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"IVE HAD LYME FOR 3 YEARS WITH ALMOST NO TREATMENT FOR LACK OF FUNDS...THIS IS A ..." (GOLDEAGLE)

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mabri"When I was diagnosed about 18 months ago with fibromyalgia, I didn't know where to turn. I got on my computer and looked for a support group where I could talk to other people with the same disease and get some help...Information, suggestions, mostly just what I can do now that I have this.....disorder/disease/syndrome...I didn't even know what to call it. I found MDJ, and yes, there was a support group for fibro. I started a post, and figured I would never get an answer. However, very quickly I was welcomed in, and became really involved in the group. I received help, support, friendship and the feeling of being truly cared about by these strangers who had become like family to me. Now, I have been here for about a year and a half...I have become a group leader, and love every minute of it. It is so wonderful to be able to help others. I still receive help and answers from the members in this group. The fibromyalgia is where I go to help, support, listen, care and even laugh. I don't know what I would do without this group." (mabri)

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Lyme Disease ForumsGeneral & SupportA petition for the ISDA to revise its guidelines.
05/07/2012 09:34 PM
mem2416

Sign the petition to urge:

The NGC to remove the guidelines as its listing rules require.

The IDSA to revise its guidelines in a transparent process that includes both patient advocacy representatives and physicians who treat chronic Lyme disease.

http://www.lymedisease.org/petitionscript/index.php

Reply

05/08/2012 12:57 AM  Top
Bettyg
 
Posts: 26474
VIP Member
I'm an Advocate

hannah, please read all 4 screens of comments about this in ACTIVISM; thanks;

http://www.mdjunction.com/forums/lyme-disease-support- forums/lyme-disease-activism/3416271-sign-petition-to- change-idsa-lyme-guidelines

bettyg, IOWA ACTIVIST FOREVER Cool

BettyG, IOWA ACTIVIST
RETIRED llmd coordinator of 6 yrs; group leader

NOTE: I DO "NOT" USE CHAT thanks!
**************************************

NO INFORMATION SHOULD BE CONSIDERED MEDICAL ADVICE.
please see my WELCOME LETTER/BEGINNER'S LINKS with important links/info galore :)

http://www.mdjunction.com/forums/lyme-disease-support-forums/general-support/2356916-bettygs-welcome-letter-wgood-beginner-links-

Any information provided should not be used to take the place of advice from your personal physician or other professional.

Information on those sites is the opinion of those who publish the sites and is NOT necessarily that of BettyG.

43 yrs. chronic lyme; 35 yrs. misdiagnosed by 40-50 drs. unacceptable; see my profile for more.

05/08/2012 05:54 AM  Top
mem2416

Wow, jeeze I'm sorry. Everytime I post anything on here, it's always wrong. Ill stop now.

05/08/2012 06:01 AM  Top
mem2062

Hannamikelle please dont stop Smile

05/08/2012 06:58 PM  Top
lymeinmich
 
Posts: 1074
Member

Hanna,

I agree, do not stop.


05/09/2012 08:25 AM  Top
mem2416

Sorry Bettyg I didnt mean to be so rude about it I just wasnt aware of the different places I could put it.

05/09/2012 04:10 PM  Top
Bettyg
 
Posts: 26474
VIP Member
I'm an Advocate

hannah,

no problem; majority of folks here are NOT aware of the other specialized sections of our LYME BOARD.

that's why i started a post so they could learn how to find them and what types of things are in there.

all is forgotten Wink keep bringing them on ok. Cool

bettyg, iowa activist forever

BettyG, IOWA ACTIVIST
RETIRED llmd coordinator of 6 yrs; group leader

NOTE: I DO "NOT" USE CHAT thanks!
**************************************

NO INFORMATION SHOULD BE CONSIDERED MEDICAL ADVICE.
please see my WELCOME LETTER/BEGINNER'S LINKS with important links/info galore :)

http://www.mdjunction.com/forums/lyme-disease-support-forums/general-support/2356916-bettygs-welcome-letter-wgood-beginner-links-

Any information provided should not be used to take the place of advice from your personal physician or other professional.

Information on those sites is the opinion of those who publish the sites and is NOT necessarily that of BettyG.

43 yrs. chronic lyme; 35 yrs. misdiagnosed by 40-50 drs. unacceptable; see my profile for more.
Reply

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LymeLyme Disease ForumsGeneral & SupportA petition for the ISDA to revise its guidelines.

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