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waxby  Posts: 4129
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~~~Hello Leah! ~ "Has anyone here ever been told they may not make over the next few months?" ~ Perish the thought! Good Lord! ~~~Please hang in there, we're with you! ~~~Ask your Dr to ramp up your Rifampin to 600mg 2x a day. Please click to go here for information and support … ~ http://www.mdjunction.com/mem/117464 ``` ~~~from my straight jacket~~~out on a limb~~~lookin like a cocoon~~~hangin by a thread~~~waitin for a butterfly~~~under the moon~~~Lovey-Dovey~~~Mitchell ``` Post edited by: waxby, at: 04/01/2012 03:46 AM ~~ "The way to 'Heaven' is to bring it with you ..." -Mitchell
~~ "Sometimes, we gotta go through hell to get to 'Heaven'" -Mitchell
~~ "The way out is in" -Mitchell
~~ "A miracle speaks ...'I don't believe in Miracles.' " -Mitchell
~~ "Life is good, even when it isn't." -Mitchell
~~ "Sometimes you gotta lose to win." -Mitchell
~~ "It's easy when it's easy! Find reason, purpose and meaning when it's hard!" -Mitchell
~~ "If you're gonna think, think again!" -Mitchell
~~ "Make it so!" ...
~~ “When life do what it do, as it do-do, simply say ‘Of Course!’ (to soften life’s ‘blows’)” - Mitchell
~~ A master once said, "When embarking on the spiritual path, 'Oh Dear! There's no turning back! You've really done it now!' "
~~ “Not thoughts be your guide, rather, guide your thoughts.” -Mitchell
~~ "That which is within, and that energy entering this body/mind/spirit, causing harm and ill health, must and will be transformed into love healing energy and sent out in every direction" -Mitchell
~~ One morning ten years ago I awoke from a dream chanting over again and again, and writing this down so as not to forget ... "It doesn't matter who did what, there's nowhere else to go but up ..." -Mitchell
~~ "This life, our life, and what we do with it on this planet is “simply” a display, a reflection, of what is going on in our consciousness. The proof is in the puddin’. Look at our planet, what humans are doing to it, and with it, and to one another, and ask yourself ... ~ 'How’s this working for us/me?' ” -Mitchell
~~ "Step away from monkey mind, not tangle ... Observe ... Inhabit your higher self ..." -Mitchell
~~ "Anything is possible, but manythings you think are true, are not ... " -Mitchell
~~ "Grow where you are planted ..." -Mitchell
~~ "Change your future now ..." -Mitchell
~~ “Write your equation … 4 u r the sum of u … “ -Mitchell
~~ “We are largely a product of our environments … how’s your inner environment doing? …” -Mitchell
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mowgli Posts: 384
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If you are 84 pounds and that sick (nausea and vomiting) to the point you are basically starving, your LLMD should have had you admitted to the hospital, no questions asked, to get you stabilized. If he won't I would just go to the ER, Lyme or no Lyme, its that simple! Post edited by: mowgli, at: 04/01/2012 05:08 AM |
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DrScarlet Posts: 116
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Just wanted to offer you hopes and prayers. We've all felt at the end of our rope. I agree with what the above people have said. You are probably paying a lot for supplements when you could "up" the antibiotic approach. Although many of us find that supplements are helpful, most need hard core antibiotics when things get very bad. Hang in there and keep reaching out. You aren't alone! |
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waxby Posts: 4129
VIP Member
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~~~Hello DrScarlet! ~~~So good to see you my ol' friend! ``` Love, Mitchell ``` ~~ "The way to 'Heaven' is to bring it with you ..." -Mitchell
~~ "Sometimes, we gotta go through hell to get to 'Heaven'" -Mitchell
~~ "The way out is in" -Mitchell
~~ "A miracle speaks ...'I don't believe in Miracles.' " -Mitchell
~~ "Life is good, even when it isn't." -Mitchell
~~ "Sometimes you gotta lose to win." -Mitchell
~~ "It's easy when it's easy! Find reason, purpose and meaning when it's hard!" -Mitchell
~~ "If you're gonna think, think again!" -Mitchell
~~ "Make it so!" ...
