hi jenn 
please edit ALL your posts and break them up using my posting guidelines below for us neuro lyme folks so we can read all your text.
thanks for helping us help you
bettyg, iowa activist forever
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Welcome to MD JUNCTION! I'm so glad you found us! You’ve come to the right place for education and support!
Private messages DELETED in 30 days!
ARCHIVE, upper right!
My WELCOME LETTER is posted at the top of SUPPORT FORUM in sticky pin full of good info and HYPERLINKS ready to be read.
http://www.mdjunction.com/forums/lyme-disease-support-
forums/general-support/2356916-bettygs-welcome-letter-wgood-
beginner-links-
The most important things are at the top; MUST READ and print off as mentioned there already to start your lyme/co-infection journey with us all.
The 1st things to do are:
• JOIN LYME BOARD;
• Post in LLMD REQUEST FORUM for a LYME LITERATE md; see my welcome letter and the INSTRUCTIONS there if you are SPECIALLY FROM CALIF. Where it’s broken down into 8 NAMED AREAS.
• You’ll need to give me my calif. NAMED area where you live in the areas shown there in SUBJECT LINE plus if it’s for ADULT or a child; we need age of CHILD; some llmds have AGE restrictions.
• OTHER STATES will show the SPECIFIC NAME OF THEIR STATE and Qclosest, largest city to them in SUBJECT line plus adult or child; UNDER 21; we need their age!.
http://www.mdjunction.com/forums/lyme-disease-support-
forums/llmd-info/Itemid=217/func=post/do=reply
• Also, we’ll need the following info in your request post:
in your llmd request, please EDIT and add more info ok.
Are you UNDER AGE 21;; if yes, I need your age shown as some of our llmds have AGE RESTRICTIONS; thanks!
how long you've been sick
if you've tested for lyme/co-infections;
which labs doing work for which specific test, etc.
did you have western blot igm/igg done by igenex?
if yes, what were the POSITIVE & INDETERMINDED numbers; NOT negatives.
thanks for understanding; just EDIT your post. you can find all by going to left MY DISCUSSIONS, click on it.
after you add more, a LEADER will send you names ok.
I RECENTLY RETIRED AFTER 6 LONG YRS. OF DOING THIS!
Betty’s suggested posting guidelines:
NO ALL CAPS POSTS; they are illegible to me/other neuro folks!
Many of members have neuro lyme, and it is hard to read long solid block text and be able to comprehend; example, me, 42 yrs. neuro chronic lyme, so we are UNABLE to comprehend and read. Thank you for helping us help YOU
Please post in short paragraphs like you see below or look at a few other posts, but we neuro folks need them short.
1-2 sentences MAX per paragraph and hit ENTER TWICE to double space between each paragraph. We’ve lost our comprehension skills to read solid block text.
We neuros lose our train of thought if the sentence is broken up in the middle; so please keep an ENTIRE sentence together as ONE. hugs
For easier reading, please edit your post. You can break up your longer paragraphs into smaller paragraphs. Please hit
ENTER key twice after each paragraph.
Go to left hand corner; click edit send. Then go to bottom and click SUBSCRIBE TO THIS DISCUSSION.
Thank you for posting in a manner that makes it easier for all to read and help others.
Bettyg, Iowa activist FOREVER
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YES, be prepared to PAY UPFRONT!
i've heard of some requiring down payments; i wasn't aware of that one at all!!
very FEW accept insurance; why?
insurance co. allow 7 min. per patient; we can hardly say hello in that time!
you also have to follow INSURANCE'S GUIDELINES ON TREATMENTS, IDSA/infectious disease drs. socieity guidelines... BAD NEWS FOR US!
by NOT accepting insurance, they can practice ILADS/intl. lyme and associated disease lyme guidelines ... treating you longer than 4 wks. of antibiotics, herbals, and alternative therapeis.
they allow 30-60 min. appt; longer 1st time; you pay accordinatelly for those appts.
ACCEPTING INSURANCE; they get very little $$ to pay the staff/overhead of building/utilities, etc.
many call patients day before to make sure they will be there; MANY DO NOT SHOW UP NOR HAVE THE DECENCY TO CALL SAYING THEY ARE NOT COMING!!
they could get those close by to come in but NOT being called; they are OUT THE MONEY and having one hell of a time meeting the bills.
our LLMDS are NOT RICH by any means!!
i hope this answers your questions so you understand what THEY are going thru too.
hugs/prayers,
bettyg, iowa activist forever
former llmd coordinator for 6 yrs working directly with these drs/former group leader
"MDJunction has become a lifeline to my recovery. I use this site as a daily coping tool where i can share my thoughts,my fears and ask ways to cope with living life with a illness. I also found new friends here and they have restore my faith in humanity. People everywhere come here to share same problems or solutions to problems we encounter in our lives. MDjunction is a wonderful site and has help not only myself but also my family and friends. I recommend this site to anyone who thinks they are alone dealing with an illness and also to those who have love ones who suffer from illnesses. I will keep spreading the word about MDJunction to organizations who deals with illnesses that would benefit having MDjunction as a support system.Bottom line is.. I found myself again through MDJunction" (mobey)
So it is common then for the doctor to give a diagnosis of Lyme before the lab result.....it wasn't there first suggestion I went to my doctors office 5 times and had these tests: Mono., strep, CBC's, Test for a few other autoimmune disease, and sinsus issues.......I am just hoping I finally have the right diagnosis and now I will get better finally
