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ahinerman Posts: 17
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Hi everyone. I've been treated for 8 months now with factive, doxy and bicillin shots, 15 now completed. I have been feeling WORSE for several weeks than ever before. People normally don't herx for several weeks. I ache and feel "hard" everywhere, my neck and head hurt, feel weak. I am concerned my treatment is doing me in. Any thoughts? |
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nank59 Posts: 802
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When I was initially treated for Lyme with Doxy, I began a herx after about 3 days and herxed for almost a week. Felt better for several weeks and then, bad again. After that, no additional treatment. Continued with regular flares, then declined in health. Saw an ND approximately five months later. After a few months of treatment, some things got better, others worse - plus, new symptoms. Apparently, I have coinfections - just began treating for Babesiosis. Perhaps, you have coinfections that need to be treated. Also, are you taking a cyst buster? I take Grapefruit Seed Extract in an attempt to keep the cysts from remaining dormant. I want to see them ruptured and eradicated! Hoping for better days ahead for you! Have you considered changing doctors? nan
I am not a doctor, nor have I ever been. All comments are based on my personal experience or opinion.
IgM
41+
IgG
41+
31 IND
39 IND
Currently treating Lyme & Babesiosis.
Have many Bart symptoms.
Blessings! :) |
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mowgli Posts: 384
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8 months isn't that long really, especially if using oral and possibly abx shots? Have you been following a strict diet (no alcohol, no sugar, no gluten), have you been detoxing regularly? have you done forced rest and the appropriate exersize? If not, things will linger longer. Also, true about treating co-infections and a cyst buster as well as needing a non-cellwall Bb killer. Post edited by: mowgli, at: 04/12/2012 01:08 PM |
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doglick Posts: 510
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Been 4 years for me. I'm better overall but still got a way to go. It can be brutal. |
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nank59 Posts: 802
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Remember...It's a marathon, not a sprint. There are just too many factors involved...especially once you've gone chronic - which doesn't take long. Mowgli asked some great questions. You have to do all of those things mentioned - it's not easy. If you don't, you just can't progress much. nan
I am not a doctor, nor have I ever been. All comments are based on my personal experience or opinion.
IgM
41+
IgG
41+
31 IND
39 IND
Currently treating Lyme & Babesiosis.
Have many Bart symptoms.
Blessings! :) |
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GlitchyMomma Posts: 283
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My LLMD yesterday made a couple statements worth repeating. Most will acknowledge this cannot be "cured" only managed, and also, if you are treating for some time and are not getting results, there may be other "passengers" that have not been addressed. By passengers, he is referring to the elevator analogy. Our bodies are like an elevator, each of us with our own load capacity. We all have multiple things going on in our bodies that add to that load. Lyme may be the one tipping the scales, but it could be other loads that are impacting our health even more than the Lyme. These can include things like coinfections, heavy metals, viral infection(s), yeast infection, mycoplasma, mold, parasites, hormone issues, food sensitivities, vitamin deficiencies, genetic disposition, toxins. That is why Lyme disease is now referred to by some doctors as having a BROADER meaning than just the borreliosis infection. Your illness may include some or all of the above. Of course, in addition, due to the 3 morphed forms of borrelia, your antimicrobials (abx) must be taken to address cell wall form, no cell wall form, and cyst/biofilm form. Not feeling well is indicating that your elevator is still in an overload position for whatever reason. Review the list above, I'm sure I've missed some, but ask yourself if you've addressed any or all through testing, antimicrobials or supplemental support. Hugs, Glitchy GlitchyMomma
I am not a doctor, nor do I play one on TV. All comments are based on my personal experience or opinion.
______________________________
Only major "bites" I remember were chigger bites in June 2000 and flea bites in early 2001.
First weird symptom was a panic attack w/ tachycardia in 2001. My husband brought me to the ER, and I was released when everything showed normal.
~June 2001 - Possible VERY early miscarriage, 10 EPTs were positive then I had a heavy menses a few days later. ER said I was never pregnant.
