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Lyme Disease ForumsGeneral & SupportVision Loss and Intense Migraines
04/18/2012 08:07 AM
glennseiler
Posts: 6
New Member

Anyone out there have any ideas about dealing with vision loss and intense megraine headaches

behind the eye and numbness around the eye.

Had Lyme many years now, recently diagnosed after months of research (South Africa not familiar with Lyme).

Many symptoms getting better with treatment but headaches are more intense now and unbearable.

Voltaren works - but very temporary and I don't want to be taking lots of pain killers as they make me feel nauseous.

Post edited by: glennseiler, at: 04/19/2012 03:36 AM

Reply

04/18/2012 09:00 AM  Top
amycwusa1976
 
Posts: 45
Member

I have had INSANE migraines since dealing with Lyme. I always had headaches, but now they are crazy.

i attacked them with everything I could think of- accupuncture, chiropractic. I saw an atlas chiropractic specialist. That really gave me immediate relief.

And of course treating the lyme has gotten them better in time.

With the backaches, many times my headaches start in my upper back, shoulders and then spread to my head. I get consistent deep tissue massage.

A


04/18/2012 09:21 AM  Top
glennseiler
Posts: 6
New Member

Dont get the back pains much anymore,

even though I had major problems with my back when I played rugby and golf.

My neck is a different story - related to migraines though... can be so painfull at times.

But you know the story. Pain killers are the main source of temporary relief but try and stay clear for them unless it's just too unbearable.

Post edited by: glennseiler, at: 04/19/2012 03:33 AM


04/18/2012 09:32 AM  Top
irenwill
irenwill
 
Posts: 1849
VIP Member

Are the migraines like an ice pick? could be bartonella.

I've had terrible migraines - the ice pick ones tend to be bartonella, others from babesia. Back of head is a lyme headache.

There's a good thread on here somewhere called "where is your headache" - if you search for that along with lyme, you should find it. Good info.

I am not a doctor, just a patient striving for recovery and hoping to offer support to others, too! Many blessings to you!

Any information offered is just sharing my experience and friendly advice, NOT a prescription. You should use your own judgment and discretion when making health care decisions.

Previous discussions I participated in:
Hi all
Lyme family
Dr. Phil to discuss Lymes today

04/18/2012 09:44 AM  Top
glennseiler
Posts: 6
New Member

Right behind my left eye. Worse than any joint pain.....

04/19/2012 03:20 AM  Top
Bettyg
 
Posts: 26548
VIP Member
I'm an Advocate

hi glenn Wink

please go to my WELCOME LETTER in my signature link

read DR. CORSON'S HEADACHE ARTICLE; extremely detailed! i thin that's what someone else mentioned above!! you'll learn alot.

vision loss; have you tried NONI FRUIT DRINK? it's suposed to help tremendously.

glenn, please go back to your 1st posts and edit them breaking them up into shorter paragraphs using my guidelines below and hitting enter twice after each short paragraph.

helps us severe neuro lyme folks to be able to read/comprehend all your posts then. big thanks!

bettyg, leader

********

Welcome to MD JUNCTION! I'm so glad you found us! You’ve come to the right place for education and support!

Private messages DELETED in 30 days!

ARCHIVE, upper right!

My WELCOME LETTER is posted at the top of SUPPORT FORUM in sticky pin full of good info and HYPERLINKS ready to be read.

http://www.mdjunction.com/forums/lyme-disease-support- forums/general-support/2356916-bettygs-welcome-letter-wgood- beginner-links-

The most important things are at the top; MUST READ and print off as mentioned there already to start your lyme/co-infection journey with us all.

The 1st things to do are:

• JOIN LYME BOARD;

• Post in LLMD REQUEST FORUM for a LYME LITERATE md; see my welcome letter and the INSTRUCTIONS there if you are SPECIALLY FROM CALIF. Where it’s broken down into 8 NAMED AREAS.

• You’ll need to give me my calif. NAMED area where you live in the areas shown there in SUBJECT LINE plus if it’s for ADULT or a child; we need age of CHILD; some llmds have AGE restrictions.

OTHER STATES will show the SPECIFIC NAME OF THEIR STATE and closest, largest city to them in SUBJECT line plus adult or child; UNDER 21; we need their age!.

http://www.mdjunction.com/forums/lyme-disease-support- forums/llmd-info/Itemid=217/func=post/do=reply

• Also, I’ll need the following info in your request post:

in your llmd request, please EDIT and add more info ok.

Are you UNDER AGE 21;; if yes, I need your age shown as some of our llmds have AGE RESTRICTIONS; thanks!

how long you've been sick

if you've tested for lyme/co-infections;

which labs doing work for which specific test, etc.

did you have western blot igm/igg done by igenex?

if yes, what were the POSITIVE & INDETERMINDED numbers; NOT negatives.

thanks for understanding; just EDIT your post. you can find all by going to left MY DISCUSSIONS, click on it.

after you add more, i'll send you names ok.

just send me a PRIVATE MESSAGE left side, giving me the direct link to come to here, and i'll send you the names ok big thanks.

Betty’s suggested posting guidelines:

NO ALL CAPS POSTS; they are illegible to me/other neuro folks!

