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Lyme Disease ForumsGeneral & SupportPost on Dr. Phil's message board
04/12/2012 10:40 AM
avaj
avaj
 
Posts: 26
Member

I know we all wish the segment Dr. Phil is doing on Lyme would be the whole hour but, I do believe it's a great first step. Maybe if as many of us who can would post on his message board after the show, it would show him Lyme is a much more pervasive issue than many doctors would want us to believe.

Here is the link to his message board:

betty edited; this is the LINK we need for ongoing comments/reading of friday, april 13 showing!

http://community.drphil.com/boards/?EntryID=31912

forget this one; good for TODAY'S programming only!

http://community.drphil.com/

Happy posting!

Post edited by: Bettyg, at: 04/16/2012 01:32 AM

Post edited by: Bettyg, at: 04/16/2012 01:35 AM

Reply

04/12/2012 09:40 PM  Top
Bettyg
 
Posts: 26614
VIP Member
I'm an Advocate

TOTALLY AGREE; MAKE IT POSITIVE COMMENTS ONLY!

this is the best progress we've had in YEARS!~

dr. oz did 10 min. max last yr; short and sweet.

oprah and susie van ...... were both to have somethign; last minute it got canceled!

COUNT OUR BLESSINGS; half a show is better than NONE!

i've already read a review of someone who has seen the show already!

betty, iowa activist

BettyG, IOWA ACTIVIST
RETIRED llmd coordinator of 6 yrs; group leader

NOTE: I DO "NOT" USE CHAT thanks!
**************************************

NO INFORMATION SHOULD BE CONSIDERED MEDICAL ADVICE.
please see my WELCOME LETTER/BEGINNER'S LINKS with important links/info galore :)

http://www.mdjunction.com/forums/lyme-disease-support-forums/general-support/2356916-bettygs-welcome-letter-wgood-beginner-links-

Any information provided should not be used to take the place of advice from your personal physician or other professional.

Information on those sites is the opinion of those who publish the sites and is NOT necessarily that of BettyG.

43 yrs. chronic lyme; 35 yrs. misdiagnosed by 40-50 drs. unacceptable; see my profile for more.

04/13/2012 03:54 PM  Top
Bettyg
 
Posts: 26614
VIP Member
I'm an Advocate

pampe posted elsewhere!

http://drphil.com/uncut/page/uncensored/

what he said afterwards

now to go and post on his board!! PLEASE DO ALSO!!

be positive about the show folks; this was HUGE progress for our community!

bettyg, iowa activist

BettyG, IOWA ACTIVIST
RETIRED llmd coordinator of 6 yrs; group leader

NOTE: I DO "NOT" USE CHAT thanks!
**************************************

NO INFORMATION SHOULD BE CONSIDERED MEDICAL ADVICE.
please see my WELCOME LETTER/BEGINNER'S LINKS with important links/info galore :)

http://www.mdjunction.com/forums/lyme-disease-support-forums/general-support/2356916-bettygs-welcome-letter-wgood-beginner-links-

Any information provided should not be used to take the place of advice from your personal physician or other professional.

Information on those sites is the opinion of those who publish the sites and is NOT necessarily that of BettyG.

43 yrs. chronic lyme; 35 yrs. misdiagnosed by 40-50 drs. unacceptable; see my profile for more.

04/13/2012 04:26 PM  Top
Bettyg
 
Posts: 26614
VIP Member
I'm an Advocate

752 feedback comments so far;

100 added during the time it took me to write my writeup below!

have NOT read any of them YET!

phil and staff,

thank you ALL for doing the lyme disease show today. you covered a LOT in a very short period of time.

please have another 1-2 hr. shows giving more details and covereing what you didn't cover today:

HEALTH INSURANCE companies use the idsa/cdc guidelines.

so ALL of our expenses are paid OUT OF POCKET for appts, RX/OTC meds, labs, and all other expenses related to our LYME/CO-INFECTIONS, other diseases the ticks/etc. carry.

CONGRESS /politics..our lyme/vector-born bills have been in congress 11-12 yrs. now. we can't get them on the house rep/senate SUB-COMMITTEE HEALTH groups!

they are being paid OFF BY "MEDICAL COMMUNITY" LOBBYIST NOT TO ADD OUR LYME/VB BILLS TO THEIR AGENDAS to be discussed/cussed!

in past, NJ REP HEALTH SUBCOMMITTEE chair, frank pallone, was paid by the MC LOBBYIST above $500,000+ for 2-3 years NOT to put our lyme/vb bills on the agenda to finally be discussed and VOTED ON! disgusting!

animals are given better care then our huge lyme/VB community! they received prompt treatment.

we are called hypochondriacs, drug seekers, and it's all in your head mentality. HOGWASH! wrong, wrong, wrong!

