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05/16/2012 10:31 AM

still new here with questions!

Danemark
 
Posts: 51
Member

Hi All, I'm really sorry to be a pain with all these questions and asking for help. I am a new lyme disease person and over whelmed with the amount of information out there and the little time I have with my new job to be able to do the research I need!

I am getting very frustrated trying in the little time I have to find what I am looking for. Every link just takes me to pages with a hundred other links!

I just started meds a week or so ago and only have a few days left and trying really hard to figure out how to get my doctor to extend that and to find out what else I need to be doing specifically. All the links are great and I will find time eventually.

Someome please direct me to a specific link that will help me figure out what else I need to be doing right now so this round of antibiotics is not a complete waste.

thanks so much

karen

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05/16/2012 10:56 AM
mem2062

These are the most important scientific references on Lyme that

you should read and know by heart Smile

[1] Brorson O, Brorson S (1999) An in vitro study of the susceptibility of mobile and cystic forms of Borrelia burgdorferi to metronidazole, Acta Pathologica, Microbiologica et Immunologica Scandinavica http://lymepoland.com/pliki/p.Ga%C3%85%C2%82%C3%84%C2% 99ziowska_566-576.pdf

[2] Brorson O, Brorson S (2004) An in vitro study of the susceptibility of mobile and cystic forms of Borrelia burgdorferi to tinidazole,

International Microbiology, vol 7, pp 139–142, http://www.im.microbios.org/26june04/09%20Brorson.pdf

[3] Brorson O, Brorson S. (2002) An in vitro study of the susceptibility of mobile and cystic forms of Borrelia burgdorferi to hydroxychloroquine,International Microbiology,5: 25–31, http://www.ncbi.nlm.nih.gov/pubmed/12102233

[4] Brorson O, Brorson S (1998) In vitro conversion of Borrelia burgdorferi to cystic forms in spinal fluid, and transformation to mobile spirochetes by incubation in BSK-H medium, Infection. vol 26, issue 3, pp144-50, http://www.ncbi.nlm.nih.gov/pubmed/9646104

[5] Brorson O, Brorson S (1997) Transformation of cystic forms of Borrelia burgdorferi to normal, mobile spirochetes. Infection. vol 25, issue 4, pp 240-6, http://www.ncbi.nlm.nih.gov/pubmed/9266264

[6] Costa, V et al (2011) Antibiotic resistance is ancient,

Nature, 477, pp 457–461, doi:10.1038/nature10388, http://www.nature.com/nature/journal/v477/n7365/full/ nature10388.html

[7] Lee, D (2011) Analysis of Overall Level of Evidence Behind Infectious Diseases Society of America Practice Guidelines,

Archives of Internal Medicine, vol 171, no 1,

http://xa.yimg.com/kq/groups/23171613/353213077/name/ Guidelines+e+n%C3%ADveis+de+evid%C3%AAncia_2010.pdf

[8] Dorward, D, Fischer, E and Brooks, D (1997) Invasion and Cytopathic Killing of Human Lymphocytes by Spirochetes Causing Lyme Disease,

Clinical Infectious Diseases, Vol. 25, Supplement 1, pp. S2-S8

http://cid.oxfordjournals.org/content/25/Supplement_1/ S2.full.pdf+html?sid=ae049202-03c8-43cc-bc91-a38b53f56996

[9] Ekerfelt C., Ernerudh J., Forsberg P., Jönsson A.-L., Vrethem M., Ärlehag L., Forsum U.(2004) Lyme borreliosis in Sweden – diagnostic performance of five commercial Borrelia serology kits using sera from well defined patients groups. APMIS, 112: 74-78 http://www.ncbi.nlm.nih.gov/pubmed/14961978

[10] Embers M, Barthold S, Borda J, Bowers L, Doyle L, Hodzic E, et al (2012) Persistence of Borrelia burgdorferi in Rhesus Macaques following Antibiotic Treatment of Disseminated Infection. PLoS ONE. vol 7, isssue 1. http://www.plosone.org/article/info:doi/10.1371/ journal.pone.0029914

[11] Harvey, W & Salvato, P (2003) ‘Lyme disease': ancient engine of an unrecognized borreliosis pandemic?

Medical Hypotheses, vol 60, issue 5, 742 –759, http://www.ilads.org/files/harvey.pdf

[12] Vrethem,M, Widhe, M , Ernerudh, J, Garpmo, U and Forsberg, P (2011) Clinical, diagnostic and immunological characteristics of patients with possible neuroborreliosis without intrathecal Ig-synthesis against Borrelia antigen in the cerebrospinal fluid

Neurology International, vol 3 issue 1, www.pagepress.org/journals/index.../2744

Post edited by: davmark, at: 05/16/2012 10:57 AM


05/16/2012 11:45 AM
mysticthecat
mysticthecat  
Posts: 2243
Group Leader

Dane,

Ugh. I think the poster above is joking with you.

Please go to the ILADS website and print out Dr. Burrascano's treatment guidelines. Read them.

Tell your PCP that you want to be treated using the ILADS guidelines NOT the IDSA guidelines. The ILADS guidelines say longer course of abx and stronger dose.

Good luck.


05/16/2012 11:49 AM
mem2062

No joke! If you dont want to approach lyme in a scientific way well then I dont feel you are making an effort to get your health back.

05/16/2012 12:12 PM
jhrn
jhrn  
Posts: 23
New Member

I agree that the ILADS is a good place to get the info you need for right now. It's hard to dig through all the information that's out there when you feel so sick.

Good luck-


05/16/2012 12:36 PM
mysticthecat
mysticthecat  
Posts: 2243
Group Leader

Dav,

I thought she needed to start with the basics. All your wonderful links are more novice/ intermediate level.


05/16/2012 06:11 PM
Danemark
 
Posts: 51
Member

Dav, thank you and I agree I need to read all that stuff. I am getting frustrated because there is so much and I have a new job that leaves me little time right now. So I needed to have exactly what I asked about for now. I am about to run out of antibiotics and need more specific info right now. I can't weed through all that to find what I am looking for immediately

So thank you so much mysticthecat and jhrn for the much needed info that I can hopefully figure out what I need to do right this minute until I can week through all that info

thanks,

karen


05/17/2012 01:47 AM
Bettyg
 
Posts: 32197
VIP Member
I'm an Advocate

karen,

click on my welcome letter link in my signature line.

print off the link MEDS/DOSAGES FOR ADULTS/KIDS; this is from dr. burrascano and what should be FOLLOWED for ilads aka our chronic lyme literate mds, llmds.

bettyg, iowa activist forever

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