MDJunction - People Helping People
 

Why wear a ribbon?

 
"Because I suffer from gastroparesis!" (Bubs2424)

MDJunction to me

Fmsdaddy"Md Junction to me is my safe place. A place where I can feel safe to just open up talk about everything without burdening my wife. With all my health issues its nice to know that I am not alone, suffering form fibromyalgia,depression, and costochondritis with anxiety is a nightmare. Having the great people here at MDjunction is so great its hard to put into words. I dont think I would be getting through what I am going through without this great resource. I think everyone should know about mdjunction!" (Fmsdaddy)

more testimonials
Lyme Disease Support Group
A community of patients, family members and friends dedicated to dealing with lyme disease, together.
Join This Group
Group Home   Forums   Articles   Members (7827)   Diaries   Leaders   Guidelines
Lyme Group RSS Feed
Lyme Disease ForumsGeneral & SupportDo i have lyme?
03/15/2012 12:45 PM
besexy22
Posts: 1
New Member

So for the past 10 months or so ive been dealing with extreme symptoms that have been a struggle to deal with on an every day basis. ive been to the doctors a bunch of times and they cant figure out what is wrong with me and say its anxiety. I just recently met a new friend that is going through the exact same thing i am and he has lyme, so i was wondering do i have it? my symptoms are..

confusion

cant concentrate

heart problems (palpitations, murmurs, skipping beats)

always tired, constantly wanting to sleep

irritable to sunlight, bright rooms

floaters/ bright swirls in my vision

panic attacks

jolting awake when trying to sleep

my balance sucks

always feeling like im in a dream or nothing is real

cant focus on one thing

sore feet

Those are most of the symptoms ive had for 10 months and i really want them to stop. do you think it is lyme?

Thanks alot!

Reply

03/15/2012 01:14 PM  Top
Bettyg
 
Posts: 26524
VIP Member
I'm an Advocate

sexy,

go to my welcome letter below and print off

dr. corSON'S KID'S EVALUATION applies to adults too except meds/dosages are different. she goes thru the compelte body and tells yuo WHICH DISEASES effect each body part. by time you get done reading it, you'll know if you have lyme and/or other vector-borne co-infecitons too!

if you discover you have many of things discussed, post in LLMD REQUEST FORUM link is shown below and use my posting guidelines for posting ok.

copy/paste your link from here showing your symptoms to post on your new post in llmd request forum ok. you will save me VALUABLE TIME i can spend elsewhere helping folks; shorthanded right now.

hugs/prayers, bettyg, leader/llmd coorindator

Welcome to MD JUNCTION! I'm so glad you found us! You’ve come to the right place for education and support!

Private messages DELETED in 30 days!

ARCHIVE, upper right!

My WELCOME LETTER is posted at the top of SUPPORT FORUM in sticky pin full of good info and HYPERLINKS ready to be read.

http://www.mdjunction.com/forums/lyme-disease-support- forums/general-support/2356916-bettygs-welcome-letter-wgood- beginner-links-

The most important things are at the top; MUST READ and print off as mentioned there already to start your lyme/co-infection journey with us all.

The 1st things to do are:

• JOIN LYME BOARD;

• Post in LLMD REQUEST FORUM for a LYME LITERATE md; see my welcome letter and the INSTRUCTIONS there if you are SPECIALLY FROM CALIF. Where it’s broken down into 8 NAMED AREAS.

• You’ll need to give me my calif. NAMED area where you live in the areas shown there in SUBJECT LINE plus if it’s for ADULT or a child; we need age of CHILD; some llmds have AGE restrictions.

• OTHER STATES will show the SPECIFIC NAME OF THEIR STATE and closest, largest city to them in SUBJECT line plus adult or child; UNDER 21; we need their age!.

http://www.mdjunction.com/forums/lyme-disease-support- forums/llmd-info/Itemid=217/func=post/do=reply

• Also, I’ll need the following info in your request post:

in your llmd request, please EDIT and add more info ok.

