Lyme Disease Support Group

Hear is what happened yesterday

Todays symptoms made me go to er.

Whole back including inside joints in shoulders hip ankle feel like they have deel throbbing aches.

Im 34

Cracking in neck -Just plain old arthritis all over

Feels like bones have no joints in there in my back (like its gone)

warm in each joint area.

Painful to even sit.throbs inside joints

extrem fatigue

than short circuiting nerve feelings all over.

Today _wernt to er cause I woke up and out my feet on the floor stood up-leaned over and felt pressur on top of head like the veins felt warm and filled.

Dizzy attack.

lots of clear mucus like sinus drainage going in throat

when i stand had complete pressure in my veins-felt like they were explode

popping up my legs (I describe it as it feels ike its in my veins)

Shortness of breath as all this happened.

shooting feelings into heart area from the lower left side.

Er visit-

did ekg-nothing but My heart rate went up when I stood up-they clamied probably dehydration-I wasnt

Vein issue they did a sonogram up veins in legs---no DVT they wanted to make sure no clot

Did some test to see my clotting time---it was normal

Cbc-normal

flushed on my face,very fatigued.I feel a wreck.

Legs twitching

All we dont know what to tell you----it sounds like autoimmune- in particular-Lupus or MS

guys--what if it is autoimmune now due to lyme?

i mean it does sound like it.

i mean yes i know i have lyme but i am getting hopeless even more and thinking "i know but maybe now the switch is turned on and wont turn off"

I am so exhausted....no rest ever, constant symptoms, constant pain, arthritis vein issues, nerve issues, burning in body issues all of it wont stop unless they stop it and the only way would be steroids wich obviously is gonna hurt me cause of lyme.

so what do I do....if it dont stop soon.

Its been turned on constant for months now.

7 months straight.

Im losing weight.I look terrible.

Im kinda bony and never was.

Im not right and I feel Im gonna go nuts.

It just doesnt stop!!!!

even pain meds make me symptomatic.

sleep meds....Im also becoming resisitant too.

If I cant rest ever....I wont ever heal

Im concerned today and need some feedback.

I feel like I have no joints left in my back....like its been eaten away and I fear its forever.

I am now reading about osteoarthritis and think I have it

help!!!! Im not right today

You may need some anxiety meds to help for now. But if you have not had a good work up from your doctor, you really need one now. Let he or she help you and take things one step at a time. There must be some way to quell your pain.

Tell your doc how badly you are hurting and let he or she be the one to find a way to stop your pain. But you cannot tackle every aspect of this all at once.

I'm so sorry your are going through this. I know I have been very terrified by my lyme symptoms at times and Im sure many others here at this site have as well.

Let us know how things go for you. But get the help of a good MD, assuming you are not with an LLMD at the moment.

When I was 1st. DXed, before I knew I had LD & Co. I was told I had an auto-immune disorder. My ANA was positive (speckled) & my ESR was highly elevated. (82?) Although, I came up negative for every disorder that they tested me for. In the mean time, I got into an LLMD & was DXed with LD & Co.

After I found out I had all these infections, my LLMD tackled the auto-immune response. Testing me for TB, Sarcoidosis, ALS, blah, blah, blah. The final DX came down to MS. (I'M NOT SAYING YOU HAVE MS!!!)

If I've learned 1 thing through all of this, if someone is DXed with an auto-immune disorder, there is "ALWAYS" 1 underlying factor.... Mycoplasma!!! Type in Mycoplasma & any auto-immune disorder you can think of, there will always be 1000's of links verifying the connection between the 2. LUPUS, RA, ALS, MS... you name it!!!

I would "NOT" treat yourself any different than you would if you were treating for LD & Co. My Neuro demanded that I start steroids & immune suppressor meds the minute we got the test results back. I had a CD57 just done by my LLMD & my number was at 28. I told him my immune system was already suppressed enough as it was & I refused to take them.

The Neuro told me I was going to end up crippled, in a wheel chair & bedridden. I told him, "Funny, that's what you told me was going to happen anyways, if I accepted your care? I'll take my chances with alternative treatment."

Always remember... there's no money to be made for the DRs./CDC/FDA in a $10 a month bottle of ABXs or herbal remedies. If a Dr. tells you, "We don't know what causes it?', immediately think "STEALTH INFECTION &/or CANDIDA".

I pray you are able to find the answers/help you are looking for & you are able to get the treatment you so desperately need. Best wishes!!!