~~ “When life do what it do, as it do-do, simply say ‘Of Course!’ (to soften life’s ‘blows’)” - Mitchell
~~ A master once said, "When embarking on the spiritual path, 'Oh Dear! There's no turning back! You've really done it now!' "
~~ “Not thoughts be your guide, rather, guide your thoughts.” -Mitchell
~~ "That which is within, and that energy entering this body/mind/spirit, causing harm and ill health, must and will be transformed into love healing energy and sent out in every direction" -Mitchell
~~ One morning ten years ago I awoke from a dream chanting over again and again, and writing this down so as not to forget ... "It doesn't matter who did what, there's nowhere else to go but up ..." -Mitchell
~~ "This life, our life, and what we do with it on this planet is “simply” a display, a reflection, of what is going on in our consciousness. The proof is in the puddin’. Look at our planet, what humans are doing to it, and with it, and to one another, and ask yourself ... ~ 'How’s this working for us/me?' ” -Mitchell
~~ "Step away from monkey mind, not tangle ... Observe ... Inhabit your higher self ..." -Mitchell
~~ "Anything is possible, but manythings you think are true, are not ... " -Mitchell
~~ "Grow where you are planted ..." -Mitchell
~~ "Change your future now ..." -Mitchell
~~ “Write your equation … 4 u r the sum of u … “ -Mitchell
~~ “We are largely a product of our environments … how’s your inner environment doing? …” -Mitchell |
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pampe Posts: 1270
Group Leader
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I have nothing to offer but support and prayers ((gentle hug)) Pam
Group Leader
(I am not a doctor. I am not involved with insurance or the government. Any advice I give is purely from my own experience and/or research. Always discuss your healthcare concerns with an appropriate medical professional.)
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2003 BB IGG/IGM + (told it was negative)
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May, 2012 IgeneX (CDC positive)
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MTHFR= homozygous A1298C
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October 2012 WB Igenex CDC Positive
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Last WB (2/2013):
CDC positive
~~~
My story can be found on the Group Leaders page. |
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waxby Posts: 4129
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~~~Hello pampe! ~ "I have nothing to offer but support and prayers ((gentle hug))" ~ This is HUGE! ``` Mitchell ``` ~~ "The way to 'Heaven' is to bring it with you ..." -Mitchell
~~ "Sometimes, we gotta go through hell to get to 'Heaven'" -Mitchell
~~ "The way out is in" -Mitchell
~~ "A miracle speaks ...'I don't believe in Miracles.' " -Mitchell
~~ "Life is good, even when it isn't." -Mitchell
~~ "Sometimes you gotta lose to win." -Mitchell
~~ "It's easy when it's easy! Find reason, purpose and meaning when it's hard!" -Mitchell
~~ "If you're gonna think, think again!" -Mitchell
~~ "Make it so!" ...
~~ “When life do what it do, as it do-do, simply say ‘Of Course!’ (to soften life’s ‘blows’)” - Mitchell
~~ A master once said, "When embarking on the spiritual path, 'Oh Dear! There's no turning back! You've really done it now!' "
~~ “Not thoughts be your guide, rather, guide your thoughts.” -Mitchell
~~ "That which is within, and that energy entering this body/mind/spirit, causing harm and ill health, must and will be transformed into love healing energy and sent out in every direction" -Mitchell
~~ One morning ten years ago I awoke from a dream chanting over again and again, and writing this down so as not to forget ... "It doesn't matter who did what, there's nowhere else to go but up ..." -Mitchell
~~ "This life, our life, and what we do with it on this planet is “simply” a display, a reflection, of what is going on in our consciousness. The proof is in the puddin’. Look at our planet, what humans are doing to it, and with it, and to one another, and ask yourself ... ~ 'How’s this working for us/me?' ” -Mitchell
~~ "Step away from monkey mind, not tangle ... Observe ... Inhabit your higher self ..." -Mitchell
~~ "Anything is possible, but manythings you think are true, are not ... " -Mitchell
~~ "Grow where you are planted ..." -Mitchell
~~ "Change your future now ..." -Mitchell
~~ “Write your equation … 4 u r the sum of u … “ -Mitchell
~~ “We are largely a product of our environments … how’s your inner environment doing? …” -Mitchell |
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greenespace Posts: 136
Member
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Leah, I just read this string and think there are definitely things we can do to get you back on track. I'm not an MD- nor an LLMD- but I would focus on anything to help get your liver levels down as much as possible. Start with Milk Thistle (cheap) and if you can swing it, SAM-e. Both will get your liver levels going back into the right direction again. Then, once your levels are better, try the IV antibiotics. They will get into your system much more effectively. One of the things I do on the Klinghardt cocktail is add lipo-health to the mix (which adds magnesium) and then use a ionic cleaner to help bind the materials together. The reason for this is that it helps the medicine penetrate to the areas where Lyme hides. My hunch is that your lyme case is using your own immune system to hide, and that's why you aren't improving as you need to. You also need a comprehensive physical to make sure there's not something else going on other than Lyme which would be treatable. We all have a tendency to blame everything on Lyme, but sometimes other things creep in while we're so focused on Lyme disease and we miss it as a result. If money is an issue, apply for disability ASAP- they can probably help you get financial assistance for healthcare as well. Good luck- don't give up. There's always an answer if we look hard enough. |
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Leah123 Posts: 46
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Thanks so much evryone !!! I have a complete phycical at least once a month. My Internal medicine MD IS also a DO I see him for these head to toe exams as well as LLMD. I plan to see another Internal medicine MD, who also has a PHd in biochemistry to get his opinion he takes my insurance. That was one of my undergraduate areas of study Chemistry ( strong in Organic & biochemistry) along with my other degree. Right now with disabiliy, you would never know that I once functioned well. I have been checked for all auto immune disorers none showed up except Hashimoto's disease. I have had that for years , long before Lyme Disease & co- infections. I am being treated for that as well. Thanks again everyone, your help is really appreciated more than you can know!!! CD57 24. I am 4'11 very small frame. My normal wt is 95-100 lbs. many times hanging around 92 lbs which is really too low. I have times of vomitting a lot at times, but not always. I should go to hospital if it gets too many days. My LLMD will send me to hospital, or rely on my Internal medicine MD. I have been to hospital for IVs & I have anti nausea meds at home that do work sometimes. I will go again if necessary. I admit I hate to go the treat me very badly, because they say LYME DISEASE DOES NOT EXIST IN NC, NEITHER DO OTHER CO_INFECTIONS I HAVE. Leah123 Post edited by: Leah123, at: 04/01/2012 11:57 AM Post edited by: Leah123, at: 04/01/2012 12:15 PM I have a policy that I only share my experience with Lyme Disease & coinfections.
