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tomboykimi"What MD Junction means to me is a place where i can feel like im not alone. As someone with something as rare as hydrocephalus, it feels like im the only one in the world with it. When i came to MD, its like everyone has it. It doesnt feel like im alone. And that people need to hold up a sign to say what i have, because people know. And they understand. I can get questions answered from people who have been through it rather than from doctors or people who only can tell you from a physical standpoint. THat is what MD junction means to me." (tomboykimi)

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Lyme Disease ForumsGeneral & SupportPain at base of skull
04/15/2012 02:10 PM
Minipadre
 
Posts: 85
Member

Hi everyone,

Since march of last year. Every waking moment, I have had a pain at the base of my skull where it meets my spine.

It is constant. I can't escape if and nothing I've done has helped.

I would do anything for just an hour of relief. I've heated it. Iced it. Massaged it.

Nothing. Just pain.

I also have this dull pain/pressure at the back of my head.

That and the brain fog, my head truly is the worst part on my body. It sucks.

Any thoughts or words of wisdom?

I'm reeling today... A year of inescapable pain is difficult.

Thanks everyone,

Louis

I invite anyone to message me about their experiences or hardships in the fight to get back to 100%

Hang in there, there's plenty of hope. Stanford is researching Lyme as we speak!
Reply

04/15/2012 02:17 PM  Top
Jungleland
Jungleland
 
Posts: 126
Member

Hi, I am a newbie here, but I feel your pain, literally! Mine goes from the base of my skull to the top of my head and also down my spine.

Hugs, Vickie

Igenex igm result: 04/2012
18+
23-25 IND
31++
34+
41++
58+
Igenex igg result:
34 IND
41+

Bartonella +

Previous discussions I participated in:
LLMD in Northern CA
Hi, I am new here

04/15/2012 03:58 PM  Top
amycwusa1976
 
Posts: 45
Member

Hi There,

I had the exact same thing- does your pain ever grow into headaches? Mine would develop into crushing migraines.

I will tell you what has helped me immensely-

I saw a chiropractor that specializes in Atlas Orthogonal (sp?) adjustments. I was reluactant to see ANOTHER chiro, but this actually worked. Your atlas is a tiny bone that connects your head to your spine. If this gets rotated, it can cause tons of pain.

I have been to many chiros, and they never helped my migraines. I was very skeptical.

But, with Atlas adjustments you do a lot of xrays to measure your exact head rotation, and they do not adjust you by snapping or cracking anything. I didn't think it was going to do anything, but I couldn't believe the results.

Maybe google atlas orthogonal adjustments?

Actually, 2 months ago I was in the ER a couple times, and now while I do still have neck pain and headaches, it is SO much better..

Also, I got a special pillow from the healthy back store. Silly huh? I was a stomach sleeper but they told me that was the worst for your neck. When you sleep on your stomach, and put your head on a pillow, it is really bad for you.

I would wake up with burning, searing pain in my neck. But, since getting a new pillow (which took a bit to get used to) and getting the atlas adjustments I am feeling much better.

also, since properly treating the lyme I am getting much better also.

I hope this helps. I don't know where you are, but if you are in the DC area I would be happy to pass along the name of my chiro.

Happy healing thoughts to you.


04/15/2012 04:32 PM  Top
lymeinmich
 
Posts: 1074
Member

Mini,

Hello friend! Long time no hear from.

I was hoping that meant you were well.

Check this out, If I remember she lives in CA:

http://www.mdjunction.com/forums/lyme-disease-support- forums/general-support/3648011-protomyxoa#3651456

Watch the Youtube link.

PM me after you watch it.


Previous discussions I participated in:
UTI - HELP!!!!!!!!!!
Cat's Claw?
Protomyxoa?

04/15/2012 05:44 PM  Top
WiscLamLymie
WiscLamLymie
 
Posts: 1325
Group Leader

Okay, pain at the base of the skull, neck pain, headaches... All scream Bartonella.

Do you have sore feet (bottoms, especially in the morning), lower back pain, deep muscle pain, rage, stomach issues, or streaks that look like stretch marks or varicose veins that weren't there before?

These are all Bart symptoms. I would look into that. There are great naturals and Rx that will deal with it.

Let me know. Smile

Lauren

Was diagnosed with Autonomic Disorder, POTS, Interstitial Cystitis, and Fibromyalgia. True story is I have late stage Lyme which has caused these things. Just began the fight in October 2011 (have been full-blown Lyme since Sept. 5, 2010), and WILL be victorious! Positive bands: IgG 41 and 60; IgM 23 and 41. CDC positive!

Not a doctor, not anyone of any legal standing... just someone on the search.
(Translation: Please do not take anything I say as medical advice. Always see your doctor when needing medical advice.)

Previous discussions I participated in:
Cat's Claw?
feeling incredibly lost
Blistery rash?
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