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03/23/2012 10:12 AM

Only positive for IgG p41 Ab. Western Blot

ahinerman
 
Posts: 17
New Member

My diagnosis is a positive "abnormal" ONLY for the IgG p41 with the Western Blot, and also the low immune number. I have heard reports you need more than one line to be considered positive for lyme. Any advice out there?
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03/23/2012 10:28 AM
mowgli
mowgli  
Posts: 442
Member

List your symptoms out(everything) and get a referral for an LLMD.

One bar is sufficient indication if you have numerous symptoms that can't be explained by another dx (and even if they are sometimes).

It's mostly a clinical diagnosis done by a trained Lyme Literate Medical Doctor(LLMD/ND) ND=Naturopathic Doctor.

The tests are NOT necessary to determine if you have it (a clinical dx is sufficient by an LLMD) but do help with knowing the extent of Lyme and co-infections for treatment. The test need to be done by specialized labs (see links on here).

See links for symptoms posted by BettyG

Post edited by: mowgli, at: 03/23/2012 10:46 AM


03/23/2012 04:26 PM
Bettyg
 
Posts: 33642
VIP Member
I'm an Advocate

hi,

click on link in my signature line, welcome letter.

dr. c's western blot explanation is there explaining the nos.

YOU ARE POSITIVE FOR LYME;

you will NOT be counted for your state's lyme statistics! short/simple.

symptoms list is there.

BUT READ/PRINT OFF I RECOMMEND ... dr. corson's kid's evaluation where she goes thru the entire body and tells you WHICH DISEASES affect each body part; then you'll have an idea which diseases you do have!!

bettyg, leader


03/23/2012 05:12 PM
WiscLamLymie
WiscLamLymie  
Posts: 1472
Group Leader

Hey there, band 41 is not Lyme-specific, HOWEVER, it is most likely that it is from Borrelia. Have you had any antibiotics? If you haven't, try a course of them, then retest.

My personal story: my first WB came back with only IgM band 41. Lyme doc looked at that AND my symptoms. He absolutely said I had Lyme.

I started on Clarithromycin, 500 mg, 2/day, and after 5 weeks, retested. (Had to go to a new Lyme doc as my first one got "caught" for treating Lymies. She absolutely agreed to a new test.) That pulled out the IgM and IgG band 41, as well as the IgM band 23.

23 IS Lyme-specific. So it was a very good confirmation for me. Even though this first Lyme doc, who is amazingly smart with this stuff, said I was positive, it was good to see scientific proof.

Now with that said... Some people never see that scientific proof, but it doesn't mean they don't have Lyme. The best test is through treatment.

If you herx, you know it's Lyme. If you don't, it still may be. A small number of people don't herx. It's all so crazy here in this world.

BUT we are all in this together. My thoughts: try antibiotics and see if more bands show if you really need to see the scientific proof. If you trust your doc, then proceed without the testing.

If you can afford it, go for it. If you really can't, then don't worry about it. Below is my welcome letter. Take your time through it, and all the best to you!!

------------------------

Welcome! We are so glad you are on the right path! And that you found us here as well.

We will always be a support for you, even if no one else knows what you're going through... we do. And we will lend a hand or a hug anytime we can.

Ask your questions!

LLMD

If you don't have a Lyme Literate Medical Doctor or Natural Doctor (LLMD/LLND) please go to the Doctor Request forum on this site (look at the top tabs) and request a LLMD in your area. Betty will PM you with info.

Bb=Lyme Bacteria

I also want to express my opinion and the opinion of nearly every Lyme doctor out there. The reason you need multiple antibiotics (abx for short) is because the Lyme bacteria is unique and stealth in its makeup.

It is a corkscrew shape, which is called a spirochete. It also can take other forms, the most prominent being the cyst form.

The Bb (short for Borrelia burgdorfei/the Lyme bacteria) gets hit with abx and it quickly goes into cyst form, thus not allowing the abx to eradicate them. This is one reason for other forms of abx, known as cyst-busters.

This has all been researched and documented. You can find YouTube videos to watch a spirochete go into cyst form within a few seconds.

They also form biofilms, which is like a fortified, protected city of loads of Bb and even other bugs, where traditional abx can't hit them.

Here is one: http://www.youtube.com/watch?v=lVmCa70bAxE

What happens most of the time when people are dx'd (diagnosed) with Lyme by doctors other than LLMDs is that they kill a few Bb, and the rest are driven into cyst form.

The patient feels better after a short cycle of abx, and they feel they are cured. Only to discover that when they come off the abx, they begin to relapse.

Under Our Skin

Please, if you haven't yet, watch the documentary, Under Our Skin. You can find it on Netflix instant streaming or hulu.com for free.

It explains a lot of the reasoning for the plight of the Lyme patient. Very eye-opening.

DIET

Another thing to think about is your diet. I understand that some people eat whatever they want and feel it is ok, but there are serious reasons why a NO SUGAR diet is important.

1. When you are on abx for any period of time, you are wiping out all the good bacteria in your gut. This can lead to a problem that many Lymies have: Candida problems (yeast!) It can overtake your gut and then it causes more problems.

2. Bb thrive on sugar. And whether you feel good or bad after eating it, this is their main source and most easily-attainable energy source. Not feeding them is important.

Also, many people with Lyme are not able to tolerate gluten and/or dairy. This is different for many, but you may want to consider cutting these things out for a minimum of two weeks to see how you feel without them.