Hashimoto's Thyroiditis dx July 2003
Cholecystectomy March 2010
Vit D3 Deficiency 2011
Progesterone Deficiency 2011
Adrenal Fatigue September 2011
January 2012 Labcorp: IgG 41 Positive, IgG 18 Positive, IgG 23 Positive, IgM 39 Positive, IgM 41 positive
CD57 - 32
ABX: Doxy 28 days, Minocycline 30 days, Ceftin 37 days, 4/16/2012 started Azithromycin |
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amycwusa1976 Posts: 45
Member
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I couldn't agree with GlitchyMomma more!! Now that I have had my hormonal/vitamin, etc. issues managed I am feeling much better! It really took my recovery to a new level. I am starting to learnt that being on the right antibiotic is a small percentage of healing from this terrible disease. In health, A |
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tizmo Posts: 675
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I found that my systemic yeast issue is causing way more symptoms than my lyme disease is and they have the same symptoms. I had to quit oral antibiotics because it was only feeding the yeast more and it wasn't helping anyways, I felt worse on it. So now I'm treating naturally with Byron White Formulas A-L Complex (for lyme), and A-FNG (for yeast). Also I take Candex for the yeast, which are natural enzymes. Oh yeah and I rife with my rife machine. |
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runner64 Posts: 230
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Yeah I agree with GitchyMomma too. I've read about the other contributers too many times. I am on all herbals daily. A lot of herbs for cyst buster, biofilm breaker, get bugs out of hiding herbs.
Then a combo to eradicate for lyme and co-infections. Then more for virals, intestinal parasites, and fungal killers. Strict no sugar, carbs, alcohol, etc,. diet. Alkaline diet. Low sugar fruit, and no carb vegetables.
Interesting link on raw, unpasteurized, unfiltered, honey as an anti-bacterial. For more interesting info in that link "click" on the 2 words in blue that say "lyme disease".
http://articles.mercola.com/sites/articles/archive/2006/12/19/the-healing-properties-of-honey.aspx |
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waxby  Posts: 4109
VIP Member
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~~Hello abinerman! ~~~Perhaps it is time for a new abx combination ... ``` Mitchell ``` ~~ "The way to 'Heaven' is to bring it with you ..." -Mitchell
~~ "Sometimes, we gotta go through hell to get to 'Heaven'" -Mitchell
~~ "The way out is in" -Mitchell
~~ "A miracle speaks ...'I don't believe in Miracles.' " -Mitchell
~~ "Life is good, even when it isn't." -Mitchell
~~ "Sometimes you gotta lose to win." -Mitchell
~~ "It's easy when it's easy! Find reason, purpose and meaning when it's hard!" -Mitchell
~~ "If you're gonna think, think again!" -Mitchell
~~ "Make it so!" ...
~~ “When life do what it do, as it do-do, simply say ‘Of Course!’ (to soften life’s ‘blows’)” - Mitchell
~~ A master once said, "When embarking on the spiritual path, 'Oh Dear! There's no turning back! You've really done it now!' "
~~ “Not thoughts be your guide, rather, guide your thoughts.” -Mitchell
~~ "That which is within, and that energy entering this body/mind/spirit, causing harm and ill health, must and will be transformed into love healing energy and sent out in every direction" -Mitchell
~~ One morning ten years ago I awoke from a dream chanting over again and again, and writing this down so as not to forget ... "It doesn't matter who did what, there's nowhere else to go but up ..." -Mitchell
~~ "This life, our life, and what we do with it on this planet is “simply” a display, a reflection, of what is going on in our consciousness. The proof is in the puddin’. Look at our planet, what humans are doing to it, and with it, and to one another, and ask yourself ... ~ 'How’s this working for us/me?' ” -Mitchell
~~ "Step away from monkey mind, not tangle ... Observe ... Inhabit your higher self ..." -Mitchell
~~ "Anything is possible, but manythings you think are true, are not ... " -Mitchell
~~ "Grow where you are planted ..." -Mitchell
~~ "Change your future now ..." -Mitchell
~~ “Write your equation … 4 u r the sum of u … “ -Mitchell
~~ “We are largely a product of our environments … how’s your inner environment doing? …” -Mitchell |
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