I also, share some of what I have learned from my own research. I sometimes give friendly advice.
If you need medical advise please see a MD or other medical professionial. |
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waxby Posts: 4129
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~~~Hello Leah! ~ "Thanks again everyone, your help is really appreciated more than you can know!" ~ You're Welcome!... And, actually we do know! We've all been there! ~~~Over two years ago when I first discovered this Forum FREAKING OUT from this disease, seeking HELP, so many reached out to help me, I CRIED! ~~~Hang on tight Leah! We'll be here waiting for you! ``` Mitchell ``` Post edited by: waxby, at: 04/01/2012 12:53 PM ~~ "The way to 'Heaven' is to bring it with you ..." -Mitchell
~~ "Sometimes, we gotta go through hell to get to 'Heaven'" -Mitchell
~~ "The way out is in" -Mitchell
~~ "A miracle speaks ...'I don't believe in Miracles.' " -Mitchell
~~ "Life is good, even when it isn't." -Mitchell
~~ "Sometimes you gotta lose to win." -Mitchell
~~ "It's easy when it's easy! Find reason, purpose and meaning when it's hard!" -Mitchell
~~ "If you're gonna think, think again!" -Mitchell
~~ "Make it so!" ...
~~ “When life do what it do, as it do-do, simply say ‘Of Course!’ (to soften life’s ‘blows’)” - Mitchell
~~ A master once said, "When embarking on the spiritual path, 'Oh Dear! There's no turning back! You've really done it now!' "
~~ “Not thoughts be your guide, rather, guide your thoughts.” -Mitchell
~~ "That which is within, and that energy entering this body/mind/spirit, causing harm and ill health, must and will be transformed into love healing energy and sent out in every direction" -Mitchell
~~ One morning ten years ago I awoke from a dream chanting over again and again, and writing this down so as not to forget ... "It doesn't matter who did what, there's nowhere else to go but up ..." -Mitchell
~~ "This life, our life, and what we do with it on this planet is “simply” a display, a reflection, of what is going on in our consciousness. The proof is in the puddin’. Look at our planet, what humans are doing to it, and with it, and to one another, and ask yourself ... ~ 'How’s this working for us/me?' ” -Mitchell
~~ "Step away from monkey mind, not tangle ... Observe ... Inhabit your higher self ..." -Mitchell
~~ "Anything is possible, but manythings you think are true, are not ... " -Mitchell
~~ "Grow where you are planted ..." -Mitchell
~~ "Change your future now ..." -Mitchell
~~ “Write your equation … 4 u r the sum of u … “ -Mitchell
~~ “We are largely a product of our environments … how’s your inner environment doing? …” -Mitchell |
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Bettyg Posts: 26641
VIP Member
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leahn,are you ON ssdi/ss disability work insurance, now? someone mentioned this. if not, i'd have the dr. write you or get a copy of the medical notes in your files saying, "he doesn't think you have 2 months left, etc" and get that to SS OFFICE NOW. that alone can rush things so you are IMMEDIATELY APPROVED ON 1ST STEP !! lots of great advise, but more than that; this wonderful membership of CARING AND SHARING is what is abundantly clear to me. leah, we're all here for you sweetie; DON'T GIVE UP! we love you leah  bettyg, iowa friend BettyG, IOWA ACTIVIST
RETIRED llmd coordinator of 6 yrs; group leader
NOTE: I DO "NOT" USE CHAT thanks!
**************************************
NO INFORMATION SHOULD BE CONSIDERED MEDICAL ADVICE.
please see my WELCOME LETTER/BEGINNER'S LINKS with important links/info galore :)
http://www.mdjunction.com/forums/lyme-disease-support-forums/general-support/2356916-bettygs-welcome-letter-wgood-beginner-links-
Any information provided should not be used to take the place of advice from your personal physician or other professional.
Information on those sites is the opinion of those who publish the sites and is NOT necessarily that of BettyG.
43 yrs. chronic lyme; 35 yrs. misdiagnosed by 40-50 drs. unacceptable; see my profile for more. |
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