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smileanyway Posts: 637
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I'm almost 100 percent well. But I'm tense. I don't have a balance in my life and have no clue what to do. For so long it was just surviving. I took a lot of pride in my job because that was all I had. I had no energy left to play, or clean house. So when something happens at work for example changes, or constructive criticism I take it very personal and end up holding on to it for days. I have cried almost every day at work this week and got referred to my eap program. My manager said that I'm a great person and a hard worker. So please don't point fingers at him. My life should be great right now but I feel so down and tense. I only notice my symptoms when I take my samento, banderal and qiuna. So I still herx. It means that I still have it but when I don't take it I have zero symptoms. I should be happy but I'm not. Can anyone relate? emphasized questions, bettyg, leader Post edited by: Bettyg, at: 03/02/2012 04:23 AM |
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takefive Posts: 32
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I can't relate exactly- but in my own world, it seems a bit 'anit-climatic' sometimes when you are feeling better, because when you are ill, you look forward to being able to do certain things... and then when you can do them, it's like so what because now there is just more 'stuff' to do... Others don't understand. And, you get tired of always making measured choices in activity... when there's a let up because you feel better, it is like a culture shock... It just takes time for you to learn this 'new normal', and for others around you to learn your new normal.. Meantime, give yourself permission to enjoy the moment when you are feeling better, incorporate a moment of celebration into those days~  Psalm 100
Matthew 6:34 |
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benniferobin Posts: 354
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i can see where you are coming from for sure - but from where i stand, in the first 2 months of treatment, i would love to be able to hold a job and carry on real professional responsibilities from day to day. so keep up the good work! i barely drive or leave the house many days ***in good health, jen*** |
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Bettyg Posts: 26646
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smile, i went thru what you are going thru around 30 yrs. ago.i took work educational classes, saw some employee assistance counselors thru work oo. at least YOU LIKE WORK/CO-WORKERS; you have that going for you. i was in a bad work situation; i don't even want to waste my time going back. I OVERCAME THAT; think positive; don't let the comments get to you. try to see they are trying to HELP you as i try to do on this board; it's how people PERCEIVE to receive what i write. the choice is up to you. 1 important thing i learned in class along time ago was this: did YOU give them or the situation permission to make you feel that way. TAKE CONTROL BACK; then you will overcome as i did. best wishes; we're here for you 23/7; hugs/prayers, bettyg, leader BettyG, IOWA ACTIVIST
RETIRED llmd coordinator of 6 yrs; group leader
NOTE: I DO "NOT" USE CHAT thanks!
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NO INFORMATION SHOULD BE CONSIDERED MEDICAL ADVICE.
please see my WELCOME LETTER/BEGINNER'S LINKS with important links/info galore :)
http://www.mdjunction.com/forums/lyme-disease-support-forums/general-support/2356916-bettygs-welcome-letter-wgood-beginner-links-
Any information provided should not be used to take the place of advice from your personal physician or other professional.
Information on those sites is the opinion of those who publish the sites and is NOT necessarily that of BettyG.
43 yrs. chronic lyme; 35 yrs. misdiagnosed by 40-50 drs. unacceptable; see my profile for more. |
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smileanyway Posts: 637
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Thank you everyone. I feel much calmer today. Betty G, Any tips on how to take back control of my life? Yes I guess it does feel like a culture shock. I didn't think of it that way. Benniferobin, I hope you get to be able work sooner than you think. I had forced myself to go to work many days and worked double shifts to save money for health insurance and the lyme doctor. I had days that misery couldn't describe the pain I was in. I don't know how I kept my job back then. And I lived in fear of loosing it because it was my only hope. I hope that you are not going without right now. It must be horrible to be sick and not have a job. My heart goes out to you. Not in pity but in empathy. |
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Bettyg Posts: 26646
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how old are your kids since you mentioned playing?clean house; i finally dusted 3 rooms after 4-6 months! 2 bedrooms still left to do. when my pc is down, i finally get busy for the nights i spent in here and do a thorough job, but takes a LONG TIME. SMELLS; cleaning products have been bad for me for years. about 10 yrs. ago for 5 full yrs. i could NOT go to grocery store due to smells: those who smoke of it REEKING from their clothes, perfume, aftershave, hairspray, cleaning products, and the OVERHEAD LIGHTS; uffda. hubby went all that time; then his advanced parkinson's got worse and BALANCE/falling, so he stays home now. best wishes, bettyg, leader BettyG, IOWA ACTIVIST
RETIRED llmd coordinator of 6 yrs; group leader
NOTE: I DO "NOT" USE CHAT thanks!
