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mowgli Posts: 384
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Many or most Lyme symptoms can be difficult to fully understand, but the sudden onset of extreme fatigue and exhaustion I have a very difficult time comprehending. It just takes over my body and I HAVE to go to bed, period, no fighting it what so ever. I live with general fatigue daily, but then once a week or so now, I experience the extreme fatigue, which lands me in bed for 24 - 48 hours. Can anyone explain the mechanism of this fatigue. Again like other Lyme symptom's, standard blood tests do not reveal anything, so I am wondering what is the mechanism that causes the fatigue. Thanks for any and all feedback. |
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WiscLamLymie Posts: 1325
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Hi Mowgli, I wonder if you have any co-infections as well. Has your LLMD dx you for anything besides Lyme? I ask that because Lyme has a long cycle, 28-30 days. (Like their reproductive cycle, etc.) Some co-infections have much shorter cycles and could explain the fatigue that really hits hard about once a week or so. Parasites especially! Babesia is a blood-borne parasite. (I currently am fighting this one.) Also, intestinal parasites are extremely common with Lymies. It could be something to check out if you haven't yet. A good parasite herbal like Paragone, or taking Black Walnut, Wormwood, Grapefruit Seed Extract are a few ideas. Check out this website for more info. http://altmedicine.about.com/cs/conditionsitoq/a/
Parasites.htm Hope this helps! Lauren Was diagnosed with Autonomic Disorder, POTS, Interstitial Cystitis, and Fibromyalgia. True story is I have late stage Lyme which has caused these things. Just began the fight in October 2011 (have been full-blown Lyme since Sept. 5, 2010), and WILL be victorious! Positive bands: IgG 41 and 60; IgM 23 and 41. CDC positive!
Not a doctor, not anyone of any legal standing... just someone on the search.
(Translation: Please do not take anything I say as medical advice. Always see your doctor when needing medical advice.) |
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WiscLamLymie Posts: 1325
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kba, check with your llmd. No doubt some co-infx are having a heyday in there (my personal opinion only). Bart can cause the rashes/skin issues, and babs can cause the flushing... anything to do with blood pressure, heart palps, frontal headaches, etc. Lauren Post edited by: WiscLamLymie, at: 03/06/2012 11:00 AM Was diagnosed with Autonomic Disorder, POTS, Interstitial Cystitis, and Fibromyalgia. True story is I have late stage Lyme which has caused these things. Just began the fight in October 2011 (have been full-blown Lyme since Sept. 5, 2010), and WILL be victorious! Positive bands: IgG 41 and 60; IgM 23 and 41. CDC positive!
Not a doctor, not anyone of any legal standing... just someone on the search.
(Translation: Please do not take anything I say as medical advice. Always see your doctor when needing medical advice.) |
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WiscLamLymie Posts: 1325
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Ahh. I hate the wait! But it won't be long. Hang in there!!! Lauren Post edited by: WiscLamLymie, at: 03/06/2012 11:35 AM Was diagnosed with Autonomic Disorder, POTS, Interstitial Cystitis, and Fibromyalgia. True story is I have late stage Lyme which has caused these things. Just began the fight in October 2011 (have been full-blown Lyme since Sept. 5, 2010), and WILL be victorious! Positive bands: IgG 41 and 60; IgM 23 and 41. CDC positive!
Not a doctor, not anyone of any legal standing... just someone on the search.
(Translation: Please do not take anything I say as medical advice. Always see your doctor when needing medical advice.) |
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mowgli Posts: 384
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I tested negative for just about everything, but my LLMD doesn't use a specialized lab and basically doesn't think it's worth the cost, so he treats based on clinical presentation. I was just put on mepron for babesia. I am sure I have other co-infections and intestinal stuff too. I would like to have my stool tested, but not sure about where to go and what tests. I even thought about having a vet test it, since that would be cheaper I bet. |
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Avs1823 Posts: 261
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You can also request to be tested for EBV and mycroplysma. both are standard tests and can be done thru your reg dr and if you have insurance they are covered. Both make you extremely tired. I have both. waiting for dr to start treating them. They are next on the list. |
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nank59 Posts: 803
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That's been a mystery to me, too! I've just accepted it as part of the illness. Sometimes it appears gradually, but other times just zappo! Suddenly it hits! The sudden onset is most puzzling to me. It is often accompanied by extreme weakness and muscle fatigue. Hope answers can be found - or at least that something within our treatment protocol will latch on to the cause and eliminate it! nan
I am not a doctor, nor have I ever been. All comments are based on my personal experience or opinion.
IgM
41+
IgG
41+
31 IND
39 IND
Currently treating Lyme & Babesiosis.
Have many Bart symptoms.
Blessings! :) |
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mowgli Posts: 384
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I tested negative for EBV (although I have had mononucleosis). I will ask my LLMD about mycoplasma and testing for it. My GP regularly tests her patients for human parvo virus now and says many of her patients test positive. When I did, she said that it explained my fatigue. She also said it usually resolves quickly, although a few of her patients have had it last a year or longer!!! I have read about human parvo virus and it has as sordid a story as Lyme My LLMD said if you ever had it, you will always test positive and did not think much of it (especially since there is no treatment). I will have to confirm this with him. I think may fatigue is clearly Lyme and co-infections such as babesia, bartonella and other parasites. I am just very curious about the acute extreme fatigue I experience and wanted to hear if others also do. Thanks for all the feedback so far, I always learn something new each day! Post edited by: mowgli, at: 03/06/2012 02:28 PM |
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breakaway Posts: 39
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For those of you who get fatigued, does it happen shortly after meals? Or does it happen regardless of eating meals? |
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Avs1823 Posts: 261
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I am exhausted all the time. it's not uncommon for me to sleep 15 - 18 hrs at a time and wake up and be as tired as I was before I sleep. If I could get this under control, I think I would feel some better. |
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