Then, try introducing these types of things, ONE AT A TIME, to see if you react or feel poorly after eating them.

You can do this!

Please understand that you are brand new to this illness, and there are many people who are willing to help and offer advice and such. We all have the same goal: wellness.

Try not to be overwhelmed. We have all been there.

Pro-biotics

Make sure you are taking a really strong pro-biotic (pro-bx), two to three hours after each abx dose as this will help to keep your intestinal system (gut) in balance and keep the yeasties under better control.

And we're talking in the 20-40 billion a day range (some take even more!), different strains are a good thing, too. I always load up when I find the good ones on sale. Best idea as they are expensive.

Florajen is a popular one. You can find it at Walgreens at the pharmacy. No prescription needed, but it's kept there in the fridge.

DETOXING

There is also the issue of detoxing regularly. Bb give off neurotoxins throughout their lives. When they are killed, they release everything in them, called endotoxins.

It's like a tiny atomic bomb going off every time one of them dies. These neurotoxins are one of the reasons we feel so sick. Nausea, headache, and flu-like symptoms are just a few ways we feel these endotoxins.

So when you kill them, you are bound to feel worse. This is called a Herxheimer reaction (or herx for short).

It was named from the guy who discovered it, which is why it's kind of a weird name. 

Detoxing is of utmost importance.

1.Epsom Salt baths are by far the most widely-used detox regimen. 2 C ES in the bath water. Soak for 20-30 minutes. It brings the toxins out of your body through your pores.

I also put 2 T freshly grated ginger in a tea ball and put that in the bath too, as ginger helps open the pores and increase blood flow. So more toxins can get the heck out. 

2. Drink water (lots!!!) with freshly squeezed lemon . Lemon also is a terrific detoxifier.

3. Take Milk thistle and Dandelion (comes in a capsule form, many times together in the same pill) every single day. This detoxes the liver, which is on overtime, with the meds and Bb and trying to keep the body's toxicity level in check.

A stressed liver is not good. So taking this every day is EXTREMELY important.

4. Taking Chlorophyll or Chlorella (the kind with broken cell walls) is also very important. It binds to the toxins that can be moving around in there, and ushers them out of your body.

If there isn't a good binder like this, once the toxins are in the intestines, they can be re-absorbed which won't help anything at all. I order mine from Swanson's.

5. Burbur is an all-over body de-toxifier. I got mine from NutraMedix/Natural Healthy Concepts online.

Co-Infx

One last thing I want to tell you about here (I know this is a LOT of info, but these things I can't stress enough if you desire to be well). This would be co-infections (co-infx).

There are dozens of other bacteria/parasites/viruses that Lyme vectors (such as ticks) can carry, and many times, do carry. This is another reason why finding a LLMD is so important. They know about these things.

And sometimes when Lyme is being treated by itself, a patient doesn't get better because they have co-infx that are keeping them from healing.

Some of these are worse then the Lyme itself. I personally am fighting one called Babesia, which is a blood-born parasite.

The combo between Babs and Bb has given my a heart condition. Babs is also notorious for migraines, frontal headaches, heart palpitations, low-grade fevers, and many other things.

I also have Bartonella. This one can present itself with skin rashes/lesions that look red or white, and can look like a stretch mark or other form.

Painful bottoms of the feet, especially in the morning, low back pain, hip pain, severe thigh pain, low fevers, back of the head headaches, painful, stiff, sore, cracking neck...

There is also Ehrlichia, Anaplasma, Chlamydia Pneumonia, Mycoplasma, Rocky Mountain Spotted Fever, Relapsing Fever, and so many more!

Check out this link from a great website to read more on co-infx. http://www.lymedisease.org/lyme101/coinfections/ other_tick_diseases.html

I don't wish to sound "doomsday" about this, and it's not my goal to freak anyone out, but I also want to convey the severity of Lyme and it's co-infx (Lyme + Co.).

If left un- or under-treated, Lyme has been proven to lead to other debilitating things in some people, such as MS, ALS, CFS, Fibromyalgia, Alzheimer's, Lupus, and more.

This is definitely a huge reason you want a good LLMD on your side for. You can also visit www.ilads.org to learn so much more about the truth regarding Lyme Disease.

Also, please click here http://www.ilads.org/files/burrascano_0905.pdf to find an amazing paper--in its 15th edition--by Dr. Joe Burrascano, who is a true Lyme hero. (If you watch Under Our Skin, you will see him in there!) 

This paper, while LONG, is SO CRUCIAL to any Lyme patient. It's like a survival guide. It is a must read for all of us.

It explains, from a doctor's point of view, but in terms that are understood by the general public, the reasons for proper diet, different medications, and more, more, more.

I want everyone I ever meet to understand the truth about this disease. It has taken so many lives unnecessarily and severely reduced the quality of exponentially more.

I am here to do my best at offering facts and things I've learned over the course of my journey. PM me anytime. And make sure you read Burrascano's paper. I printed a copy off to keep with me, because it's so critical.

Blessings to you, and wellness!

Lauren


03/23/2012 05:53 PM
ahinerman
 
Posts: 17
New Member

Thanks to you! Actually, I've been at this for 6-7 months already. But somehow, with all the confusion with these numbers, I keep questioning why I feel so awful with all the meds I take plus weekly bacillin shots. I've wondered if all the abx are harming me. It helps me mentally to feel I'm on the right path.
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