Are you UNDER AGE 21;; if yes, I need your age shown as some of our llmds have AGE RESTRICTIONS; thanks!

how long you've been sick

if you've tested for lyme/co-infections;

which labs doing work for which specific test, etc.

did you have western blot igm/igg done by igenex?

if yes, what were the POSITIVE & INDETERMINDED numbers; NOT negatives.

thanks for understanding; just EDIT your post. you can find all by going to left MY DISCUSSIONS, click on it.

after you add more, i'll send you names ok.

just send me a PRIVATE MESSAGE left side, giving me the direct link to come to here, and i'll send you the names ok big thanks.

Betty’s suggested posting guidelines:

NO ALL CAPS POSTS; they are illegible to me/other neuro folks!

Many of members have neuro lyme, and it is hard to read long solid block text and be able to comprehend; example, me, 42 yrs. neuro chronic lyme, so we are UNABLE to comprehend and read. Thank you for helping us help YOU

please post in short paragraphs like you see below or look at a few other posts, but we neuro folks need them short.

1-2 sentences MAX per paragraph and hit ENTER TWICE to doublespace between each paragraph. We’ve lost our comprehension skills to read solid block text.

we neuros lose our train of thought if the sentence is broken up in the middle; so please keep an ENTIRE sentence together as ONE. hugs

For easier reading, please edit your post. You can break up your longer paragraphs into smaller paragraphs. Please hit

ENTER key twice after each paragraph.

Go to left hand corner; click edit send. Then go to bottom and click SUBSCRIBE TO THIS DISCUSSION.

Thank you for posting in a manner that makes it easier for all to read and help others.

Bettyg, llmd coordinator/group leader/iowa activist

BettyG, IOWA ACTIVIST
RETIRED llmd coordinator of 6 yrs; group leader

NOTE: I DO "NOT" USE CHAT thanks!
**************************************

NO INFORMATION SHOULD BE CONSIDERED MEDICAL ADVICE.
please see my WELCOME LETTER/BEGINNER'S LINKS with important links/info galore :)

http://www.mdjunction.com/forums/lyme-disease-support-forums/general-support/2356916-bettygs-welcome-letter-wgood-beginner-links-

Any information provided should not be used to take the place of advice from your personal physician or other professional.

Information on those sites is the opinion of those who publish the sites and is NOT necessarily that of BettyG.

43 yrs. chronic lyme; 35 yrs. misdiagnosed by 40-50 drs. unacceptable; see my profile for more.

03/17/2012 09:15 AM  Top
WiscLamLymie
WiscLamLymie
 
Posts: 1325
Group Leader

hey there besexy... every single symptom you mentioned, i have. and more. and i bet you can look at your life and find even more than you listed...

it sounds to me like you at least have lyme and bartonella. could be more as well... babesia is the next one i would think for you. i pray it isn't all three, but many people who have lyme are also carrying these two.

take a look at my welcome letter below. there is a lot of info, but all very useful. keep coming back. we are here for you!!

Welcome! We are so glad you are on the right path! And that you found us here as well.

We will always be a support for you, even if no one else knows what you're going through... we do. And we will lend a hand or a hug anytime we can.

Ask your questions!

LLMD

If you don’t have a Lyme Literate Medical Doctor or Natural Doctor (LLMD/LLND) please go to the Doctor Request forum on this site (look at the top tabs) and request a LLMD in your area. Betty will PM you with info.

Bb=Lyme Bacteria

I also want to express my opinion and the opinion of nearly every Lyme doctor out there. The reason you need multiple antibiotics (abx for short) is because the Lyme bacteria is unique and stealth in its makeup.

It is a corkscrew shape, which is called a spirochete. It also can take other forms, the most prominent being the cyst form.

