Lyme Disease Support Group

Thanks for your feedback.

Leah

Sometimes I awaken in a state of anxiety, sometimes it just appears out of nowhere, often when stressed...and in crowded public places, especially when there is a lot of movement and noise.

You are not alone!

I asked a question of General & Support forum just the other day. My husband was not really understanding how anxiety can just occur for no reason. Apparently, it is due to the neurotoxins interfering with the brain.

Sometimes I can just slow my inner body down and breathe slow and deeply. Other times, I just have to go somewhere quiet and often dimmed or dark.

Take care and wishing the best to you!

Love Leah

I've been through almost exactly what you have.

A year ago, I was so sick from Lyme that I was on several medications (I was misdiagnosed) and was having so many side effects, I could ever tell; was I sick from an illness or side effects from meds?

Anxiety, crushing panic attacks really, was absolutely my worst symptom of Lyme. It would take over my body and last for hours.

There were a few meds I came off of before being diagnosed. It wasn't easy, but I made it.

I've been treated for Lyme for 3 months. I have discontinued several meds in the process, it's been the greatest challenge of my life, but I'm much better now.

If I could go back, I definitely would have treated the lyme first. But, I personally believe that before diagnosis, it's easy for docs to treat symptoms with unnecessary meds. The sooner you can rid your body of those meds, you may feel better.

I am NOT saying your med is not needed- I am just speaking about my experience. Docs had me on anti-depressants, sleep meds, anti-anxiety, etc. The whole time the lyme raged inside me.

I hope you feel much better. Lyme-driven anxiety is ust terrible, but you WILL get better. Remember it is just the disease.

A

When I wake up in the morning, my brain instantly turns on and I cannot go back to sleep. I used to be the person who would go back to sleep no matter what! It is so annoying.

I'm doing much better now, but still struggling with ovrall craptastic energy and emotions. But I am functioning in the world and that is something to be grateful for. It's like my general "quality of life" expectations are so much lower now. I do hope I will feel joyful again. I miss warm fuzzies.

So yes, I would say, treat the Lyme, specifically Babesia, and your anxiety will get better. In the meantime, use the xanax, or whatever it is. There will come a time when you won't need it anymore.

I take Ativan when I can't breath or if I am getting super upset, flustered, angry.

I am hoping the Lyme treatment will also end most if not all of it someday!

Horrible anxiety, and never ever had anxiety b4 Lyme.

Xanax did not work for me. I had horrible crashes when it wore off. It made me feel worse than b4 taking it, so I felt I needed another, and so on and so on...

Recently my LLMD gave me Valium. That seems to work a bit better for me, no highs and lows.

Most days I just try to deal w/o the meds.

I have to believe that this too shall pass.

While I have no experience with meds and am about to start treatment in the next month or so, one of my few symptoms was crippling anxiety/ social anxiety etc.

I would get anxiety/ panic attacks that didn't just last 30 min to an hour, they would last almost SEVEN DAYS at a time.

The only time my head didn't feel like my head/ eyes weren't going to explode etc was when I was sleeping.

Mild every day stresses exacerbated it majorly.

Then all the sudden recently, with no intervention, it all went away recently, just as mysteriously as it started. Just mild social anxiety comes back here and there.

with that said though,I think if any major traumatic event happened, it would flood back.

Something in my body was able to get a hold on those symptoms. But Lyme does that. It brings on and turns off certain symptoms all the time.

Lyme is a real trip isn't it?