**************************************
NO INFORMATION SHOULD BE CONSIDERED MEDICAL ADVICE.
please see my WELCOME LETTER/BEGINNER'S LINKS with important links/info galore :)
http://www.mdjunction.com/forums/lyme-disease-support-forums/general-support/2356916-bettygs-welcome-letter-wgood-beginner-links-
Any information provided should not be used to take the place of advice from your personal physician or other professional.
Information on those sites is the opinion of those who publish the sites and is NOT necessarily that of BettyG.
43 yrs. chronic lyme; 35 yrs. misdiagnosed by 40-50 drs. unacceptable; see my profile for more. |
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Avalon Posts: 370
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.... and that's why I come in to this support group because I immediately find people who are going through similar life experiences. I've spent the last 15 years keeping people at arms length. I couldn't do what 'normal' peeople did so I shut everyone down. Even talking on the phone is a chore ... it started off being the pain kept me from talking on the phone. Now I've forgotten the habit of talking on the phone. It's so weird ... but true. And like you, I take things too personally. I'm more sensitive at times to how people are treating me and so I pull back again. I always tell my family I'm paranoid. I guess I am. Now I'm at this point in my treatment where I'm in between. I'm not fully well and I"m not fully sick, even though when it hits I'm down for the count. But I'm at this in between stage and I"m so used to being alone I have a tough time wanting to be around people. My doctor tells me I need to let go of the fear and take that first step .. I guess until I allow myself to do that, this is it. I believe the Lyme is at fault 100%. Once the Lyme bacteria is out of my body and mind I believe I'll be okay. I'm going to hold onto that belief with my fingernails ... life will be 'normal' again I am not a doctor and the advice I give is my opinion only.
Diagnosed with Lyme Disease in 2006. 36 years and counting.
Treatment that's working for me: Heilkunst Homeopathy |
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Bettyg Posts: 26646
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avalon said, My doctor tells me I need to let go of the fear and take that first step .. I guess until I allow myself to do that, this is it.yes, it's the FIRST step ofan ything that is hardfo r us to do. keyboard is acting up; sorry! but after the 1st step, EVERY step then becomes easier. the more often you do something, it then becomes a habit again my friend. let those closest to you now that you've made progress andwould like to join them sometime. they can't read our minds if weveha' d any changes onhow we feel or react to things. best wishes to all on making progress; hugs/prayers, bettyg, leader BettyG, IOWA ACTIVIST
RETIRED llmd coordinator of 6 yrs; group leader
NOTE: I DO "NOT" USE CHAT thanks!
**************************************
NO INFORMATION SHOULD BE CONSIDERED MEDICAL ADVICE.
please see my WELCOME LETTER/BEGINNER'S LINKS with important links/info galore :)
http://www.mdjunction.com/forums/lyme-disease-support-forums/general-support/2356916-bettygs-welcome-letter-wgood-beginner-links-
Any information provided should not be used to take the place of advice from your personal physician or other professional.
Information on those sites is the opinion of those who publish the sites and is NOT necessarily that of BettyG.
43 yrs. chronic lyme; 35 yrs. misdiagnosed by 40-50 drs. unacceptable; see my profile for more. |
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"MDJ has given me the ability to help thousands of people, and I'm so glad for that opportunity. It's been a lifeline for me. It's nice to know that you aren't the only one going thru something, and there is ALWAYS someone ready to help you anyway they can. MDJ is truly one of a kind, and I'm grateful for the friends I've made here." (jaime1978)
