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Lyme Disease ForumsGeneral & SupportAre Antibiotics Really the Answer?
04/30/2012 08:02 AM
pampe
pampe
 
Posts: 1272
Group Leader

precious, that link didn't work....

and using the CDC as a source is rather confusing since they don't even accept Chronic Borreliosis as a disease.

http://www.cdc.gov/lyme/postLDS/

Pam
Group Leader

(I am not a doctor. I am not involved with insurance or the government. Any advice I give is purely from my own experience and/or research. Always discuss your healthcare concerns with an appropriate medical professional.)
~~
2003 BB IGG/IGM + (told it was negative)
~~
May, 2012 IgeneX (CDC positive)
~~~~
MTHFR= homozygous A1298C
~~~~~~
October 2012 WB Igenex CDC Positive
~~~~~
Last WB (2/2013):
CDC positive
~~~
My story can be found on the Group Leaders page.
Reply

04/30/2012 09:08 AM  Top
runner64
 
Posts: 237
Member

The CDC doesn't tell the truth.

That excerpt is another reason to start drugging people for autoimmune symptoms when they have lymes disease. The expert lyme doctors understand fully these symptoms are from active bacteria.

An excerpt from the link as posted above:

"Doctors believe that certain people that are infected with the borrelia bacteria are predisposed to develop an autoimmune response that contributes to their symptoms."

With short treatment on late stage lymes of course they are going to have symptoms from the pathogens. They're too active.

Not a predisposed autoimmune disease. But it's twisted through this group trying to illustrate a different type of disease cropped up from a lyme catalyst. I can't believe they even wrote that.

*(Many scientist have proven most of these autoimmune responses are pathogen, viral etc. infections anyway. Some toxicity responses. Info buried as cures do not make money but incurable autoimmune diseases requiring lifetime meds to manage the symptoms of infection do.)

Regardless of treatment opinions we have that differ on boards with pharma ABX's and herbals, those of us that understand lymes know that reference is completely dishonest. If late stage the short time intervals do nothing.

Govt health sites. The Govt gets funded by the pharmaceutical industry. Congress members the whole nine yard. It's all public record. They make a fortune. One arena example: The contracts the Pharma co's have with the govt putting the troops on psychotropics. Big business.

If they can keep people sick on meds for life controlling symptoms of which they mislead above as autoimmune disease when it's continuing lyme disease, many stand to profit. The individual declines with no lyme treatment.

I personally find value in your herbal approach Precious, but I find that whole CDC article very damaging for people that have late stage chronic lyme disease. Twisting the truth. Respectfully, just my opinion as well.

Post edited by: runner64, at: 04/30/2012 10:18 AM

First year Mar 2012-2013 on 6 plant abx only.Second year had to add pharma abx in conjunction.Physical brain/head/eye symptomatic too severe and excrutiating "just coping with the physicality feeling infection in cns thru brain, and brain overprocessing with no sleep daily" rendering me non functional since Oct 2010. Can't read a book, follow programs properly, stutter talking due to the "physical feeling and interference in head." Stuttering less with more coming down since pharma abx added.

It's slowly helping. I dry sauna every other day/colonics daily.Very strict diet.

Sida Acuta-babs/bart*Houttunyia-bart*Stephania-lyme/bart*Andrographis-lyme*Cat's Claw-lyme*Japanese Knotweed*lyme/bart*Artminisin-babs*Serrapeptese-biofilm* GSE-Cysts*

Sporadic severe hits of acute pain in body/joints/bone pain & face/head/brain/bone & nerve pain 95% healed/gone from plant abx only. 5% that is left is rare and not severe only in right forearm bone and around left extra orbital eyebone.Body flutters less.Chronic acute head/eyeball pressure gone from plant abx in first year from plant abx only.Ammonia feel inside head mostly gone from plant abx only.Visual distortion gone from plant abx only.BUT,brain/head/eyeballs still BAD/chronic/acute which is why I started pharma abx in conjunction because this is still severe & won't come down enough>>>Infection/brain encephalitis (brain inflammation somewhat less now) feel inside head,wooshing,rage/brain overstimulation and over processing thoughts too fast,chronic. NON cortisol related, it's simply pathogen load causing overstimulation. Still cope daily with brain physicality and non functional. Hard head hit. Debilitating insomnia.

Added Bart/Lyme pharma abx = Apr 13 zithromax in conjunction with my 6 plant abx & May 2 added rifampin. (I dose very aggressively in tsp of my homemade tincture plus drink tea decoctions of my plants and herx daily on both plant and pharma abx. No normal baseline yet but coming.)

04/30/2012 11:35 AM  Top
bbl2011
 
Posts: 167
Member

I absolutely agree with you runner64
I am not a doctor, nor do I play one on TV. All comments are based on my personal experience or opinion.

