Lyme Disease Support Group

Still awaiting test results from LLMD, been 2 weeks today, have to wait till Monday morning. He accepts phone calls every morning and gives results over the phone, which is great since he is 2 hours from me.

From those who have BTDT, what questions should I be asking him to make the most of this phone call? Of course I will ask for copies of all labs be sent to me.

I feel so scared and frustrated with all this waiting. I have really been ill these past few days, lots of achiness, diarrhea, headache, dizziness, brain fog, you name it.

Any help would be most appreciated!

Hugs, Vickie

Waiting for test results is probably one of the hardest parts of initial diagnosis! My thoughts are with you....

Have you been reading up on Lyme and the other possible co-infections?

I found reading and knowing what the possibilities were, what to expect for treatment, etc was very helpful while I was waiting.

Then when the tests did come back I knew what everything meant and what the first steps should be.

I'd make sure to find out the philosophy of the LLMD you are seeing - what their treatment regime entails. Do they use conventional medicine only? Or do they also use naturals and herbals to supplement and support?

Keep us updated!

blessings,

purple

When I have labs done at lets say.. labcorp.. I always call them directly to send me a copy so I don't have to play the waiting game!

Good luck,

xoRB

Waiting is really hard. Just ask him things like:

WHICH bands are show ANYTHING. In other words, have him read you ALL bands that are not negative

Ask him if he follows ILADS guidelines and where he got his training for treating Lyme disease.

And what i think is, go to not just one LLMD, go to two. Ask them what they can do for YOU.

Right now I am in the midst of visiting three LLMDs. Getting treatment with Lyme (and their co-infections) is no easy task. And everyone's unique Lyme situation calls for Unique Lyme treatments. Different cocktails of antibiotics etc. And each doctor has a different way of approaching it.

So compare, and research research research.