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benniferobin Posts: 354
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i have been taking mepron/azith for 2.5 months now and still herx after every dose (head pressure, lightheaded, dizzy, cognitive, etc) how long until i don't herx from it anymore? thanks! jennifer ***in good health, jen***
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beeincharge Posts: 436
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Just curious, but is the head pressure a babesia symptom? I have Babesia, we haven't started treating it yet. I have had a tremendous amount of head pressure, especially when I lean forward, for a long time now. I wondered about intracranial hypertension, but I think I would be relieved to find out it may be babesia. Thank you for your response to my post regarding minocycline. I will ask about it! Dxd March 2012 with Lyme, Babesia, and suspected Bartonella, after suffering for 4 years, and possibly having it even longer. Same as most others, I have suffered with a long list of terrible symptoms.
Also have POTS, RA and Hashimoto's Thyroiditis. Working with a LLMD. |
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purpleyogamat Posts: 2067
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Hmmm... Babesia is a hard one to kill. One of the hardest.... and is one of the longest to treat. Could it be that your dose is too high? I know with Mepron people have very diverse reactions: Either it works REALLY well and they need a lower dose, it works well at the normal dose, or it doesn't work and people need a higher dose. So maybe as your doc? But as for the herx - I'd say it takes at least 4 months to start noticing some improvement. And even then - my improvement is slow and varies daily. *big hugs* for you, Jen..... Sending you healing vibes. purple Group Leader
Lyme Warrior!
Lyme & MSIDS (Multi-Systemic Infectious Disease Syndrome)
I am not a doctor. Any information offered is based on my experience and personal knowledge. Please always refer to your doctor or other healthcare professional for medical advice.
My story can be found on my profile. |
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benniferobin Posts: 354
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thanks purple!! apparently it works really well hahahaa except that i haven't really felt the benefits yet as much as the herxes! i am taking one tsp twice daily. 600 mg azith. and now sida acuta. i am pretty sure the sida acuta just intensifies the mepron. i can really feel it hit my head after i take it, within the hour. might have to back off of sida acuta if i can't handle both, but really wanted to try to knock more out  are you still seeing improvements? hope so!!! jen ***in good health, jen*** |
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WiscLamLymie Posts: 1325
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Hey Jen, It took me 4 solid months of trx for Babs before I felt any improvement of sx. Keep going, this is a long haul to ride out, but you can do it. Lauren Was diagnosed with Autonomic Disorder, POTS, Interstitial Cystitis, and Fibromyalgia. True story is I have late stage Lyme which has caused these things. Just began the fight in October 2011 (have been full-blown Lyme since Sept. 5, 2010), and WILL be victorious! Positive bands: IgG 41 and 60; IgM 23 and 41. CDC positive!
Not a doctor, not anyone of any legal standing... just someone on the search.
(Translation: Please do not take anything I say as medical advice. Always see your doctor when needing medical advice.) |
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benniferobin Posts: 354
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thanks lauren!!! i forget, do you have the awful head symptoms of babs or more of the air hunger? ***in good health, jen*** |
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WiscLamLymie Posts: 1325
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BOTH. I would say that I have more cardiac issues, then head things. (air hunger goes with cardiac...) But maybe they fight for top billing. who knows? ??? Was diagnosed with Autonomic Disorder, POTS, Interstitial Cystitis, and Fibromyalgia. True story is I have late stage Lyme which has caused these things. Just began the fight in October 2011 (have been full-blown Lyme since Sept. 5, 2010), and WILL be victorious! Positive bands: IgG 41 and 60; IgM 23 and 41. CDC positive!
Not a doctor, not anyone of any legal standing... just someone on the search.
(Translation: Please do not take anything I say as medical advice. Always see your doctor when needing medical advice.) |
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benniferobin Posts: 354
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lauren how long have you been treating babs now and have you noticed improvement yet? you are taking alinia right? ***in good health, jen*** |
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WiscLamLymie Posts: 1325
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Since January. And I've been on Alinia and then added in Artimisinin after about a month I think. I will be switching over to Malarone this week actually. Alinia tends to fizzle, and I've gotten my babs load down a bit, so we are switching over to keep this treatment going strong. Lauren Was diagnosed with Autonomic Disorder, POTS, Interstitial Cystitis, and Fibromyalgia. True story is I have late stage Lyme which has caused these things. Just began the fight in October 2011 (have been full-blown Lyme since Sept. 5, 2010), and WILL be victorious! Positive bands: IgG 41 and 60; IgM 23 and 41. CDC positive!
Not a doctor, not anyone of any legal standing... just someone on the search.
(Translation: Please do not take anything I say as medical advice. Always see your doctor when needing medical advice.) |
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benniferobin Posts: 354
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do you feel like you are seeing results then? ***in good health, jen*** |
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