|
|
|
beensLYMEd Posts: 235
Member
|
[b] hey guysI don't post much but I read and follow along a lot. For weeks now I have been so exhausted I rarely leave the house. Just from bed to couch and back again. I have been in treatment for over a year and so many symptoms have improved I try and focus on that. But I just am crying inside about all I am missing how my kids are neglected because mommy is too tired. all I hear is mommy when r u getting up My quality of life is just awful. I don't even care if I shave my legs I can't continue on this way I take my meds my supplements I detox and try to eat good and I am still sick. My kids don't even know who I am. I am an awful lazy mother and wife. I just can't stop the tears I want my life back. |
|
Reply |
|
|
|
ontong  Posts: 262
Member
|
Hi, Im right there with you. I have plenty of symptoms that have improved. But I have wicked pain that keeps me pinned down in the house. I have that same guilt of not being enough of a father. I feel chopped out of life. I cant drive far enough to visit my family. My kids just see me in bed so much of the time. And my oldest son is sick with lyme as well, so I worry about him like crazy. Its a crappy thing. The way that I cope is by keeping in touch with friends online and by being supportive to them with whatever troubles they have, by concentrating on those things that I can still do, and be keeping in touch with friends who were really sick with lyme but are fine now. I need that hope to keep me going. We'll get there. |
|
|
|
|
|
waxby  Posts: 4256
VIP Member
|
~~ Hello beenie, ~~ I know ... ~~ "My kids don't even know who I am. I am an awful lazy mother and wife." ~ OK, now your being silly! ``` I Love you beeny, Mitchell ``` ~~ "The way to 'Heaven' is to bring it with you ..." -Mitchell
~~ "Sometimes, we gotta go through hell to get to 'Heaven'" -Mitchell
~~ "The way out is in" -Mitchell
~~ "A miracle speaks ...'I don't believe in Miracles.' " -Mitchell
~~ "Life is good, even when it isn't." -Mitchell
~~ "Sometimes you gotta lose to win." -Mitchell
~~ "It's easy when it's easy! Find reason, purpose and meaning when it's hard!" -Mitchell
~~ "If you're gonna think, think again!" -Mitchell
~~ "Make it so!" ...
~~ “When life do what it do, as it do-do, simply say ‘Of Course!’ (to soften life’s ‘blows’)” - Mitchell
~~ A master once said, "When embarking on the spiritual path, 'Oh Dear! There's no turning back! You've really done it now!' "
~~ “Not thoughts be your guide, rather, guide your thoughts.” -Mitchell
~~ "That which is within, and that energy entering this body/mind/spirit, causing harm and ill health, must and will be transformed into love healing energy and sent out in every direction" -Mitchell
~~ One morning ten years ago I awoke from a dream chanting over again and again, and writing this down so as not to forget ... "It doesn't matter who did what, there's nowhere else to go but up ..." -Mitchell
~~ "This life, our life, and what we do with it on this planet is “simply” a display, a reflection, of what is going on in our consciousness. The proof is in the puddin’. Look at our planet, what humans are doing to it, and with it, and to one another, and ask yourself ... ~ 'How’s this working for us/me?' ” -Mitchell
~~ "Step away from monkey mind, not tangle ... Observe ... Inhabit your higher self ..." -Mitchell
~~ "Anything is possible, but manythings you think are true, are not ... " -Mitchell
~~ "Grow where you are planted ..." -Mitchell
~~ "Change your future now ..." -Mitchell
~~ “Write your equation … 4 u r the sum of u … “ -Mitchell
~~ “We are largely a product of our environments … how’s your inner environment doing? …” -Mitchell
~~ “We reveal ourselves to ourselves in everything we do … life is our mirror … howdoyoudo? …” –Mitchell |
|
|
|
|
|
beensLYMEd Posts: 235
Member
|
I know but it doesn't feel silly I feel useless Oh dr Mitch I don't know how to go on like this |
|
|
|
|
|
beensLYMEd Posts: 235
Member
|
John u always say the right things. Now if I could get someone to clean my disaster house |
|
|
|
|
|
mysticthecat Posts: 1750
Group Leader
|
Been, I don't know you but wanted to let you know that I can relate to you. Just the fact that you're crying inside tells me you're a good mommy. Hug your family and show them you love them. They don't see the dirty dishes, let the dishes and cleaning slide. I learned this trick from my therapist... When you're feeling like you are not good enough, add the phrase "even though I know it's not true, it feels like" in front of the put down. That way you honor the very real feeling without perpetuating the myth. Make sense? For example, yours would go: Even though I know it's not true, it feels like I am an awful lazy mother and wife. Oh, and, maybe let those tears out once in awhile? They say it's theraputic. I am not in the medical field and anything I say is simply my opinion and should not replace the advice of your doctor. |
|
|
|
|
|
waxby Posts: 4256
VIP Member
|
