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sebnova81 Posts: 625
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I get SO nervous/anxious when starting a new med. I started malarone yesterday and haven't really noticed anything yet... I start a flagyl pulse tomorrow and am super nervous. My LLMD said the most calls they get are after people start flagyl because some react very strongly. I am taking it after work tomorrow. Treating lyme, bart and babs
Hoping for better days in the near future.
"To be yourself in a world that is constantly trying to make you something else is the greatest accomplishment." -Ralph Waldo Emerson
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irenwill Posts: 1849
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Hi seb, Best wishes to you! those are both tough meds. I personally have not been on either but have talked to people who have - and they had a difficult time. Please be conscientious in your self-care and detox. I'm pulling for you! I am not a doctor, just a patient striving for recovery and hoping to offer support to others, too! Many blessings to you!
Any information offered is just sharing my experience and friendly advice, NOT a prescription. You should use your own judgment and discretion when making health care decisions. |
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Bettyg Posts: 26676
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yes, glad you are starting it AFTER work for the FEAR OF THE UNKNOWN!i was on flagyl 5 days only when i herxed horribly online where my typing was like a 2-3 yr. old. i was seeing red/blue lights; felt awful so i laid down. the other board i was on at that time turned intothe BETTYG DETECTIVE AGENCY trying to track me down knowing my 1st name and state only. eventually they found someone who i'd met who knew me. called local police station to hve them do a HOME CHECK on me due to medical reasons. 2 young good looking men came 5 minutes after i got up. i was just getting on pc and had 50-75 pms/emails! i knew something was up. yes, i let them go; sure was hard and hubby ws home too. take it easy; document when things start to change IF they do; we all rect differently. also, have 1-2 people on this board that know yourfull identify, address, phone no. so if something happens online, we can try calling you or police in YOUR CITY. NOT ME FOLKS! i've getting to be a more fulltime CAREGIVER for elderly husband. hugs/prayers to you, bettyg, leader BettyG, IOWA ACTIVIST
RETIRED llmd coordinator of 6 yrs; group leader
NOTE: I DO "NOT" USE CHAT thanks!
**************************************
NO INFORMATION SHOULD BE CONSIDERED MEDICAL ADVICE.
please see my WELCOME LETTER/BEGINNER'S LINKS with important links/info galore :)
http://www.mdjunction.com/forums/lyme-disease-support-forums/general-support/2356916-bettygs-welcome-letter-wgood-beginner-links-
Any information provided should not be used to take the place of advice from your personal physician or other professional.
Information on those sites is the opinion of those who publish the sites and is NOT necessarily that of BettyG.
43 yrs. chronic lyme; 35 yrs. misdiagnosed by 40-50 drs. unacceptable; see my profile for more. |
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benniferobin Posts: 354
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hey seb, hoping you are doing well on your new meds. i am on mepron and didn't notice anything instantly with it - i have now been on it a week and all of my symptoms have intensified but i am also starting my period today, when everything gets worse. flagyl seems to help so many people so think of it as a happy addition to your killing combo  ***in good health, jen*** |
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sebnova81 Posts: 625
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So far, I feel a little weird I think from the malarone, but nothing horrible or anything. It's only been a couple days though. I think I will do the flagyl really slowly to be safe. Treating lyme, bart and babs
Hoping for better days in the near future.
"To be yourself in a world that is constantly trying to make you something else is the greatest accomplishment." -Ralph Waldo Emerson |
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sebnova81 Posts: 625
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I still can't believe mepron for me with my insurance is $1300!! Thank god for malarone. Treating lyme, bart and babs
Hoping for better days in the near future.
"To be yourself in a world that is constantly trying to make you something else is the greatest accomplishment." -Ralph Waldo Emerson |
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irenwill Posts: 1849
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Hi Seb - it's probably on their list of "premium" meds, for which they do not offer a discount. I'm so sorry that your insurance doesn't cover more of the cost. My pharmacy told me that the mepron is like $1500, and I pay $60. Have you looked into alternatives? here are other things that my LLMD put me on for babs (in addition to mepron and azithromycin): - Noni (Nutramedix) <$30 (phase 1) - Quina (Nutramedix) ~$35 (phase 2 & 3) - artemisin ~$40 (all phases, 4 days on, 3 days off) - A-bab - (Byron White) ~$105 (phase 3) (Phase numbers refer to how my LLMD prescribed them in 6 week periods. I was on mepron and azithromycin the whole time, too.) Other possible options I have heard/read about are; - Enula (Nutramedix) - Lymogen and possibly Microbojen (Jernigan neutriceuticals) ~$46 ea for 4 oz (dose is 30 drops instead of 15) or $26 for 2 oz. Choice of ethanol or cider vinegar base. I actually think that my babs symptoms are starting to finally dissipate after treatment since 11/1/11 (18 weeks so far on babs treatment). Hurray! Best wishes! I am not a doctor, just a patient striving for recovery and hoping to offer support to others, too! Many blessings to you!
Any information offered is just sharing my experience and friendly advice, NOT a prescription. You should use your own judgment and discretion when making health care decisions. |
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ontong  Posts: 260
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hi, Seb. I understand your fear. Im starting tindamax for the 2nd time and it clobbered me last summer. One thing that my doc has told me about malarone and mepron is that they are notorious for causing depression. I'm not trying to give you a gloomy forecast, just know that if you start feeling very down, it is most likely from the med, and not necessarily even a herx, a side effect. |
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WiscLamLymie Posts: 1325
Group Leader
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One thing to think about for everyone: When you know you're starting a new med that is known for its toughness, always start slowly, with half of a dose, or less if that still hits hard. Most everyone I know in my state does this for nearly every med, and then ramps up to the full dose. One week at a time. Get the body used to it. Of course, check with you doc about this, but it REALLY helped me. Like ontong, when I started Tindy, it was HARD!!! I stopped for two days, then went with a half-dose for a week, then ramped up. WAY BETTER. Give this some consideration, and ask your docs! Lauren Was diagnosed with Autonomic Disorder, POTS, Interstitial Cystitis, and Fibromyalgia. True story is I have late stage Lyme which has caused these things. Just began the fight in October 2011 (have been full-blown Lyme since Sept. 5, 2010), and WILL be victorious! Positive bands: IgG 41 and 60; IgM 23 and 41. CDC positive!
Not a doctor, not anyone of any legal standing... just someone on the search.
(Translation: Please do not take anything I say as medical advice. Always see your doctor when needing medical advice.) |
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