The Bb (short for Borrelia burgdorfei/the Lyme bacteria) gets hit with abx and it quickly goes into cyst form, thus not allowing the abx to eradicate them. This is one reason for other forms of abx, known as cyst-busters.

This has all been researched and documented. You can find YouTube videos to watch a spirochete go into cyst form within a few seconds.

They also form biofilms, which is like a fortified, protected city of loads of Bb and even other bugs, where traditional abx can't hit them.

Here is one: http://www.youtube.com/watch?v=lVmCa70bAxE

What happens most of the time when people are dx'd (diagnosed) with Lyme by doctors other than LLMDs is that they kill a few Bb, and the rest are driven into cyst form.

The patient feels better after a short cycle of abx, and they feel they are cured. Only to discover that when they come off the abx, they begin to relapse.

Under Our Skin

Please, if you haven't yet, watch the documentary, Under Our Skin. You can find it on Netflix instant streaming or hulu.com for free.

It explains a lot of the reasoning for the plight of the Lyme patient. Very eye-opening.

DIET

Another thing to think about is your diet. I understand that some people eat whatever they want and feel it is ok, but there are serious reasons why a NO SUGAR diet is important.

1. When you are on abx for any period of time, you are wiping out all the good bacteria in your gut. This can lead to a problem that many Lymies have: Candida problems (yeast!) It can overtake your gut and then it causes more problems.

2. Bb thrive on sugar. And whether you feel good or bad after eating it, this is their main source and most easily-attainable energy source. Not feeding them is important.

Also, many people with Lyme are not able to tolerate gluten and/or dairy. This is different for many, but you may want to consider cutting these things out for a minimum of two weeks to see how you feel without them.

Then, try introducing these types of things, ONE AT A TIME, to see if you react or feel poorly after eating them.

You can do this!

Please understand that you are brand new to this illness, and there are many people who are willing to help and offer advice and such. We all have the same goal: wellness.

Try not to be overwhelmed. We have all been there.

Pro-biotics

Make sure you are taking a really strong pro-biotic (pro-bx), two to three hours after each abx dose as this will help to keep your intestinal system (gut) in balance and keep the yeasties under better control.

And we're talking in the 20-40 billion a day range (some take even more!), different strains are a good thing, too. I always load up when I find the good ones on sale. Best idea as they are expensive.

Florajen is a popular one. You can find it at Walgreens at the pharmacy. No prescription needed, but it’s kept there in the fridge.

DETOXING

There is also the issue of detoxing regularly. Bb give off neurotoxins throughout their lives. When they are killed, they release everything in them, called endotoxins.

It's like a tiny atomic bomb going off every time one of them dies. These neurotoxins are one of the reasons we feel so sick. Nausea, headache, and flu-like symptoms are just a few ways we feel these endotoxins.

So when you kill them, you are bound to feel worse. This is called a Herxheimer reaction (or herx for short).

It was named from the guy who discovered it, which is why it's kind of a weird name. 

Detoxing is of utmost importance.

1.Epsom Salt baths are by far the most widely-used detox regimen. 2 C ES in the bath water. Soak for 20-30 minutes. It brings the toxins out of your body through your pores.

I also put 2 T freshly grated ginger in a tea ball and put that in the bath too, as ginger helps open the pores and increase blood flow. So more toxins can get the heck out. 

2. Drink water (lots!!!) with freshly squeezed lemon . Lemon also is a terrific detoxifier.

3. Take Milk thistle and Dandelion (comes in a capsule form, many times together in the same pill) every single day. This detoxes the liver, which is on overtime, with the meds and Bb and trying to keep the body's toxicity level in check.

A stressed liver is not good. So taking this every day is EXTREMELY important.

4. Taking Chlorophyll or Chlorella (the kind with broken cell walls) is also very important. It binds to the toxins that can be moving around in there, and ushers them out of your body.

If there isn't a good binder like this, once the toxins are in the intestines, they can be re-absorbed which won't help anything at all. I order mine from Swanson’s.

