG
41+
31 IND
39 IND
Currently treating Lyme & Babesiosis.
Have many Bart symptoms.
Blessings! :) |
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cmany Posts: 6204
Group Leader
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Been there done that...and have shoved it where the sun don't shine on those types of docs... Learn key facts... The pathology of the bacteria...the 3 forms of it...facts that they probably do not know... OH and always remember...to REMIND them that the WB by regular labs follow the CDC guidelines...WHICH IS FOR REPORTING AND TRACKING ONLY...NOT DIAGNOSIS...and emphasis on that... As far as finding another doc..Call offices..and tell them that you have a chronic, recurring infection that you are seeing a specialist for...but you need a regular doc for the regular things... But you want to know ahead of time if this doc is open minded...because you will not tolerate being treated badly because of what you KNOW you have... I have found that in many cases if you can walk in and come off as educated and well read...and don't loose your cool when they start down playing your dx...that some times they do listen... That is what happened with my primary...she listened and got educated herself...so that she could help me after we moved out here... [b]Group Leader Disclaimer[/b]
First and foremost - I am NOT a doctor, anything I share is based on experience & research. I strongly encourage you to discuss any and all information that I share with a health care provider.
************************
"I'm not afraid to take a stand
Everybody come take my hand
We'll walk this road together, through the storm
Whatever weather, cold or warm
Just let you know that, you're not alone
Holla if you feel that you've been down the same road...
And I just can't keep living this way
So starting today, I'm breaking out of this cage
I'm standing up, Imma face my demons
I'm manning up, Imma hold my ground
I've had enough, now I'm so fed up
Time to put my life back together right now" Eminem Not Afraid |
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beeincharge Posts: 436
Member
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My "EX" primary care thinks I'm a crazy attention seeking paranoid hypochondriac. He asked me the past 4-5 times I went in to see him, to find a new practice and then said he wouldn't continue to be my doctor. He never even addressed the reasons I was there. Just said, "I hope you will seek psychiatric help and find a new doctor to care for you", then backed out of the room and shut the door. The last time I went in was because I wanted to tell him the reason I had been having so many problems over the past few years is because I have been dxd with lyme disease. His response: "I'm glad you found a new doctor, good luck" -- as he backed out of the room and shut the door. Oh the names I have for that man... Dxd March 2012 with Lyme, Babesia, and suspected Bartonella, after suffering for 4 years, and possibly having it even longer. Same as most others, I have suffered with a long list of terrible symptoms.
Also have POTS, RA and Hashimoto's Thyroiditis. Working with a LLMD. |
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Jungleland Posts: 126
Member
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Thank you for your responses!! It was so frustrating, he had the WB that Quest did up on his computer screen and the results from Igenex in his hand and asked how is this possible to have a completely negative test and another with so many positives. I tried to explain about the CDC guidelines, etc, tried handing him the ILADS guidelines and his face completely shut down. I felt dismissed. Igenex igm result: 04/2012
18+
23-25 IND
31++
34+
41++
58+
Igenex igg result:
34 IND
41+
Bartonella + |
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nank59 Posts: 803
Member
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Why can one test be completely negative and another have so many positives? Because, it is a complex disease! If it were easier to understand, there wouldn't be a problem in finding a doctor! nan
I am not a doctor, nor have I ever been. All comments are based on my personal experience or opinion.
IgM
41+
IgG
41+
31 IND
39 IND
Currently treating Lyme & Babesiosis.
Have many Bart symptoms.
Blessings! :) |
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waxby  Posts: 4127
VIP Member
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~~ Hello Vickie, ~~ Pardon my french but screw your regulation Dr! ``` ~ from my straight jacket ~ out on a limb ~ lookin like a cocoon ~ hangin by a thread ~ waitin for a butterfly ~ under the moon ~ Lovey-Dovey ~ Mitchell ``` ~~ "The way to 'Heaven' is to bring it with you ..." -Mitchell
~~ "Sometimes, we gotta go through hell to get to 'Heaven'" -Mitchell
~~ "The way out is in" -Mitchell
~~ "A miracle speaks ...'I don't believe in Miracles.' " -Mitchell
~~ "Life is good, even when it isn't." -Mitchell
~~ "Sometimes you gotta lose to win." -Mitchell
~~ "It's easy when it's easy! Find reason, purpose and meaning when it's hard!" -Mitchell
~~ "If you're gonna think, think again!" -Mitchell
~~ "Make it so!" ...
~~ “When life do what it do, as it do-do, simply say ‘Of Course!’ (to soften life’s ‘blows’)” - Mitchell
~~ A master once said, "When embarking on the spiritual path, 'Oh Dear! There's no turning back! You've really done it now!' "
~~ “Not thoughts be your guide, rather, guide your thoughts.” -Mitchell
~~ "That which is within, and that energy entering this body/mind/spirit, causing harm and ill health, must and will be transformed into love healing energy and sent out in every direction" -Mitchell
~~ One morning ten years ago I awoke from a dream chanting over again and again, and writing this down so as not to forget ... "It doesn't matter who did what, there's nowhere else to go but up ..." -Mitchell
~~ "This life, our life, and what we do with it on this planet is “simply” a display, a reflection, of what is going on in our consciousness. The proof is in the puddin’. Look at our planet, what humans are doing to it, and with it, and to one another, and ask yourself ... ~ 'How’s this working for us/me?' ” -Mitchell
~~ "Step away from monkey mind, not tangle ... Observe ... Inhabit your higher self ..." -Mitchell
~~ "Anything is possible, but manythings you think are true, are not ... " -Mitchell
~~ "Grow where you are planted ..." -Mitchell
~~ "Change your future now ..." -Mitchell
~~ “Write your equation … 4 u r the sum of u … “ -Mitchell
~~ “We are largely a product of our environments … how’s your inner environment doing? …” -Mitchell |
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sfish53 Posts: 93
Member
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I don't get it, I've been ask what makes you so sure you have Lyme Disease When I had the nueroligist at Stanford Med UC CA tell me I don't have Lyme Disease but we have no idea what you do have and maybe it will just go away on its own his dx idiopathic (means they don't know)Encepholopathy and then I go to an LLMD that say's I know whats wrong with you and here's how to fix it.which one should I believe?I mean Stanford Medical University is one of the top teaching hospitals in the US and they said to just go home at see if you get better on your own.Not one Rx for anything.Me and My Wife just could not accept that we just turned 50 and its just over? Anyway we found a good LLMD and working on getting better it's just going very slow |
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