Many of members have neuro lyme, and it is hard to read long solid block text and be able to comprehend; example, me, 42 yrs. neuro chronic lyme, so we are UNABLE to comprehend and read. Thank you for helping us help YOU

please post in short paragraphs like you see below or look at a few other posts, but we neuro folks need them short.

1-2 sentences MAX per paragraph and hit ENTER TWICE to doublespace between each paragraph. We’ve lost our comprehension skills to read solid block text.

we neuros lose our train of thought if the sentence is broken up in the middle; so please keep an ENTIRE sentence together as ONE. hugs

For easier reading, please edit your post. You can break up your longer paragraphs into smaller paragraphs. Please hit

ENTER key twice after each paragraph.

Go to left hand corner; click edit send. Then go to bottom and click SUBSCRIBE TO THIS DISCUSSION.

Thank you for posting in a manner that makes it easier for all to read and help others.

Bettyg, llmd coordinator/group leader/Iowa activist

BettyG, IOWA ACTIVIST
RETIRED llmd coordinator of 6 yrs; group leader

NOTE: I DO "NOT" USE CHAT thanks!
**************************************

NO INFORMATION SHOULD BE CONSIDERED MEDICAL ADVICE.
please see my WELCOME LETTER/BEGINNER'S LINKS with important links/info galore :)

http://www.mdjunction.com/forums/lyme-disease-support-forums/general-support/2356916-bettygs-welcome-letter-wgood-beginner-links-

Any information provided should not be used to take the place of advice from your personal physician or other professional.

Information on those sites is the opinion of those who publish the sites and is NOT necessarily that of BettyG.

43 yrs. chronic lyme; 35 yrs. misdiagnosed by 40-50 drs. unacceptable; see my profile for more.

04/19/2012 03:37 AM  Top
glennseiler
Posts: 6
New Member

I tried - hope it is better. Need to sleep now if i can. Back tomorrow, Thanks Smile

04/19/2012 04:21 AM  Top
runner64
 
Posts: 235
Member

My eyes have been a primary pain problem. Brain pain and "function" and eye pain. I cried a lot last summer from the pain. And I saw an opthomalogist. Found nothing.

And brain pain but NOT normal headachey or migraine. Completely different like spot or strips where it feels like an open wound.

We have nerves in blood vessels that go through gray matter. A brain injury doctor educated me on that.

As well, the "hot spots" I get on skin I am thinking if I feel that on outside, these eye and brain pains "inside" in PART must what the bugs drilling and inflaming feels like.

Back to eyes, left side behind eye was bad bad bad for a long time. If felt like razor blade pain behind eye. Raw etc.

Calmed down somewhat but my eye balls and tissue surrounding eyes, inside and out, are very raw in tissue like wound pain. Not kidding. Feels infected.

So, I feel for you. My vision blurry more left side. I ONLY just found out I had neuro lymes, the usual getting sick not knowing why. So my "herbs" only treatment is almost in.

I'm glad you're noticing some relief from your treatment. I don't take painkillers either. Sorry you. xo

Post edited by: runner64, at: 04/19/2012 04:23 AM

First year Mar 2012-2013 on 6 plant abx only.Second year had to add pharma abx in conjunction.Physical brain/head/eye symptomatic too severe and excrutiating "just coping with the physicality feeling infection in cns thru brain, and brain overprocessing with no sleep daily" rendering me non functional since Oct 2010. Can't read a book, follow programs properly, stutter talking due to the "physical feeling and interference in head." Stuttering less with more coming down since pharma abx added.

It's slowly helping. I dry sauna every other day/colonics daily.Very strict diet.

Sida Acuta-babs/bart*Houttunyia-bart*Stephania-lyme/bart*Andrographis-lyme*Cat's Claw-lyme*Japanese Knotweed*lyme/bart*Artminisin-babs*Serrapeptese-biofilm* GSE-Cysts*

Sporadic severe hits of acute pain in body/joints/bone pain & face/head/brain/bone & nerve pain 95% healed/gone from plant abx only. 5% that is left is rare and not severe only in right forearm bone and around left extra orbital eyebone.Body flutters less.Chronic acute head/eyeball pressure gone from plant abx in first year from plant abx only.Ammonia feel inside head mostly gone from plant abx only.Visual distortion gone from plant abx only.BUT,brain/head/eyeballs still BAD/chronic/acute which is why I started pharma abx in conjunction because this is still severe & won't come down enough>>>Infection/brain encephalitis (brain inflammation somewhat less now) feel inside head,wooshing,rage/brain overstimulation and over processing thoughts too fast,chronic. NON cortisol related, it's simply pathogen load causing overstimulation. Still cope daily with brain physicality and non functional. Hard head hit. Debilitating insomnia.

Added Bart/Lyme pharma abx = Apr 13 zithromax in conjunction with my 6 plant abx & May 2 added rifampin. (I dose very aggressively in tsp of my homemade tincture plus drink tea decoctions of my plants and herx daily on both plant and pharma abx. No normal baseline yet but coming.)

04/19/2012 06:39 AM  Top
glennseiler
Posts: 6
New Member

Thanks for reply... glad your symptoms seem to be under control ! All the best. Cheerful
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