5. Burbur is an all-over body de-toxifier. I got mine from NutraMedix/Natural Healthy Concepts online.

Co-Infx

One last thing I want to tell you about here (I know this is a LOT of info, but these things I can't stress enough if you desire to be well). This would be co-infections (co-infx).

There are dozens of other bacteria/parasites/viruses that Lyme vectors (such as ticks) can carry, and many times, do carry. This is another reason why finding a LLMD is so important. They know about these things.

And sometimes when Lyme is being treated by itself, a patient doesn't get better because they have co-infx that are keeping them from healing.

Some of these are worse then the Lyme itself. I personally am fighting one called Babesia, which is a blood-born parasite.

The combo between Babs and Bb has given my a heart condition. Babs is also notorious for migraines, frontal headaches, heart palpitations, low-grade fevers, and many other things.

I also have Bartonella. This one can present itself with skin rashes/lesions that look red or white, and can look like a stretch mark or other form.

Painful bottoms of the feet, especially in the morning, low back pain, hip pain, severe thigh pain, low fevers, back of the head headaches, painful, stiff, sore, cracking neck...

There is also Ehrlichia, Anaplasma, Chlamydia Pneumonia, Mycoplasma, Rocky Mountain Spotted Fever, Relapsing Fever, and so many more!

Check out this link from a great website to read more on co-infx. http://www.lymedisease.org/lyme101/coinfections/ other_tick_diseases.html

I don’t wish to sound "doomsday" about this, and it's not my goal to freak anyone out, but I also want to convey the severity of Lyme and it's co-infx (Lyme + Co.).

If left un- or under-treated, Lyme has been proven to lead to other debilitating things in some people, such as MS, ALS, CFS, Fibromyalgia, Alzheimer's, Lupus, and more.

This is definitely a huge reason you want a good LLMD on your side for. You can also visit www.ilads.org to learn so much more about the truth regarding Lyme Disease.

Also, please click here http://www.ilads.org/files/burrascano_0905.pdf to find an amazing paper--in its 15th edition--by Dr. Joe Burrascano, who is a true Lyme hero. (If you watch Under Our Skin, you will see him in there!) 

This paper, while LONG, is SO CRUCIAL to any Lyme patient. It's like a survival guide. It is a must read for all of us.

It explains, from a doctor's point of view, but in terms that are understood by the general public, the reasons for proper diet, different medications, and more, more, more.

I want everyone I ever meet to understand the truth about this disease. It has taken so many lives unnecessarily and severely reduced the quality of exponentially more.

I am here to do my best at offering facts and things I've learned over the course of my journey. PM me anytime. And make sure you read Burrascano's paper. I printed a copy off to keep with me, because it's so critical.

Blessings to you, and wellness!

Lauren

Was diagnosed with Autonomic Disorder, POTS, Interstitial Cystitis, and Fibromyalgia. True story is I have late stage Lyme which has caused these things. Just began the fight in October 2011 (have been full-blown Lyme since Sept. 5, 2010), and WILL be victorious! Positive bands: IgG 41 and 60; IgM 23 and 41. CDC positive!

Not a doctor, not anyone of any legal standing... just someone on the search.
(Translation: Please do not take anything I say as medical advice. Always see your doctor when needing medical advice.)
Reply

Share this discussion with your friends:
Members who viewed this page also read:

LymeLyme Disease ForumsGeneral & SupportDo i have lyme?

Disclaimer: The information provided in MDJunction is not a replacement for medical diagnosis, treatment, or professional medical advice.
In case of EMERGENCY call 911 or 1.800.273.TALK (8255) to the National Suicide Prevention Lifeline. Read more.
Contact Us | Bookmark Us | FAQ | Awareness Ribbons
About Us | Terms & Conditions | Privacy | Spread the Word | MDJ Advocates | Advertise
Copyright (c) 2006-2013 MDJunction.com All Rights Reserved