st ephanie managed to talk about her huge bills and using ALL THE MONEY she had plus what she still owes.

dr. bhakta did a great job in the short amount of time she had using the most recent MONKEY TEST outcome to DISPUTE dr. autewater's statements about long-term abx use!

watching and hearing stephanie was like watching mandy hughes, the blond swimmer, from UNDER OUR SKIN lyme documentary.

well done brooke and kathy.

phil, thank yOU for having the guts to air this today, and we look forward to followup shows on what was not covered today.

to all of you in lyme/vb community, CALL YOUR PUBLIC TV STATIONS to reair in its entirity UNDER OUR SKIN lyme documentary.

last year idsa lobbied all 50 states NOT to air this which tells our PATIENT perspective on how the idsa shoves under the rug our CHRONIC LYME DISEASE! HOGSWASH!

50% of our states AIRED UOS; IOWA DID! i'm working on them again right now.

with dr. phil airing this today, it's AMMUNITION to use in pursuading PTV to reair UOS lyme documentary again.

thank you stephanie, brooke, kathy, dr. b, and dr. a for your parts in today's brief 30 minute show on LYME DISEASE REPURCUSSIONS AND THE LYME WAR CONTROVERSY.

bettyg, iowaly me activist/ group leader/llmd coordinator

BettyG, IOWA ACTIVIST
RETIRED llmd coordinator of 6 yrs; group leader

NOTE: I DO "NOT" USE CHAT thanks!
**************************************

NO INFORMATION SHOULD BE CONSIDERED MEDICAL ADVICE.
please see my WELCOME LETTER/BEGINNER'S LINKS with important links/info galore :)

http://www.mdjunction.com/forums/lyme-disease-support-forums/general-support/2356916-bettygs-welcome-letter-wgood-beginner-links-

Any information provided should not be used to take the place of advice from your personal physician or other professional.

Information on those sites is the opinion of those who publish the sites and is NOT necessarily that of BettyG.

43 yrs. chronic lyme; 35 yrs. misdiagnosed by 40-50 drs. unacceptable; see my profile for more.

04/13/2012 05:28 PM  Top
novoice
novoice
 
Posts: 116
Member

I posted too.

04/13/2012 05:46 PM  Top
melissa333
 
Posts: 492
Member

I posted too. It was so great to have Dr. Phil raise awareness and support for the lyme community. FINALLY SOMEBODY STANDING UP FOR US!!!

That IDSA guy looked like such a jerk. Awesome!


04/13/2012 05:55 PM  Top
melissa333
 
Posts: 492
Member

Just watched unsensored. Double awesome!!! I just became one of Dr. Phil's biggest fans! lol

04/13/2012 06:42 PM  Top
bbl2011
 
Posts: 167
Member

Is there a place to watch this online? I have no TV and am dying to see it! Smile
I am not a doctor, nor do I play one on TV. All comments are based on my personal experience or opinion.

* Had a band 23 on Western Blot thru LabCorp 2012
* Bands 39 and 41 thru Clongen Labs 2012
* My Lyme ID test ALL positive thru Neuroscience.
* Have been infected for possibly 10 years
* CD57 60
* My symptoms have all been cognitive (neurolyme), but I have always seemingly stayed functional (even if it didn't feel like that on the inside!).

http://ilads.org/lyme_disease/Psychiatric_Brochure_08_08.pdf

* Have not started treatment yet (as of 4/2012)
* Blessed that the only pain is in my right knee joint, occasionally left.

*I always wonder, how many ppl are walking around, with my type of Lyme infection, just being put on paxil...

04/13/2012 06:47 PM  Top
sebnova81
sebnova81
 
Posts: 625
Member

Treating lyme, bart and babs

Hoping for better days in the near future.

"To be yourself in a world that is constantly trying to make you something else is the greatest accomplishment." -Ralph Waldo Emerson

04/13/2012 06:48 PM  Top
bbl2011
 
Posts: 167
Member

oh, thank you so much!
I am not a doctor, nor do I play one on TV. All comments are based on my personal experience or opinion.

* Had a band 23 on Western Blot thru LabCorp 2012
* Bands 39 and 41 thru Clongen Labs 2012
* My Lyme ID test ALL positive thru Neuroscience.
* Have been infected for possibly 10 years
* CD57 60
* My symptoms have all been cognitive (neurolyme), but I have always seemingly stayed functional (even if it didn't feel like that on the inside!).

http://ilads.org/lyme_disease/Psychiatric_Brochure_08_08.pdf

* Have not started treatment yet (as of 4/2012)
* Blessed that the only pain is in my right knee joint, occasionally left.

*I always wonder, how many ppl are walking around, with my type of Lyme infection, just being put on paxil...
Reply

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