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jomomma Posts: 372
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This may be geared toward the ladies....... I just received a call from my gyno dr today & I was told he believes I have adenomyosis & a radical hysterectomy would be the only treatment. BUT since I have Lyme I might find I still have pelvic pain because Lyme is one of those diseases that can cause pain in that area & the surgery may not help......... has anyone else dealt with this, or a loved one? What did you do? SiCk & TiReD oF bEiNg SiCk & TiReD!!!!!!!!!! ;)
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tootsieroll Posts: 232
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I hope someone can help with this. I just had a D&C and a hysterectomy yesterday to get rid of a uterine polyp and I hope that having Lyme will not make my recovery difficult. The procedure itself was very easy and I felt very GOOD after the surgery but today I feel some dull pain in my pelvic region. I just wanted to hear some more stories too. Igenex IgM result Positive
CDC/NYS result Negative
30 kDa. +
**31 kDa. ++
**34 kDa. IND
**39 kDa. IND
**41 kDa. +++
Igenex-IgG result Positive
CDC/NYS result Negative
**39 kDa. +
**41 kDa. +++
58 kDa. +
Symptoms:Mostly neurological/cognitive issues (speech,reading,writing,decision making effected), fatigue,panic attacks, OCD, brain fog, memory, spatial difficulties, depression, hormone problems, IBS, insomnia.
Pinella, Burbur, Grapefruit seed extract. Started samento and will banderol in near future. |
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Avs1823 Posts: 261
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i feel that I'm headed toward a hysterectomy in my near future. I've had problems since high school. looking back I'm sure some of it is/was lyme related. I've been on hormones since early 20's, late 40's now. things go ok as long as I stay on the shots, but insurance runs out in July so I'll be in big trouble. Last yr dr said I def qualify for one but as long as I felt ok she'd put it off. now I have to decide which will be worse, no hormones which could mean several more yrs of misery or hyst and a month or so of being sore and healing. can't feel much worse than I do now most of the time. Any suggestions???? I've always told the male dr's that want to take me off the shots that I will go off as long as they realize that when I do postal they will be the first person I go after. amazing how they always write me another yrs worth. Have had a female dr for the last several yrs and she has no problem w them. Said I could stay on them clear thru menopause if I want, which I haven't even started..... |
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jomomma Posts: 372
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I had an ablation done 3 years ago which has helped a lot, but this one I am just not sure of, I am worried if I do it the pain will remain &I will have some other "issues" that I am not already dealing with. Prayers tootsieroll for a quick & good recovery & Avs1823 I just don't know what to do, so prayers for you too that you make the right decision! SiCk & TiReD oF bEiNg SiCk & TiReD!!!!!!!!!! ;) |
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Bettyg Posts: 26490
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jo,i don't know what the ado word means. i did have a hysterectomy leaving ovaries 15-20 yrs. ago. PELVIC PAIN STILL THERE even after removing huge FIBROIDS, etc. after EVERY surgery, i get much worse also. had 13-14 surgerires. bettyg, leader BettyG, IOWA ACTIVIST
RETIRED llmd coordinator of 6 yrs; group leader
NOTE: I DO "NOT" USE CHAT thanks!
**************************************
NO INFORMATION SHOULD BE CONSIDERED MEDICAL ADVICE.
please see my WELCOME LETTER/BEGINNER'S LINKS with important links/info galore :)
http://www.mdjunction.com/forums/lyme-disease-support-forums/general-support/2356916-bettygs-welcome-letter-wgood-beginner-links-
Any information provided should not be used to take the place of advice from your personal physician or other professional.
Information on those sites is the opinion of those who publish the sites and is NOT necessarily that of BettyG.
43 yrs. chronic lyme; 35 yrs. misdiagnosed by 40-50 drs. unacceptable; see my profile for more. |
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jomomma Posts: 372
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Thank you BettyG, that is my fear! I am leaning toward NOT having it done right now. The "ado" word means the blood is getting trapped or is trapped in the muscle of the uterus and can't get out & is causing the pain SiCk & TiReD oF bEiNg SiCk & TiReD!!!!!!!!!! ;) |
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beeincharge Posts: 436
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I also have adenomyosis, discovered just before Christmas. My doctor is taking the "watchful waiting" approach right now. I am trying meds right now, but can't tell how well they are working due to just beginning lyme treatment and tons of new strange symptoms appearing. Post edited by: beeincharge, at: 04/27/2012 05:12 AM Dxd March 2012 with Lyme, Babesia, and suspected Bartonella, after suffering for 4 years, and possibly having it even longer. Same as most others, I have suffered with a long list of terrible symptoms.
Also have POTS, RA and Hashimoto's Thyroiditis. Working with a LLMD. |
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Teeb Posts: 10
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Well...I have been living with adenomyosis for several years now. It causes me only a moderate amount of pain, so I've been putting off the surgery. Apparently hysterectomy is the only cure, but I guess it depends on the individual's level of discomfort. If it's bearable, you might want to wait. In the meantime, with regard to some of the symptoms posted by others in this thread, I want to ask: are you aware of the symptoms of estrogen dominance? Many of them are very similar to the symptoms of Lyme. Here's a link to a site from Dr. John Lee, probably the most well-known expert on this subject. http://www.johnleemd.com/store/estrogen_dom.html As I understand it, our bodies, as we age, continue producing estrogen at fairly high levels, PLUS we are exposed to xenoestrogens in daily life through things like food additives, pesticides, plastics, drinking water and even cosmetic products. Our progesterone levels drop off as we age, and so we get out of balance -- with far more estrogen than progesterone circulating in our systems. There are doctors who will test you for all of your hormone levels and who can then direct a pharmacy to make a compound of natural, plant-based ingredients specialized just for your individual levels. Interestingly, the doctors who were recommended to me as LLMDs in my area when I joined this group last week do just that kind of testing and compounding. If you are already seeing a LLMD, you might ask them whether or not they have the expertise to test your hormone levels too. If you're having bad symptoms, having your estrogen level tested and balanced might help. Certainly if your hormones are out of wack AND you have Lyme, that's a double whammy! One thing I have tried on my own with some success is Pro-Gest, a progesterone cream available at most health food stores. Good luck to you all! |
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jomomma Posts: 372
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I have that cream, I guess it only works if you use it!  Thank you for the link I am going to look at it now. My pain comes & goes, right now it isn't that bad but if we were having this talk over 2 months ago I would be setting up my surgery. SiCk & TiReD oF bEiNg SiCk & TiReD!!!!!!!!!! ;) |
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jomomma Posts: 372
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O my, one more thing to add to the list of possibilities. I have gone natural & I am going o make an apt to see if this is something we can address 1st before I add another surgery to my list! Thank you for the link! Post edited by: jomomma, at: 04/27/2012 06:51 AM SiCk & TiReD oF bEiNg SiCk & TiReD!!!!!!!!!! ;) |
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