Lyme Disease Support Group

benefits due to a moderate to severe case of neurological lyme

disease. I feel a little strange about the whole thing. I'm not sure

whether to be thankful or laugh or cry at the situation.

What I've decided is that I'm actually kind of mad. A Social Security

judge was able to recognize how debilitating lyme disease can be, but

not necessarily most of the rest of the world including some family

members and friends.

A close girlfriend of mine was very recently diagnosed with lyme

disease and I've watched as she now struggles with the idea that her

small kids may be infected. She went to her pediatrician last week to

request a Western Blot Test and managed to keep her cool as that

doctor yelled at her, refused her request and slammed the door behind

her.

It's finally time for me to do something if I can. There is no support

group as far as I can tell in the Cambridge/Somerville/Boston area.

I'd like to take that challenge on, but am unsure of where to begin.

Would anyone be able to give some feedback about the process or how to

start?

I have been getting up the nerve all day to try and write "my

story" down and start by sending it to my family. I feel that I have

to begin to feel more comfortable talking about this stuff. I have

a very hard time getting it out without tripping all over my thoughts,

without severe panic, but it's too important and I am too mad, which

is a great motivator Thanks so much, Klipper

Thank you SO much for this information. It seemed unlikely to me that there wouldn't be a Boston group already, but I just couldn't find it!

Also, THANK YOU VERY MUCH BettyG for all of your efforts to support me and all of us here.

You are an angel. I look up to you, as a fellow neuro Lyme person, pray for you and pray that I will have the have the ability to put one thought

in front of another to better help others one day soon.

Thank you again,

Klipper

one day soon.