I had a follow up Lyme appt with my LLMD today. He had a lot of interesting things to say. I have a horrible headache right now so I might get some of this wrong, and I will post more later.

First that Johnson County, Kansas has been put on the list for a hot spot for Lymes. It is in the catigory of epidemic!! I am just glad people are taking notice!

ALSO years ago I was diagnosed with having a virus called HHv6 ( Human herpes Virus 6) which is not like the std herpes.. anyways my doc says they are finding a lot of lymes patients have this virus AND HHv6 can cause a -typical seizures and other nuerlogical symptoms.

Also he has found a lot of (mostly women) lymes patients also have a low vitamin D count. Which can cause a lot of aches and pains deep in your bones. He is not sure why it seems to be stronger in lymes but like he says this disease is so sneaky.

He is re checking ALL my counts for everything. CD57, horomones, vitamin D,parasites and basic CBC. I will let yall know more when I do. If you have any questions about what I have said let me know. Again my head is pounding and some of this might not make sense.. sorry hehe.. hope everyone is doing ok today!

xoxoxoxo

Kendra

very interesting stuff on that...

I am guessing that you see Dr. Brewer, since he is the best known male LLMD near JO Co KS.

I am shocked and intreegued that you say CDC is listing this county as epidemic. I went to CDC.gov and could not find anything on this. Do you know where this information can be found. I have heard for a long time that local vets recommend Lyme vaccine for dogs, especially if they go to a major park in this county--the same park where I got Lyme. However, the most current year CDC lists in Lyme tracking is 2006, and they are showing that Lyme was rare in Kansas at that time. However, I also saw something on their site that made me think they are no longer using the blood tests that do not work as the only method of determining reportable cases of Lyme. So, what is the deal?!

For a long time now I have been considering putting Lyme warning signs at entrances to the offending park. If CDC is listing JO Co as has having a major Lyme problem, maybe our country health department will start to take action!

My LLMD who is Dr. Douglas Brooks, is the one who told me. He had said he just found out. I can e-mail him and see where we as the public could find this. He is very involved with Lymes doctors and researchers all over the country.

Although I have seen Di. Brewer before. He is the one who diagnosed me with HHV6, which Dr. Brooks said they are recently finding in Lymes patients, before they were finding it in Fibromyalgia patients. Which I of course think is kinda ironic, considering a lot of us were misdiaognosed with fibro.

I think maybe the cdc has named Joco this due to how many patients in Joco have Lymes. Are you from the JOco area? It would be so nice to know of someone else from here. PM me if you want

However, the determination is that the area is ENDEMIC for Lyme disease. There is no Lyme disease epidemic. Endemic means that by CDC's definition of 2 CDC level cases confirmed at the state level as acquired in the county anytime since surveillance began, Johnson County is endemic, or has demonstrated that ticks in this area can carry Lyme disease. The county made this determination using CDC standards, but the CDC made no declaration.

Johnson County is 17 years late in making this announcement, since a medical journal study in 1992 determined that JoCo had 4 cases confirmed that were acquired in the county by 1991.

Endemic is important because doctors need this information to help make a diagnosis, particularly in the absence of a distinctive rash or ambiguous blood work.

Nancy Tausz is the head of the infectious disease department. Anyone at the county health department should be able to fax, mail or email this endemic alert. Nancy.Tausz@jocogov.org. The woman is a dingaling.

It is correct that dogs in JoCo get Lyme. Vets know it but docs do not. I am Kansasdenies on Lymeblog.org. See articles for more information about JoCo's being endemic and spread this word.

Patients need to take a copy of the JoCo alert from January 2008 because docs do not know Lyme is here, and the health department has no interest in telling them.