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lymeinmich Posts: 1074
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I am over a year into treatment, and now I have joint pain?? This is new. I am rather depressed that this would show up after over a year of treatment. My left hip and left knee pain is horrible. It is worse at night and keeps me awake. It feels like my hip is being drilled. My knee pain is awful too, very sharp pain like a charlie horse. I wake with stiff ring finger and pinkie on the right hand as well. I am achy during the day too but not as bad as at night. I am down to 20hrs a week at work, and when I rise from sitting at my desk, the pain is bad and it takes me a moment to start walking. I look like I'm 90, and feel even older. Could this be from the Omnicef? |
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JJ351 Posts: 698
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So sorry to hear about your joint pain  Over these past few weeks I have had worse joint pain than ever before and I am one year into treatment. I've definitely improved over this past year, but am struggling with the intense joint pain now in elbows, shoulders, knees and ankles - even fingers!!! And lower back has kicked in someting fierce - not sure what's up but saw my LLMD today and she said I am herxing. Only new change to TX was Biaxin XR so we dropped it for a few days to see if it would make a differnece. Please hang in there and do not get discsouraged - we will all get through this! Lyme is a rollercoaster - good days and bad days... Meantime, perhpas try some heat or massage or hot epsom salts baths for relief? I'm sure others will have helpful tips for you as well! HUGS to you!!! JJ - "Life isn't about waiting for the storm to pass.
It's about learning to DANCE in the rain!"
- "Sometimes the smallest step in the right direction ends up being the biggest step of your life. Tip toe if you must, but take the step."
I am not a doctor - my advice is purely my opinion which should be regarded as such. |
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Bettyg Posts: 26472
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are you on any new RX meds? how long ago started?have you ever had XRAYS taken of that area? mine showed my hip was down to bone on bone. had hip surgery 5 yrs. ago last month. butt where ball/joint are very tender; have my annual checkup this week. hugs/prayers, bettyg BettyG, IOWA ACTIVIST
RETIRED llmd coordinator of 6 yrs; group leader
NOTE: I DO "NOT" USE CHAT thanks!
**************************************
NO INFORMATION SHOULD BE CONSIDERED MEDICAL ADVICE.
please see my WELCOME LETTER/BEGINNER'S LINKS with important links/info galore :)
http://www.mdjunction.com/forums/lyme-disease-support-forums/general-support/2356916-bettygs-welcome-letter-wgood-beginner-links-
Any information provided should not be used to take the place of advice from your personal physician or other professional.
Information on those sites is the opinion of those who publish the sites and is NOT necessarily that of BettyG.
43 yrs. chronic lyme; 35 yrs. misdiagnosed by 40-50 drs. unacceptable; see my profile for more. |
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WiscLamLymie Posts: 1325
Group Leader
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I hear this a lot from other Lymies, actually. I don't know why, but it seems like the Lyme is giving a last-resort attack before it's wiped out. Bacteria have ways of communicating with each other through a hormone-type secretion. When they find enough of their kind in the same organism, they launch their attack. So if they are sensing that they are almost below that "perfect storm" number, they probably are attacking as hard as they can to keep their numbers up. This would cause lots of inflammation and joint pain. Keep up the fight. It may be that you are close to being out of the woods.  But also make sure you talk with your LLMD about it as well! Lauren Was diagnosed with Autonomic Disorder, POTS, Interstitial Cystitis, and Fibromyalgia. True story is I have late stage Lyme which has caused these things. Just began the fight in October 2011 (have been full-blown Lyme since Sept. 5, 2010), and WILL be victorious! Positive bands: IgG 41 and 60; IgM 23 and 41. CDC positive!
Not a doctor, not anyone of any legal standing... just someone on the search.
(Translation: Please do not take anything I say as medical advice. Always see your doctor when needing medical advice.) |
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wass Posts: 115
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I know that when I use herbicides on a plant it fights to propogate and survive. It uses every last bit of it's energy to try to survive, and sometimes it does! It might be the same for bacteria. Hope that's what it is and that you are close to winning! Get Well, Dave |
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lymeinmich Posts: 1074
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Betty, I recently started on Omnicef?? Dave and Lauren - I hope your are correct  |
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PerfectBones Posts: 3
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Have you tried supplementing your joints and bones? Glucosamine, Chondroitin, Microcrystalline Hydroxyapatite - all natural organics. MyPerfectBones.com |
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PerfectBones Posts: 3
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Hopefully, supplementing with organic nutrients made specifically for joint pain will help like My Perfect Joints (MyPerfectBones . com) also, stomach acid imbalances can also cause pain in joints, and Doctor's can misdiagnose the patient with something else. My Perfect Tummy is good for that. Try it for 60 days... MyPerfectBones.com |
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mlake129 Posts: 1
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Hi, I'm in Mi too and have Lyme. Wondering how you're doing now since your post back in April? I can so relate to the joint pain, swelling and hard time walking after sitting, as well as, feeling like you're 90! Nothing has helped the pain, but if you're pain free now and found something that di the job, please let me know! I just found out I have Lyme within the last 6 months and am treating it holistically, which seems to be working, but am not pain free yet and it is so hard to be patient. I'm grain and dairy free, taking a boat load of supplements to kill this stuff off, doing the infared sauna everyday, detoxing, Chiropractor and lots of emotional healing stuff. This came on I believe from a compromised immune system and severe stress. I don't even know if I was bit, but it is certainly possible. Never got the bulls eye rash. Hope you are feeling better! |
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WiscLamLymie Posts: 1325
Group Leader
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Was diagnosed with Autonomic Disorder, POTS, Interstitial Cystitis, and Fibromyalgia. True story is I have late stage Lyme which has caused these things. Just began the fight in October 2011 (have been full-blown Lyme since Sept. 5, 2010), and WILL be victorious! Positive bands: IgG 41 and 60; IgM 23 and 41. CDC positive!
Not a doctor, not anyone of any legal standing... just someone on the search.
(Translation: Please do not take anything I say as medical advice. Always see your doctor when needing medical advice.) |
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