* Had a band 23 on Western Blot thru LabCorp 2012
* Bands 39 and 41 thru Clongen Labs 2012
* My Lyme ID test ALL positive thru Neuroscience.
* Have been infected for possibly 10 years
* CD57 60
* My symptoms have all been cognitive (neurolyme), but I have always seemingly stayed functional (even if it didn't feel like that on the inside!).

http://ilads.org/lyme_disease/Psychiatric_Brochure_08_08.pdf

* Have not started treatment yet (as of 4/2012)
* Blessed that the only pain is in my right knee joint, occasionally left.

*I always wonder, how many ppl are walking around, with my type of Lyme infection, just being put on paxil...

04/30/2012 01:57 PM  Top
pampe
pampe
 
Posts: 1272
Group Leader

Um, Alex.....if POST-TREATMENT is the operative word....what am I?

I was never treated but I have Lyme for AL LEAST 10-15 years....probably more like 30.

SO......what does the CDC say about someone who has NOT been treated and has Lyme??

Pam
Group Leader

(I am not a doctor. I am not involved with insurance or the government. Any advice I give is purely from my own experience and/or research. Always discuss your healthcare concerns with an appropriate medical professional.)
~~
2003 BB IGG/IGM + (told it was negative)
~~
May, 2012 IgeneX (CDC positive)
~~~~
MTHFR= homozygous A1298C
~~~~~~
October 2012 WB Igenex CDC Positive
~~~~~
Last WB (2/2013):
CDC positive
~~~
My story can be found on the Group Leaders page.

04/30/2012 02:39 PM  Top
mem4974

There are plenty of people who have been healed on long-term antibiotics.

As for the person arguing that 99% of people diagnosed with Lyme are still suffering. I would find it amusing to know where you got this statistic from. There are plenty of stories online (both here and elsewhere) where people have completely recovered from this disease.

Considering the severity of the illness that people here are dealing with, I think it's important to stress a positive atmosphere and continue working forward to recovery. I don't see how quoting misinformed CDC statements and arguing that Lyme is incurable work towards these objectives.

Post edited by: renguin22, at: 04/30/2012 02:39 PM


04/30/2012 03:46 PM  Top
pampe
pampe
 
Posts: 1272
Group Leader

No, they use "post-treatment"....period

Where do you get your facts? "the number of people who don't get proper treatment is ..."

Could you please start posting links to what isn't OPINION?

Thanks.

Post edited by: pampe, at: 04/30/2012 03:47 PM

Post edited by: pampe, at: 04/30/2012 04:02 PM

Pam
Group Leader

(I am not a doctor. I am not involved with insurance or the government. Any advice I give is purely from my own experience and/or research. Always discuss your healthcare concerns with an appropriate medical professional.)
~~
2003 BB IGG/IGM + (told it was negative)
~~
May, 2012 IgeneX (CDC positive)
~~~~
MTHFR= homozygous A1298C
~~~~~~
October 2012 WB Igenex CDC Positive
~~~~~
Last WB (2/2013):
CDC positive
~~~
My story can be found on the Group Leaders page.

04/30/2012 05:23 PM  Top
bbl2011
 
Posts: 167
Member

I see precious007 is up for review. I am totally up for open dialog and different opinions, but the information she was quoting from the CDC is exactly the kind of misinformation that got us into this whole mess to begin with.

I agree with another member in another discussion that was started today. After the Dr. Phil show I have seen some suspicious activity on here. ppl making unsubstantiated claims that herbs are not only more effective than antibiotics, but that they find and kill ALL of the Lyme.

Again, I think herbs either alone or in combination CAN cure Lyme. I am all for any treatment, as long as it's substantiated by science and produces results and doesn't hurt people. While I haven't looked into the herb side yet (and plan to this week) I think what got me upset was the 'way' the herbal protocol was being 'advertised' at us.

I get very touchy when I feel like ppl have ulterior motives. These people on this forum (and many much MUCH worse than myself) are suffering dearly. The last thing they need is people praying on them.

I am not a doctor, nor do I play one on TV. All comments are based on my personal experience or opinion.

* Had a band 23 on Western Blot thru LabCorp 2012
* Bands 39 and 41 thru Clongen Labs 2012
* My Lyme ID test ALL positive thru Neuroscience.
* Have been infected for possibly 10 years
* CD57 60
* My symptoms have all been cognitive (neurolyme), but I have always seemingly stayed functional (even if it didn't feel like that on the inside!).

http://ilads.org/lyme_disease/Psychiatric_Brochure_08_08.pdf

* Have not started treatment yet (as of 4/2012)
* Blessed that the only pain is in my right knee joint, occasionally left.

*I always wonder, how many ppl are walking around, with my type of Lyme infection, just being put on paxil...
Reply

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