~~ "I don't know how to go on like this" ~ for me I don't either, I just do ... against ALL odds ... i should be dead or kill myself, i have almost zero physical life ... really! ~~ i just keep putting one figurative foot in front of the other ... it's taking me ten minutes to type this, maybe 20 by the time i am done, maybe 30 , 50? (i keep coming back here)... ~~ i dont know how or why i go on like this either, i just do ... i lied, i do it for you ... certainly not for me ... living is NO fun for me ... my physical life SUCKS, REALLY! ... mine is a purely selfless pursuit ... for you ... ~~ i want nothing ... stuff is useless to me ... you are NOT! ... i live for you! ... you are all that matters ... matter does not matter, bling is shiny crap ... here i have found my joy ... truth ... meaning ... purpose ... my reason to live ... do you see how fortunate i am ... do you understand ... i have found IT ... so can you ... ~~ Don't look far ... IT is behind your eyes, in the palm of your hand ... ``` LOVE, Mitchell ``` ~~ "The way to 'Heaven' is to bring it with you ..." -Mitchell
~~ "Sometimes, we gotta go through hell to get to 'Heaven'" -Mitchell
~~ "The way out is in" -Mitchell
~~ "A miracle speaks ...'I don't believe in Miracles.' " -Mitchell
~~ "Life is good, even when it isn't." -Mitchell
~~ "Sometimes you gotta lose to win." -Mitchell
~~ "It's easy when it's easy! Find reason, purpose and meaning when it's hard!" -Mitchell
~~ "If you're gonna think, think again!" -Mitchell
~~ "Make it so!" ...
~~ “When life do what it do, as it do-do, simply say ‘Of Course!’ (to soften life’s ‘blows’)” - Mitchell
~~ A master once said, "When embarking on the spiritual path, 'Oh Dear! There's no turning back! You've really done it now!' "
~~ “Not thoughts be your guide, rather, guide your thoughts.” -Mitchell
~~ "That which is within, and that energy entering this body/mind/spirit, causing harm and ill health, must and will be transformed into love healing energy and sent out in every direction" -Mitchell
~~ One morning ten years ago I awoke from a dream chanting over again and again, and writing this down so as not to forget ... "It doesn't matter who did what, there's nowhere else to go but up ..." -Mitchell
~~ "This life, our life, and what we do with it on this planet is “simply” a display, a reflection, of what is going on in our consciousness. The proof is in the puddin’. Look at our planet, what humans are doing to it, and with it, and to one another, and ask yourself ... ~ 'How’s this working for us/me?' ” -Mitchell
~~ "Step away from monkey mind, not tangle ... Observe ... Inhabit your higher self ..." -Mitchell
~~ "Anything is possible, but manythings you think are true, are not ... " -Mitchell
~~ "Grow where you are planted ..." -Mitchell
~~ "Change your future now ..." -Mitchell
~~ “Write your equation … 4 u r the sum of u … “ -Mitchell
~~ “We are largely a product of our environments … how’s your inner environment doing? …” -Mitchell
~~ “We reveal ourselves to ourselves in everything we do … life is our mirror … howdoyoudo? …” –Mitchell |
|
|
|
|
|
mysticthecat Posts: 1750
Group Leader
|
huggss to you all. I am not in the medical field and anything I say is simply my opinion and should not replace the advice of your doctor. |
|
|
|
|
|
nank59 Posts: 813
Member
|
It's so good to hear that some of your symptoms have improved! You will get better! Cherish those good days and good moments - do what you can during those times. Just don't overdo! I didn't have Lyme when my kids were at home, but I do know that they used to love to climb in bed with me - or on the couch - and watch TV, play games, read, color, and my daughter loved to brush my hair (that was so relaxing!). Those times are still remembered! Sending you smiles, best wishes & hugs! nan
I am not a doctor, nor have I ever been. All comments are based on my personal experience or opinion.
IgM
41+
IgG
41+
31 IND
39 IND
Currently treating Lyme & Babesiosis.
Have many Bart symptoms.
Blessings! :) |
|
|
|
|
|
toothfairy55 Posts: 3856
Senior Member
|
We all need to hang on to each other. Mitchell and I have been out on his limb for a long time. I just finished with 3 years of ABX and after one week off I am starting to feel the joints starting up again. Sometimes for those of us that have been misdiagnosed for so long that we are chronic it just takes a little longer. Dont give up. Your children do need you and who cares what the house looks like. I am an "A" personality so it was hard for me to realize that what energy I do have has to get prioritized. If someone has something to say about an untidy house let them clean it or offer to pay someone to do it for you. How old are your Kids? Maybe you could think of things to do with them while you lay on the couch. A card game or story time. Make your time count. let the little things go and remember conserve your energy for the things that count Carol
I am NOT a doctor, anything I share is based on my experience & research. I encourage you to discuss any and all information that I share with a health care provider. |
|
Reply |
|
